Pediatric nursing

Rhythm Pharmaceuticals Receives Positive Recommendation from NICE for ▼IMCIVREE® (setmelanotide) for Treatment of Obesity and Hyperphagia in Patients with Bardet-Biedl Syndrome

Retrieved on: 
수요일, 5월 22, 2024

People living with BBS may experience insatiable hunger, also known as hyperphagia, and severe obesity beginning early in life.

Key Points: 
  • People living with BBS may experience insatiable hunger, also known as hyperphagia, and severe obesity beginning early in life.
  • “Hyperphagia – the feeling of extreme hunger that stays with patients all the time – leads to early-onset, life-long, severe obesity that affects many aspects of daily living.
  • Until now there have been no licensed treatments for obesity and hyperphagia caused by BBS.”
    The final NICE recommendation is aligned to the European Marketing Authorization (EMA) and U.K.
  • Rhythm is moving ahead with submission to the Scottish Medicines Consortium with a decision expected in 2025.

Study Highlights Use of New Tool for Assessing Pediatric Behavioral Health Acuity in EDs

Retrieved on: 
화요일, 5월 7, 2024

SCHAUMBURG, Ill., May 7, 2024 /PRNewswire/ -- The rising pediatric mental health crisis has put a strain on emergency departments across the country. "The Development and Implementation of a Pediatric Nursing Emergency Behavioral Health Assessment Tool" in the May issue of the Journal of Emergency Nursing addresses the fact there is no current standardized tool for assessing mental and behavioral acuity in emergency departments.

Key Points: 
  • The Development and Implementation of a Pediatric Nursing Emergency Behavioral Health Assessment Tool " in the May issue of the Journal of Emergency Nursing addresses the fact there is no current standardized tool for assessing mental and behavioral acuity in emergency departments.
  • Using published evidence, nurse feedback and expert opinion, a team of researchers created the Emergency Behavioral Health Assessment Tool to help improve pediatric care in emergency departments.
  • From 2021-2022, approximately 23 patients each day presented to the emergency department's mental and behavioral health area where the tool was tested.
  • Other topics covered include universal suicidality screening in a pediatric emergency department and management of pediatric convulsive status epilepticus.

Orchard Therapeutics Co-founder and Chief Executive Officer Dr. Bobby Gaspar Named to Inaugural 2024 TIME100 Health List

Retrieved on: 
금요일, 5월 3, 2024

The full list and related tributes will appear in the May 13, 2024 issue of TIME and is available online at https://time.com/collection/time100-health/ .

Key Points: 
  • The full list and related tributes will appear in the May 13, 2024 issue of TIME and is available online at https://time.com/collection/time100-health/ .
  • “I am incredibly humbled, privileged, and immensely proud to be included on this esteemed list of influential and accomplished people shaping the future of health care,” said Dr. Gaspar.
  • “Bobby is a visionary and authentic leader who inspires the very best in his colleagues and peers,” said Frank Thomas, president and chief operating officer of Orchard Therapeutics.
  • Congratulations, Bobby, and thank you for helping carry the mantel for the broader HSC gene therapy field.”

Wayne J. Franklin, M.D., F.A.C.C., named senior vice president of the Children’s National Heart Center

Retrieved on: 
수요일, 3월 13, 2024

Washington, D.C., March 13, 2024 (GLOBE NEWSWIRE) -- Children's National Hospital has appointed Wayne J. Franklin, M.D., F.A.C.C., as the new senior vice president (SVP) of the Children’s National Heart Center .

Key Points: 
  • Washington, D.C., March 13, 2024 (GLOBE NEWSWIRE) -- Children's National Hospital has appointed Wayne J. Franklin, M.D., F.A.C.C., as the new senior vice president (SVP) of the Children’s National Heart Center .
  • Dr. Franklin currently serves as co-director, medical director of Quality and endowed chair in the Center for Heart Care and associate director of the Adult Congenital Heart Disease Program at Phoenix Children’s.
  • “I look forward to leading the exceptional Heart Center team at Children’s National, as we contribute to advancing pediatric cardiac care and research,” said Dr. Franklin.
  • “Together with our Heart Center leadership team, he will ensure we’re meeting the highest standards of safety, quality and innovative care for our patients and families.”
    The Children’s National Heart Center is a multidisciplinary center that provides high-quality and innovative pediatric cardiac care.

Reducing newborn deaths across Africa enters phase 2 with $65M

Retrieved on: 
화요일, 1월 30, 2024

HOUSTON, Jan. 30, 2024 /PRNewswire/ -- The Newborn Essential Solutions and Technologies (NEST360) international alliance today launches Phase 2 of its groundbreaking mission to reduce newborn mortality in sub-Saharan Africa with $65 million in funding from the Bill & Melinda Gates Foundation, the Children's Investment Fund Foundation, The ELMA Foundation, and generous individual contributions.

Key Points: 
  • An African newborn has almost 10-times the risk of neonatal death compared to a baby born in Europe or the U.S.
  • "Improving quality for small and sick newborn care in NEST360-implementing countries and beyond requires a systems-change approach that cuts across all levels of care.
  • With a target fundraising goal of $90 million, this next phase will impact five key countries that together contribute to almost 50% of the newborn deaths on the continent.
  • A collaborative effort of organizations based in Africa, the U.S., and the U.K., the alliance takes a strategic data-driven approach to improving newborn care in sub-Saharan Africa.

Eleanor Crook Foundation and Helen Keller Intl Announce Partnership with Senegal's Ministry of Health to Combat Child Wasting

Retrieved on: 
화요일, 1월 30, 2024

WASHINGTON, Jan. 30, 2024 /PRNewswire/ -- The Senegalese Ministry of Health, the Eleanor Crook Foundation (ECF), and Helen Keller Intl have embarked on a new $4 million initiative to significantly reduce child malnutrition in Senegal.

