Patient advocacy

Dr. David Amron M.D., Founder of The Roxbury Institute and Global Pioneer in Lipedema Treatment, to Speak at Fat Disorders Research Society Conference Saturday, April 28, 2018 in Dallas, Texas

Retrieved on: 
Thursday, April 26, 2018
Medicine, Lipedema, Women's health, Patient advocacy, Edema

FDRS, founded in 2009, is an organization dedicated to investment in comprehensive research, collaboration, management advocacy and care to improve the lives of those with fat disorders.

Key Points: 
  • FDRS, founded in 2009, is an organization dedicated to investment in comprehensive research, collaboration, management advocacy and care to improve the lives of those with fat disorders.
  • Their annual conference is the most important global convergence for practitioners and patients on fat-related diseases.
  • A patient advocate, Dr. Amron created the Lipedema Society to encourage public advocacy, awareness, education, support and resources for those affected by lipedema.
  • The Lipedema Society also sponsors a fellowship program to train qualified surgeons from around the world in lipedema surgery.

Patient Advocacy Groups Focus On Key Issues Affecting Patients

Retrieved on: 
Thursday, April 26, 2018
Advocacy, Bleeding, Coagulopathy, Patient advocacy

HFM's strategy is to increase youth involvement, education and leadership in state-level advocacy to protect and enhance access to care.

Key Points: 
  • HFM's strategy is to increase youth involvement, education and leadership in state-level advocacy to protect and enhance access to care.
  • "Advocacy is a necessary part of life for all members of the bleeding disorders community," Lerch said.
  • "In the words of one of our teen advocates, 'a bleeding disorder is part of my identity, and advocacy comes along with that.'"
  • The Bleeding Disorders Foundation of Washington (BDFW) is responding to these challenges by creating Advocacy 102 Summit Training for patients with its LEAD Grant.

Partnership for Health IT Patient Safety Urges Organizations to Integrate Health IT into Safety Programs

Retrieved on: 
Thursday, April 19, 2018
Health, Patient safety, Medicine, Evidence-based practices, Medical ethics, Healthcare quality, Patient advocacy, Patient safety organization, ECRI Institute

The use of these technologies can affect patient safety, both positively and negatively.

Key Points: 
  • The use of these technologies can affect patient safety, both positively and negatively.
  • The Partnership for Health IT Patient Safety , a multi-stakeholder collaborative convened and operated by ECRI Institute, released a new report that examines the need for integrating health IT safety into an organization's safety program.
  • The Partnership, established in 2014, includes healthcare providers, health IT developers, academic researchers, patient safety organizations, liability insurers, professional societies, and patient advocates.
  • ECRI Institute PSO is listed as a federally certified Patient Safety Organization by the U.S. Department of Health and Human Services.