Pulmonary Hypertension Association

New Study Released for World Pulmonary Hypertension Day Shows Huge Impact of Rare and Complex Lung Disease on Canadians

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月曜日, 5月 6, 2024
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These are the key findings of a new report on the impact of PAH released by the Pulmonary Hypertension Association of Canada (PHA Canada) to coincide with World Pulmonary Hypertension Day.

Key Points: 
  • These are the key findings of a new report on the impact of PAH released by the Pulmonary Hypertension Association of Canada (PHA Canada) to coincide with World Pulmonary Hypertension Day.
  • "Our new report shows that the disease profoundly impacts Canadians with PAH in their ability to work.
  • "A further indication of the toll of PAH is that almost all respondents in our new study said that PAH has significantly affected their emotional or mental well-being."
  • Hers is a good news story among Canadians with a disease that is rare, little known or understood, and which takes a large toll.

Global Pulmonary Hypertension Community 'United for' World PH Day 2024

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水曜日, 4月 24, 2024
Social media, Pulmonary hypertension, Policy, Person-centered therapy, Disease, Oxygen, Patient, PHA, Legislation, Fatigue, Access, Caregiver, Medicare, SOAR, Pulmonary Hypertension Association, Diagnosis, Chest pain, Organization

WASHINGTON, April 24, 2024 /PRNewswire-PRWeb/ -- The Pulmonary Hypertension Association will unite with over 80 organizations globally on Sunday, May 5, to recognize World Pulmonary Hypertension Day. World PH Day aims to raise awareness of pulmonary hypertension, a rare, complex, life-threatening disease that affects more than 75 million adults and children worldwide across all ethnic groups. There is currently no cure for PH, or high blood pressure in the lungs that causes symptoms such as shortness of breath, fatigue and chest pain.

Key Points: 
  • World pulmonary hypertension community to unite on May 5 to raise awareness, offer support and advocate for PH.
  • WASHINGTON, April 24, 2024 /PRNewswire-PRWeb/ -- The Pulmonary Hypertension Association will unite with over 80 organizations globally on Sunday, May 5, to recognize World Pulmonary Hypertension Day.
  • World PH Day aims to raise awareness of pulmonary hypertension, a rare, complex, life-threatening disease that affects more than 75 million adults and children worldwide across all ethnic groups.
  • PHA encourages the global PH community to raise awareness about key issues facing those with PH using resources from its World PH Day webpage .

PHA's Weekend in Houston Spreads Pulmonary Hypertension Awareness April 6-7

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木曜日, 2月 22, 2024
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WASHINGTON, Feb. 22, 2024 /PRNewswire-PRWeb/ -- The Pulmonary Hypertension Association visits Houston this spring for a weekend of pulmonary hypertension education, support and empowerment. The Houston weekend features two key events: The PHA Connects: PH Community Workshop on Saturday, April 6, and the 2024 Houston O2breathe Walk on Sunday, April 7.

Key Points: 
  • The Pulmonary Hypertension Association will be in Houston, April 6-7, hosting a weekend of events dedicated to raising pulmonary hypertension awareness and supporting the PH community in and around the Greater Houston area.
  • WASHINGTON, Feb. 22, 2024 /PRNewswire-PRWeb/ -- The Pulmonary Hypertension Association visits Houston this spring for a weekend of pulmonary hypertension education, support and empowerment.
  • The Houston weekend features two key events: The PHA Connects: PH Community Workshop on Saturday, April 6, and the 2024 Houston O2breathe Walk on Sunday, April 7.
  • The PHA Connects: PH Community Workshop will be on April 6, at the Westin Houston Medical Center.

Pulmonary Fibrosis Foundation and Pulmonary Hypertension Association Provide Guidance on Pulmonary Hypertension Related to Interstitial Lung Disease

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水曜日, 10月 25, 2023
Pulmonary hypertension, PHA, Pulmonary fibrosis, Health care, Pulmonary Hypertension Association, Lung transplantation, Cystic Fibrosis Foundation, Quality of life, Tissue, PF, Disease, Heart, Risk, PH, ILD, CMO, Patient, Diagnosis, PFF, Pharmaceutical industry, Medical imaging

CHICAGO, Oct. 25, 2023 /PRNewswire/ -- The Pulmonary Fibrosis Foundation (PFF) and Pulmonary Hypertension Association have developed a position statement that addresses gaps in the screening, diagnosis and treatment of patients living with pulmonary hypertension (PH) related to interstitial lung disease (PH-ILD).

