Muscular Dystrophy Association

Muscular Dystrophy Association’s Impact to End ALS Continues with Fourth Annual Lou Gehrig Day at Major League Baseball Games

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火曜日, 5月 21, 2024
Campaign, New York Yankees, Doctor of Philosophy, Discord, Neuromuscular disease, Play, Organization, Friends, Muscular Dystrophy Association, Major League Baseball, Disease, ALS, Society, Research, Yankee, Social media, San Francisco Giants, Volunteering, Q&A, MLB, Muscular dystrophy, MDA

Also known as Lou Gehrig’s disease ALS took the life of the famed Yankee slugger at the age of 37.

Key Points: 
  • Also known as Lou Gehrig’s disease ALS took the life of the famed Yankee slugger at the age of 37.
  • The ALS community and teams from MLB honor Lou Gehrig Day on June 2, marking the date when Gehrig became the Yankees' starting first baseman, and the same date he passed away from ALS in 1941.
  • MDA’s recognition of Lou Gehrig Day at 17 ballparks across the country raises awareness and funds for its mission in support of families living with ALS.
  • We commend Major League Baseball for their steadfast support of Lou Gehrig Day, empowering baseball enthusiasts to contribute to ALS breakthroughs," said Donald S. Wood, PhD, President and CEO, MDA.

MDA's Pinup & Roundup Campaigns Kick Off Across the Nation to Support Summer Camp for Kids and Young Adults Living with Neuromuscular Diseases

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月曜日, 5月 20, 2024
Magic, Neuromuscular disease, Hope, Alaska Commercial Company, Friends, Muscular dystrophy, Muscular Dystrophy Association, FDA, Ageing, Counselor, Life, Sport, Community engagement, Senior, Research, Points of the compass, Circle K, Vallarta Supermarkets, Volunteering, Summer camp, American Furniture Warehouse, Child, Swimming, Family, MDA, Cabin, Tourism

The funds raised go towards crucial support for MDA Summer Camp, offering transformative experiences for kids and young adults aged 8-17 who are living with muscular dystrophy or related neuromuscular diseases.

Key Points: 
  • The funds raised go towards crucial support for MDA Summer Camp, offering transformative experiences for kids and young adults aged 8-17 who are living with muscular dystrophy or related neuromuscular diseases.
  • Additionally, funds from this campaign go towards accelerating research, advancing care, and advocating for families living with neuromuscular diseases.
  • MDA Summer Camp has been offered to kids and young adults living with neuromuscular diseases since 1955.
  • Reflecting on the experience as a volunteer counselor at MDA Summer Camp, a camp counselor at the Illinois camp shared, “Camp is pure magic.

Muscular Dystrophy Association Celebrates Historic Advancements in Accessible Air Travel as Congress Passes FAA Reauthorization

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水曜日, 5月 15, 2024
Uncertainty, Atmosphere of Earth, Wheelchair, Doctor of Philosophy, Air travel, Legislation, Rail transport by country, Disability, Muscular dystrophy, Muscular Dystrophy Association, Travel, Paralyzed Veterans of America, MDA, Dignity, Fear, Congress, Atmosphere, Hill, Senate, House, Public policy, Federal Aviation Administration, Pain, DOT

Washington, D.C., May 15, 2024 (GLOBE NEWSWIRE) -- Today, the Muscular Dystrophy Association (MDA) celebrates a landmark achievement in accessible air travel as Congress grants final passage to the Federal Aviation Administration (FAA) reauthorization bill - H.R.3935, the Securing Growth and Robust Leadership in American Aviation Act .

Key Points: 
  • Washington, D.C., May 15, 2024 (GLOBE NEWSWIRE) -- Today, the Muscular Dystrophy Association (MDA) celebrates a landmark achievement in accessible air travel as Congress grants final passage to the Federal Aviation Administration (FAA) reauthorization bill - H.R.3935, the Securing Growth and Robust Leadership in American Aviation Act .
  • "This passage is the most significant advancement in accessible air travel in nearly four decades.
  • “The Muscular Dystrophy Association’s Accessible Air Travel advocacy campaign channeled the neuromuscular and the entire disability communities’ efforts to make it quite clear that mistreating people and damaging wheelchairs during air travel is unacceptable.
  • “With the final passage of the FAA reauthorization bill, the entire community of families served by Muscular Dystrophy Association look forward to a future where air travel is truly accessible to all.”
    "Finally, with the new reforms included in the FAA Reauthorization, there's hope for a transformation in air travel for people with disabilities.

