National Kidney Foundation Partners with Alport Syndrome Foundation to expand First-Ever National Registry for Patients at All Stages of Kidney Disease
NKF and ASF will collaborate on the NKF Patient Network Alport Syndrome, a new sub-registry devoted to Alport syndrome patients within the NKF Patient Network , a registry for people with all stages of kidney disease.
- NKF and ASF will collaborate on the NKF Patient Network Alport Syndrome, a new sub-registry devoted to Alport syndrome patients within the NKF Patient Network , a registry for people with all stages of kidney disease.
- The NKF Patient Network is the only kidney disease registry that has both patient-entered data combined with electronic health records (EHR).
- Patients with all stages of kidney disease can register and add their important health information.
- Alport syndrome is a rare kidney disease resulting from a defective collagen gene that is passed down in families from parents to children, although sometimes it can occur spontaneously.