Rare Disease Day 2021: Pandemic illuminates every day social obstacles of living with a rare condition
For many of the 400,000 people in Sweden living with rare conditions, restrictions affecting social life and external relations can also be a part of regular life.
- For many of the 400,000 people in Sweden living with rare conditions, restrictions affecting social life and external relations can also be a part of regular life.
- "When the pandemic is over, it will be important to remember that many people live with restrictions even in their everyday lives.
- "Our research around rare diseases usually focuses on finding and improving treatments for rare conditions, and with this survey we want to highlight how relationships are affected by having a rare condition.
- Facts about rare conditions (Source: Sobi and National Centre of Competence for Rare Diseases)
In Sweden there are an estimated 400,000 individuals living with a rare disease.