Key Points: 
  • CHICAGO, Oct. 25, 2023 /PRNewswire/ -- The Pulmonary Fibrosis Foundation (PFF) and Pulmonary Hypertension Association have developed a position statement that addresses gaps in the screening, diagnosis and treatment of patients living with pulmonary hypertension (PH) related to interstitial lung disease (PH-ILD).
  • The PH-ILD position statement, featuring a version for patients and a version for healthcare providers, reflects input from experts in interstitial lung disease (ILD), PH, PH-ILD and patient representatives.
  • More than 250,000 Americans are living with pulmonary fibrosis (PF) and ILD.
  • PF, a form of ILD, can have many causes and they can all be associated with PH.

Learn How People with Pulmonary Hypertension 'Live PHearlessly' During PH Awareness Month

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木曜日, 10月 19, 2023
Ventricular septal defect, Social media, PHA, Education, Scleroderma, Pulmonary Hypertension Association, Death, Chest pain, Quality of life, Trustee, Disease, Risk, PH, Pulmonary hypertension, Sleep apnea, Chronic obstructive pulmonary disease, Diagnosis, COPD, Fatigue, Pharmaceutical industry

WASHINGTON, Oct. 19, 2023 /PRNewswire-PRWeb/ -- Every November, the Pulmonary Hypertension Association (PHA) launches a national campaign to raise awareness about pulmonary hypertension (PH). This progressive rare disease is defined by high blood pressure in the lungs and can cause right-heart failure and even death.

Key Points: 
  • The Pulmonary Hypertension Association's "Live PHearlessly" campaign strives to celebrate how the pulmonary hypertension community thrives despite a rare disease.
  • WASHINGTON, Oct. 19, 2023 /PRNewswire-PRWeb/ -- Every November, the Pulmonary Hypertension Association (PHA) launches a national campaign to raise awareness about pulmonary hypertension (PH).
  • For this year's PH Awareness Month, PHA is launching the "Live PHearlessly" campaign to celebrate the resilience of individuals with PH.
  • PHA's PH Awareness Month digital toolkit includes social media profile and cover images, infographics, downloadable fact sheets and flyers, and other elements to raise awareness throughout November.

Pulmonary Fibrosis Foundation Names Dr. Franck Rahaghi New President, CEO and Chief Medical Officer

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火曜日, 9月 5, 2023
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CHICAGO , Sept. 5, 2023 /PRNewswire/ -- The Pulmonary Fibrosis Foundation (PFF) today announced Franck Rahaghi, MD, MHS, FCCP, as its incoming President, Chief Executive Officer and Chief Medical Officer, effective September 15. Following an extensive search, Dr. Rahaghi was selected based on his long-time commitment to care, research, and education in interstitial lung disease (ILD) and pulmonary fibrosis (PF). He will serve in an expanded role as President, CEO and Chief Medical Officer for the PFF.

Key Points: 
  • CHICAGO , Sept. 5, 2023 /PRNewswire/ -- The Pulmonary Fibrosis Foundation (PFF) today announced Franck Rahaghi, MD, MHS, FCCP, as its incoming President, Chief Executive Officer and Chief Medical Officer, effective September 15.
  • He will serve in an expanded role as President, CEO and Chief Medical Officer for the PFF.
  • In 2003, he joined the medical center as Staff Attending in Pulmonary Critical Care and Director of the Pulmonary Hypertension Clinic.
  • Dr. Rahaghi succeeds Bill Schmidt, former President and CEO of the PFF, and Dr. Joseph Lasky, the Foundation's former Chief Medical Officer.

Pulmonary Hypertension Professional Network Symposium Slated for Sept. 28-30

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木曜日, 4月 27, 2023
Blood pressure, Pulmonary Hypertension Association, Big Gigantic, International, Patient, Survival, Quality of life, Chest pain, Research, RSVP, Pulmonary hypertension, PHA, PH, Diagnosis, Conference, Caregiver, Fatigue, Disease, Nursing, Pharmaceutical industry, Medical device

WASHINGTON, April 27, 2023 /PRNewswire-PRWeb/ -- The Pulmonary Hypertension Association's (PHA's) Pulmonary Hypertension Professional Network (PHPN) Symposium returns as a hybrid event in Arlington, Virginia Sept. 28-30, 2023. The PHPN Symposium is the go-to event for health care clinicians who specialize in pulmonary hypertension (PH) treatment and care. This three-day event provides attendees with the latest information on PH research and treatment, networking opportunities and the chance to earn continuing education credits.

