Foundation Fighting Blindness

Foundation Fighting Blindness Urges Congress to Pass 'Eye-Bonds' Legislation

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星期四, 七月 19, 2018

The Foundation Fighting Blindness has been an unparalleled leader in supporting research on inherited retinal diseases for over 46 years.

Key Points: 
  • The Foundation Fighting Blindness has been an unparalleled leader in supporting research on inherited retinal diseases for over 46 years.
  • The Foundation Fighting Blindness was established in 1971.
  • It has since raised more than $725 million for research aimed at preventing, treating and curing blindness caused by retinal degenerative diseases.
  • The Foundation has launched a global patient registry, www.MyRetinaTracker.org , to build knowledge of retinal diseases and advance clinical research.

Call for Applications: Gund-Harrington Grant Award to Fight Blindness

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星期三, 七月 18, 2018

CLEVELAND, July 18, 2018 /PRNewswire/ -- The Harrington Discovery Institute at University Hospitals in Cleveland, Ohiopart of The Harrington Project for Discovery & Developmentand Foundation Fighting Blindness (FFB) have announced a call for applications for the 2019 Gund-Harrington Grant Award.

Key Points: 
  • CLEVELAND, July 18, 2018 /PRNewswire/ -- The Harrington Discovery Institute at University Hospitals in Cleveland, Ohiopart of The Harrington Project for Discovery & Developmentand Foundation Fighting Blindness (FFB) have announced a call for applications for the 2019 Gund-Harrington Grant Award.
  • This annual competition supports the translation of promising research in retinal degenerative diseases into new therapies to improve or restore vision.
  • Award recipients will receive:
    The competition is open to scientists at accredited academic medical centers, research institutions and universities in the U.S. and Canada.
  • Individual applicants must have a PhD or MD degree (or equivalent) and demonstrate exceptional promise.

The Foundation Fighting Blindness Appoints Russell Kelley as Vice President, Investments and Alliances

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星期一, 七月 16, 2018

COLUMBIA, Md., July 16, 2018 /PRNewswire/ --The Foundation Fighting Blindness (FFB) has appointed Russell Kelley, PhD, MBA, as vice president, investments & alliances.

Key Points: 
  • COLUMBIA, Md., July 16, 2018 /PRNewswire/ --The Foundation Fighting Blindness (FFB) has appointed Russell Kelley, PhD, MBA, as vice president, investments & alliances.
  • Dr. Kelley will be responsible for identifying, coordinating, and managing all external investment opportunities that strategically align with FFB's mission.
  • The Foundation Fighting Blindness is the world's leading private source of research funding for preventions, treatments, and cures for retinal degenerative diseases.
  • "I am delighted to join the Foundation Fighting Blindness at this exciting juncture in retinal disease therapy development," said Dr. Kelley.

Foundation Fighting Blindness VISIONS 2018 is the Leading Global Conference Showcasing Advances in Retinal Research

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星期一, 六月 18, 2018

COLUMBIA, Md., June 18, 2018 /PRNewswire/ --The Foundation Fighting Blindness VISIONS 2018 conference, June 21 23, 2018 at the Sheraton San Diego Hotel and Marina, will bring together the world's leading vision scientists, assistive technologies experts, and the visually impaired community.

Key Points: 
  • COLUMBIA, Md., June 18, 2018 /PRNewswire/ --The Foundation Fighting Blindness VISIONS 2018 conference, June 21 23, 2018 at the Sheraton San Diego Hotel and Marina, will bring together the world's leading vision scientists, assistive technologies experts, and the visually impaired community.
  • The conference will host more than 30 distinguished panelists and speakers.
  • "In addition to being the world leader in retinal research funding, the Foundation provides information, assistance and a sense of community to the 10 million Americans and millions more worldwide dealing with blinding retinal diseases," said Ben Yerxa, PhD, CEO of the Foundation Fighting Blindness.
  • Several of the VISIONS program sessions will be live streamed on the Foundation's Facebook Page, and Eye on the Cure Blog .