Satellos Bioscience Announces Q1 2024 Financial Results and Operational Highlights

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火曜日, 5月 14, 2024
Research, Clinical Trials, Biotechnology, Other Health, Health, Pharmaceutical, General Health, Other Science, Science, Patient, PPMD, Human, FSHD, Food, Investment, MSCL, Muscular Dystrophy Association, Episcopal conference, FDA, Trial of the century, Travel, Chemistry, Bank statement, Safety, Conference, DMD, Phase 1, MD, Animal, GLP, Duchenne muscular dystrophy, Tablet, Volunteering, Facioscapulohumeral muscular dystrophy, Toxicology, G&A, TSX, OTCQB, MDA, GMP, Pharmaceutical industry

Satellos Bioscience Inc. (TSX: MSCL, OTCQB: MSCLF) (“Satellos” or the “Company”), a public biotech company developing new small molecule therapeutic approaches to improve the treatment of muscle diseases and disorders, announced today its financial results and operational highlights for the three months ended March 31, 2024.

Key Points: 
  • Satellos Bioscience Inc. (TSX: MSCL, OTCQB: MSCLF) (“Satellos” or the “Company”), a public biotech company developing new small molecule therapeutic approaches to improve the treatment of muscle diseases and disorders, announced today its financial results and operational highlights for the three months ended March 31, 2024.
  • On March 4, 2024, Satellos announced positive preclinical data presented at the Muscular Dystrophy Association (MDA) Clinical and Scientific Conference.
  • Satellos had cash and cash equivalents and short-term investments of $33.2 million as of March 31, 2024, compared with $39.6 million at December 31, 2023.
  • Satellos’ condensed consolidated interim financial statements for the three months ended March 31, 2024, and the related management’s discussion and analysis (MD&A) will be available on SEDAR+ at www.sedarplus.ca .

Dutch Bros to hold annual Drink One for Dane giveback

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月曜日, 5月 13, 2024
DNA, Neuromuscular disease, Hope, Heart, Muscular Dystrophy Association, Disease, Research, Face, MDA, Muscular dystrophy, Amusement park

GRANTS PASS, Ore., May 13, 2024 /PRNewswire/ -- Help Dutch Bros support the Muscular Dystrophy Association (MDA) and their mission to end ALS!

Key Points: 
  • GRANTS PASS, Ore., May 13, 2024 /PRNewswire/ -- Help Dutch Bros support the Muscular Dystrophy Association (MDA) and their mission to end ALS!
  • For every drink sold on Friday, May 17, the Dutch Bros Foundation will make a donation to MDA.
  • "When we lift our cups to Drink One for Dane, we're not only honoring the legacy of Dane Boersma, we're actually igniting hope across the ALS and neuromuscular disease communities.
  • Every year Dutch Bros holds Drink One for Dane as a way to support research to find a cure for the disease.

Dyne Therapeutics Reports First Quarter 2024 Financial Results and Recent Business Highlights

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木曜日, 5月 2, 2024
Sale, American Academy, Episcopal conference, MDA, Research, Muscular Dystrophy Association, DMD, Conference, Therapy, DYN, DM1, G&A, Pharmaceutical industry

WALTHAM, Mass., May 02, 2024 (GLOBE NEWSWIRE) -- Dyne Therapeutics, Inc. (Nasdaq: DYN), a clinical-stage muscle disease company focused on advancing innovative life-transforming therapeutics for people living with genetically driven diseases, today reported financial results for the first quarter of 2024 and recent business highlights.

Key Points: 
  • (Nasdaq: DYN), a clinical-stage muscle disease company focused on advancing innovative life-transforming therapeutics for people living with genetically driven diseases, today reported financial results for the first quarter of 2024 and recent business highlights.
  • Research and development (R&D) expenses: R&D expenses were $44.5 million for the quarter ended March 31, 2024, compared to $37.5 million for the quarter ended March 31, 2023.
  • General and administrative (G&A) expenses: G&A expenses were $24.6 million for the quarter ended March 31, 2024, compared to $7.9 million for the quarter ended March 31, 2023.
  • Net loss: Net loss for the quarter ended March 31, 2024 was $65.6 million, or $0.81 per basic and diluted share.

Muscular Dystrophy Association Launches ‘Access The Vote’ Campaign to Amplify Rights of Accessible Voting

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火曜日, 4月 23, 2024
Public policy, Neuromuscular disease, Social media, Muscular dystrophy, Disability, MDA, Muscular Dystrophy Association, Human, Life, Policy, Federation, Exercise, League, Campaign, Democracy, LWV

Through core messages focusing on the power of an individual’s vote, creating a voting plan, and overcoming barriers to vote, MDA aims to make voting more accessible and inclusive for all.