Key Points: 
  • WASHINGTON, Jan. 30, 2024 /PRNewswire/ -- The Senegalese Ministry of Health, the Eleanor Crook Foundation (ECF), and Helen Keller Intl have embarked on a new $4 million initiative to significantly reduce child malnutrition in Senegal.
  • Wasting causes the deaths of millions of children worldwide, and those who survive face significant threats to their long-term health.
  • In recent years, Senegal has made great progress on child stunting, a condition caused by malnutrition that results in slow growth and developmental delays – but unfortunately, progress on child wasting has plateaued.
  • Helen Keller Intl greatly appreciates the Eleanor Crook Foundation's invaluable support and the leadership of the Government of Senegal to advance this lifesaving work."

Stoke Therapeutics to Present Data from the Company’s Dravet Syndrome Clinical Program at the American Epilepsy Society 2023 Annual Meeting

Retrieved on: 
화요일, 11월 21, 2023

Stoke Therapeutics, Inc. (Nasdaq: STOK), a biotechnology company dedicated to addressing the underlying cause of severe diseases by upregulating protein expression with RNA-based medicines, today announced that presentations related to the Company’s work in Dravet syndrome will be presented at the American Epilepsy Society (AES) 2023 Annual Meeting, taking place December 1 – 5, in Orlando, Florida.

Key Points: 
  • Stoke Therapeutics, Inc. (Nasdaq: STOK), a biotechnology company dedicated to addressing the underlying cause of severe diseases by upregulating protein expression with RNA-based medicines, today announced that presentations related to the Company’s work in Dravet syndrome will be presented at the American Epilepsy Society (AES) 2023 Annual Meeting, taking place December 1 – 5, in Orlando, Florida.
  • The company is advancing STK-001 as potentially the first medicine to address the genetic cause of Dravet syndrome.
  • “People living with Dravet syndrome typically experience high rates of seizures and debilitating effects on neurodevelopment, including behavioral and developmental delays, movement and balance issues, and delayed language and speech, among other life-altering challenges, which current treatments do not adequately address,” said Barry Ticho, M.D., Ph.D., Chief Medical Officer of Stoke Therapeutics.
  • “We look forward to sharing the findings from more than 3 years of clinical studies, including important new data from the longest and largest prospective natural history study of patients with Dravet syndrome, which showed that despite treatment with multiple anti-seizure medicines, most patients continued to experience convulsive seizures over 24 months and that gaps in neurodevelopment persist between children with Dravet syndrome and their neurotypical peers.

Phoenix Children's Expands Research Team with Scientist Pioneering New Childhood Cancer Treatments

Retrieved on: 
화요일, 10월 17, 2023

PHOENIX, Oct. 17, 2023 /PRNewswire/ -- Phoenix Children's, one of the nation's fastest-growing pediatric health systems, continues to strengthen its focus on pediatric research with the hire of Tanya Kalin, MD, PhD, a renowned scientist focused on pioneering effective treatments for pediatric cancers with fewer negative side effects for children. Dr. Kalin also serves as vice chair of translational research for the Phoenix Children's Center for Cancer and Blood Disorders, and as a professor of Child Health at the University of Arizona College of Medicine – Phoenix.

Key Points: 
  • Dr. Kalin also serves as vice chair of translational research for the Phoenix Children's Center for Cancer and Blood Disorders , and as a professor of Child Health at the University of Arizona College of Medicine – Phoenix.
  • Dr. Kalin, who assumed her new post in recent weeks, comes to Phoenix Children's from Cincinnati Children's, where she founded and directed her namesake Kalin Research Lab.
  • Two members of her lab also are moving to Phoenix Children's to continue their research with Dr. Kalin.
  • Research underway at Phoenix Children's consists of more than 700 active studies, 640 research investigators and 90 research staff members including research scientists, associates, biostatisticians, pharmacists, nurses, coordinators and assistants.

Rady Children's Hospital Appoints Adel Younoszai, MD, as Rady Children's Hospital Co-Director of the Heart Institute, and Division Chief of Cardiology, Department of Pediatrics, UC San Diego

Retrieved on: 
화요일, 10월 3, 2023

Dr. Younoszai will spearhead the evolution of the cardiology department by embracing the technological advancements to empower providers to deliver faster more effective care and improve outcomes.

Key Points: 
  • Dr. Younoszai will spearhead the evolution of the cardiology department by embracing the technological advancements to empower providers to deliver faster more effective care and improve outcomes.
  • "Dr. Younoszai's accomplishments in clinical care, research and in leadership roles are truly impressive."
  • "His accomplishments in clinical care, research and in leadership roles are truly impressive and we're so fortunate to have him join Rady Children's and UC San Diego."
  • "He will be a great Cardiology Chief for our institution, and he joins us at the right time.

Big Blue Swim School Highlights Ten Health Benefits of Swimming for Child Health Day

Retrieved on: 
월요일, 10월 2, 2023

October 2 is Child Health Day, and Big Blue Swim School looks to remind parents and caregivers of the importance of swimming and the numerous physical and mental health benefits it provides.

Key Points: 
  • October 2 is Child Health Day, and Big Blue Swim School looks to remind parents and caregivers of the importance of swimming and the numerous physical and mental health benefits it provides.
  • Swimming is a significant milestone in a child’s life and should be prioritized with other key developmental goals.
  • In honor of Child Health Day, Big Blue Swim School offers their top ten benefits of swimming for kids:
    Enhanced Safety – Drowning is the leading cause of injury-related death in kids ages 1 – 4 and the second leading cause of accidental death for children under 14.
  • Learning to swim is a life skill that helps kids stay safe in the water.