PTLDS

Solve M.E. Announces Emily Taylor as New President and CEO and Publication of New White Paper Calling for NIH to Restructure Funding for ME/CFS, Long Covid, and other IACCIs

Retrieved on: 
Monday, April 8, 2024
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Emily has been a key member of Solve's leadership team for more than eight years and played a critical role in securing $1.25 billion RECOVER NIH funding for Long Covid research.

Key Points: 
  • Emily has been a key member of Solve's leadership team for more than eight years and played a critical role in securing $1.25 billion RECOVER NIH funding for Long Covid research.
  • Solve Board Chair John Nicols states, "We congratulate Emily and look forward to her leadership."
  • Solve also announces the publication of their newest white paper, co-authored by Emily, " A Home for Infection-Associated Chronic Conditions and Illnesses (IACCIs) at NIH ."
  • BIPOC (Black, Indigenous, and other People of Color), Latino/Latina, LGBTQIA+, and marginalized, underserved and economically disadvantaged populations are disproportionately impacted by IACCIs.

New CDC Foundation Program Focuses on Creating Partnerships to Address Chronic Conditions Caused by Infections, Including Long COVID

Retrieved on: 
Monday, December 5, 2022
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ATLANTA, Dec. 5, 2022 /PRNewswire/ -- For many people, recovery from COVID-19 is only the beginning of another debilitating and ongoing health struggle known as Long COVID. The Centers for Disease Control and Prevention (CDC) estimates that one in five adults in the United States suffers from Long COVID— symptoms or conditions that persist or emerge weeks or even months after the initial illness of COVID-19 has passed. Long COVID has shed light on the complex challenges that people with similar chronic conditions or syndromes often face. Infections can sometimes trigger long-term illnesses that persist for years and present a wide array of symptoms, making them difficult to diagnose and treat. Through the Infection Initiated Chronic Conditions Understanding and Engagement (ICUE) program, the CDC Foundation, in partnership with CDC, will bring together patient advocacy groups and community-based organizations (CBOs) focused on raising awareness and helping people with Long COVID and similar illnesses. These groups will work together to identify common objectives and opportunities to collaborate. 

Key Points: 
  • Long COVID has shed light on the complex challenges that people with similar chronic conditions or syndromes often face.
  • Through the Infection Initiated Chronic Conditions Understanding and Engagement (ICUE) program, the CDC Foundation, in partnership with CDC, will bring together patient advocacy groups and community-based organizations (CBOs) focused on raising awareness and helping people with Long COVID and similar illnesses.
  • People with Long COVID can develop symptoms, including activity limitation, difficulty breathing and chest or muscle pain, that are hard to distinguish from other causes.
  • The CDC Foundation managed hundreds of programs in the United States and in more than 160 countries last year.