Rare Disease Advocates Learn to Accelerate Therapeutic Development at 9th RARE Drug Development Symposium
ALISO VIEJO, Calif., March 14, 2024 /PRNewswire-PRWeb/ -- The rare disease patient advocacy organization Global Genes and the Orphan Disease Center at the University of Pennsylvania will host the 9th Annual RARE Drug Development Symposium, an event that provides patient advocates with the knowledge, skills, and connections they need to advance therapeutic development for their communities.
- ALISO VIEJO, Calif., March 14, 2024 /PRNewswire-PRWeb/ -- The rare disease patient advocacy organization Global Genes and the Orphan Disease Center at the University of Pennsylvania will host the 9th Annual RARE Drug Development Symposium, an event that provides patient advocates with the knowledge, skills, and connections they need to advance therapeutic development for their communities.
- "Since Global Genes and the Orphan Disease Center launched the RARE Drug Development Symposium nine years ago, patient advocates have emerged as critical catalysts and drivers of therapeutic development," said Charlene Son Rigby, CEO of Global Genes.
- Sponsors for this year's RARE Drug Development Symposium include Alexion , Amgen , Amicus Therapeutics , BioCryst , BridgeBio , Ovid Therapeutics , and Sanofi Genzyme .
- "Rare disease patient communities are active participants in the drug development process," said Monique Molloy, Executive Director, Orphan Disease Center at the University of Pennsylvania.