Palo Alto Non-Profit Receives Two Significant, Multi-Year Awards for Capacity-Building and Network-Building
Retrieved on:
Thursday, May 12, 2022
CZI, Chan Zuckerberg Initiative, Patient-Centered Outcomes Research Institute, Foundation, Patient, Parent, Health, Science, Eugene Washington, Caregiver, Birth, Research, Child, Conference, PCORI, Congress, Organization, PALO, Muscle weakness, Ecosystem, Diagnosis, Nemaline myopathy, Pharmaceutical industry, Medicine
PALO ALTO, Calif., May 12, 2022 /PRNewswire/ -- A Foundation Building Strength (AFBS), a 501©3 non-profit has been approved for two major awards that will significantly benefit the Nemaline Myopathy (NM) community:
Key Points:
- "I'm eager to work more closely with families around the world over the next two years."
- A Foundation Building Strength was founded in 2008 by two Palo Alto parents of a child affected by Nemaline Myopathy (NM), a rare congenital condition causing incurable muscle weakness.
- AFBS is the largest organization that operates solely to advance research of NM and support families affected by it.
- AFBS works to create a fully functioning NM ecosystem, where researchers, clinicians, and the affected community supports each other to ease the NM burden and advance research.