Key Points: 
  • The 2023 PHPN Symposium brings together health care professionals in person and virtually to learn the latest in pulmonary hypertension treatment and care and earn continuing education credits.
  • WASHINGTON, April 27, 2023 /PRNewswire-PRWeb/ -- The Pulmonary Hypertension Association's (PHA's) Pulmonary Hypertension Professional Network (PHPN) Symposium returns as a hybrid event in Arlington, Virginia Sept. 28-30, 2023.
  • The PHPN Symposium is the go-to event for health care clinicians who specialize in pulmonary hypertension (PH) treatment and care.
  • The theme for the 2023 PHPN Symposium is "PHoundation for a Brighter Future."

World PH Day Amplifies Global Voices United To Cure Pulmonary Hypertension

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水曜日, 4月 19, 2023
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WASHINGTON, April 19, 2023 /PRNewswire-PRWeb/ -- The Pulmonary Hypertension Association (PHA) joins more than 80 organizations around the world on Friday, May 5, to recognize World PH Day. World PH Day spotlights the global impact of pulmonary hypertension (PH), a rare, complex, life-threatening disease. PH has no cure and affects more than 75 million adults and children of all ethnicities globally. PH, or high blood pressure in the lungs, causes symptoms that include shortness of breath, fatigue and chest pain.

Key Points: 
  • Members of the world pulmonary hypertension community will come together May 5 to raise awareness, support one another and advocate for PH.
  • WASHINGTON, April 19, 2023 /PRNewswire-PRWeb/ -- The Pulmonary Hypertension Association (PHA) joins more than 80 organizations around the world on Friday, May 5, to recognize World PH Day.
  • World PH Day spotlights the global impact of pulmonary hypertension (PH), a rare, complex, life-threatening disease.
  • This year, PHA's World PH Day theme is "United to Cure PH," which aims to recognize the global strides made in improving the lives of those affected by PH and highlights the shared goal of finding a cure for the disease.

November is PH Awareness Month. Learn About Pulmonary Hypertension Day by Day with Interactive Calendar

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火曜日, 10月 11, 2022
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WASHINGTON, October 11, 2022 /PRNewswire-PRWeb/ -- Each November, the Pulmonary Hypertension Association (PHA) launches a national campaign to raise awareness about pulmonary hypertension (PH). This progressive rare disease is defined by high blood pressure in the lungs and can cause right-heart failure and even death.

Key Points: 
  • The Pulmonary Hypertension Association's "PHacing the Future Day by Day" campaign strives to educate people about pulmonary hypertension through an interactive online calendar.
  • WASHINGTON, October 11, 2022 /PRNewswire-PRWeb/ -- Each November, the Pulmonary Hypertension Association (PHA) launches a national campaign to raise awareness about pulmonary hypertension (PH).
  • Throughout November, PHA will educate people about risk factors and symptoms of PH through its award-winning interactive, online PH Awareness Month calendar.
  • The calendar reveals a new fact or tool daily, along with downloadable resources to raise PH awareness.

PHA Recognizes Outstanding Members of the Pulmonary Hypertension Community

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水曜日, 6月 22, 2022
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ATLANTA, June 22, 2022 /PRNewswire-PRWeb/ -- The Pulmonary Hypertension Association (PHA) honored seven remarkable individuals on June 11 at an awards ceremony held during the PHA 2022 International PH Conference and Scientific Sessions in Atlanta.

Key Points: 
  • Seven pulmonary hypertension community members were honored at an awards ceremony at the PHA 2022 International PH Conference and Scientific Sessions in Atlanta.
  • ATLANTA, June 22, 2022 /PRNewswire-PRWeb/ -- The Pulmonary Hypertension Association (PHA) honored seven remarkable individuals on June 11 at an awards ceremony held during the PHA 2022 International PH Conference and Scientific Sessions in Atlanta.
  • PHA's Outstanding Member Awards recognize those who have exemplified dedication and service to the pulmonary hypertension community and PHA through volunteer efforts in patient and caregiver support; advocacy; promotion of quality patient care; and dedication to advancing pulmonary hypertension (PH) research.
  • Headquartered in Silver Spring, Maryland, the Pulmonary Hypertension Association (PHA) is the oldest and largest nonprofit patient association dedicated to the pulmonary hypertension (PH) community.