Key Points: 
  • Through core messages focusing on the power of an individual’s vote, creating a voting plan, and overcoming barriers to vote, MDA aims to make voting more accessible and inclusive for all.
  • The ‘Access The Vote’ Campaign provides people with the power to make an impact through their vote.
  • The ‘Access The Vote’ Campaign addresses frequently asked questions at MDA.org/Vote providing essential information on polling place accessibility, voting options, and voter rights for people living with disabilities.
  • As voting is a cornerstone of democracy, this event will empower attendees to harness the power of their fundamental right to vote.

Muscular Dystrophy Association and Friedreich’s Ataxia Research Alliance Announce Collaborative Research Grant Using Novel Gene Editing Technology to Address Root Cause of Friedreich’s Ataxia Disease

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水曜日, 4月 17, 2024
Pillar, Enzyme, Friedreich's ataxia, Gene editing, CRISPR, GAA, Hope, Muscular dystrophy, Ataxia, FXN, MDA, Diabetes, FARA, Muscular Dystrophy Association, Column, RNA, Doctor of Philosophy, Research, Scoliosis, Parent, Schnucks, University of Massachusetts, Disease, Therapy, Biomedical Research, Nikolaus Friedreich, Fatigue, Movement, FA, Art, Genome, Organization, Pharmaceutical industry

This funding will further research into using novel genetic technologies to treat Friedreich’s ataxia (FA).

Key Points: 
  • This funding will further research into using novel genetic technologies to treat Friedreich’s ataxia (FA).
  • The grant, Paired Prime Editors to treat Friedreich’s Ataxia, involves prime editing (PE), a next-generation CRISPR gene editing tool that can precisely target the removal of the GAA expansions in the frataxin (FXN) gene.
  • “Our team of investigators is excited to bring multi-disciplinary expertise to the unique challenges of developing PE for FA.
  • This treatment method being targeted – prime editing – aims to directly address the cause of the disease, which is the GAA expansion in the FXN gene.

International Association of Fire Fighters & Affiliates Launch ‘Fill the Boot’ Fundraisers Nationwide for Muscular Dystrophy Association

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水曜日, 4月 10, 2024
Online, FDA, Social media, Firefighter, Muscular dystrophy, MDA, Heart, Muscular Dystrophy Association, Partnership, Research, Growth, International Association, IAFF, Boot, ALS, Pedestrian, Pharmaceutical industry

Funds raised from IAFF’s Fill the Boot events for MDA accelerate research, advance care, and empower people living with muscular dystrophy, ALS, and related neuromuscular diseases to live stronger and love longer.

Key Points: 
  • Funds raised from IAFF’s Fill the Boot events for MDA accelerate research, advance care, and empower people living with muscular dystrophy, ALS, and related neuromuscular diseases to live stronger and love longer.
  • Online donations will continue, even as fire fighters take to the streets in communities across the country with boots in hand asking pedestrians, motorists, customers, and other passersby to support MDA’s mission.
  • Since 1954, our partnership with Muscular Dystrophy Association has advanced breakthroughs in treatments and access to care for families living with neuromuscular diseases.
  • "In our journey to end neuromuscular disease, fire fighters remain steadfast allies in our mission," said Donald S. Wood, Ph.D., President and CEO of MDA, reflecting on the 70-year collaboration between Muscular Dystrophy Association and International Association of Fire Fighters.

Burn Boot Camp and Muscular Dystrophy Association Team Up for 8th Annual 'Be Their Muscle' Philanthropic Event

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月曜日, 3月 25, 2024
Research, Employment, Entrepreneurship, Skeletal muscle, MDA, ALS, Partnership, Air travel, Education, Duke University Hospital, Social media, Muscular dystrophy, Muscular Dystrophy Association, Senior, Empowerment, Duchenne muscular dystrophy, Duchenne, Clinical trial, FDA, Summer camp, Pharmaceutical industry

Charlotte, North Carolina, March 25, 2024 (GLOBE NEWSWIRE) -- Burn Boot Camp, a leading boutique fitness franchise, has teamed up with the Muscular Dystrophy Association (MDA) for its eighth annual national 'Be Their Muscle' philanthropic event.

Key Points: 
  • Charlotte, North Carolina, March 25, 2024 (GLOBE NEWSWIRE) -- Burn Boot Camp, a leading boutique fitness franchise, has teamed up with the Muscular Dystrophy Association (MDA) for its eighth annual national 'Be Their Muscle' philanthropic event.
  • Muscular Dystrophy Association is one of Burn Boot Camp's longest-standing national philanthropic partners," explained Morgan Kline, CEO and Co-Founder of Burn Boot Camp.
  • "Here at the Muscular Dystrophy Association, we stand hand in hand with Burn Boot Camp in our shared commitment to empower communities nationwide.
  • MDA and Burn Boot Camp will be posting throughout the campaign on social media using @MDAorg and @burnbootcamp with #BeTheirMuscle.