Foundation Fighting Blindness Clinical Research Institute Hosted Workshop for ProgStar, the Largest Natural History Study for Stargardt Disease Ever Launched

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星期五, 六月 15, 2018

COLUMBIA, Md., June 15, 2018 /PRNewswire/ --More than 60 leading retinal disease clinical researchers from around the world gathered in Baltimore on June 11, 2018 to discuss findings from ProgStar, the Stargardt disease natural history study launched by the Foundation Fighting Blindness Clinical Research Institute (FFB-CRI) in 2013.

Key Points: 
  • COLUMBIA, Md., June 15, 2018 /PRNewswire/ --More than 60 leading retinal disease clinical researchers from around the world gathered in Baltimore on June 11, 2018 to discuss findings from ProgStar, the Stargardt disease natural history study launched by the Foundation Fighting Blindness Clinical Research Institute (FFB-CRI) in 2013.
  • The prospective arm of the study followed 259 Stargardt disease patients for two years.
  • "If clinical trial endpoints for Stargardt disease are known, drug development will be more efficient."
  • FFB-CRI was established in 2004 to advance translational research and clinical development of emerging therapies for inherited retinal diseases.

Foundation Fighting Blindness and CheckedUp® Partner to Educate Retinal-Disease Patients About Research, Resources, and Emerging Therapies During Doctor Visits

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星期一, 六月 11, 2018

"The Foundation Fighting Blindness is an invaluable resource for people and families with retinal diseases.

Key Points: 
  • "The Foundation Fighting Blindness is an invaluable resource for people and families with retinal diseases.
  • Finding the patient's gene provides a definitive diagnosis and better understanding which studies and emerging therapies may be best for them.
  • FFB-CRI was established in 2004 to advance translational research and clinical development of emerging therapies for inherited retinal diseases.
  • CheckedUp is a point of care company that actively engages patients before, during and after visiting the medical practice.

Foundation Fighting Blindness and Vitrisa Therapeutics Collaborate in Developing Innovative Clinical Trial Designs for Stargardt Disease Treatments

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星期五, 四月 27, 2018

and LARKSPUR, Calif., April 27, 2018 /PRNewswire/ --Under a newly formed collaboration, the Foundation Fighting Blindness Clinical Research Institute (FFB-CRI) will provide functional and structural data from its ProgStar natural history study for people with Stargardt disease to Vitrisa Therapeutics.

Key Points: 
  • and LARKSPUR, Calif., April 27, 2018 /PRNewswire/ --Under a newly formed collaboration, the Foundation Fighting Blindness Clinical Research Institute (FFB-CRI) will provide functional and structural data from its ProgStar natural history study for people with Stargardt disease to Vitrisa Therapeutics.
  • The collaboration will enable Vitrisa to use the anonymized data to evaluate and simulate innovative clinical trial designs for the treatment of Stargardt disease caused by mutations in the ABCA4 gene.
  • Using ProgStar data, FFB-CRI and Vitrisa plan to develop and rigorously test innovative new study strategies using "virtual clinical trials."
  • "FFB-CRI is excited to help Vitrisa in the innovative design of human studies for promising Stargardt disease treatments," said Benjamin Yerxa, PhD, FFB's chief executive officer.

Groundbreaking Research for Inherited Retinal Diseases Funded by Foundation Fighting Blindness to be Showcased at ARVO

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星期一, 四月 23, 2018

Attracting 11,000 attendees in 2018, the ARVO Annual Meeting is one of the world's largest global gatherings of ophthalmology researchers and industry experts.

Key Points: 
  • Attracting 11,000 attendees in 2018, the ARVO Annual Meeting is one of the world's largest global gatherings of ophthalmology researchers and industry experts.
  • "We are delighted to report on the tremendous progress being made by FFB-funded scientists and clinical researchers to eradicate blinding retinal diseases," said Stephen Rose, PhD, FFB's chief scientific officer.
  • Sam Jacobson, MD, PhD, and Artur Cideciyan, PhD, FFB-funded researchers at the Scheie Eye Institute, University of Pennsylvania, are world leaders in clinical research for inherited retinal diseases.
  • The mission of the Foundation Fighting Blindness is to drive the research that will bring an end to the entire spectrum of retinal degenerative diseases including: retinitis pigmentosa, age-related macular degeneration, Stargardt disease, and Usher syndrome.