'All United for MG' organises first-ever European Myasthenia Gravis Day on June 2nd leads to pan-European call for action supported by European leaders
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Thursday, June 1, 2023
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BRUSSELS, June 1, 2023 /PRNewswire/ -- The #AllUnitedforMG coalition, with the institutional support of argenx, brings together European patient associations and representatives from Belgium, France, Germany, Greece, Italy, Romania, Poland and Spain and aims to create awareness and gain recognition of this life-threatening disease, strengthen patients' rights for a better quality of life and obtain better patient care. The disease affects between 56.000 and 100.000 people in Europe 4.
Key Points:
- "Raising awareness about myasthenia gravis is not just about spreading knowledge, it's about empowering those who are living with it.
- Our aim is to enhance patients' quality of life and reduce their mental burden," conclude the founders of the European Myasthenia Gravis Day.
- "The first European Awareness Day for Myasthenia Gravis marks an important milestone towards increasing awareness and understanding of this rare disease.
- Therefore we are very happy that there is finally a European Myasthenia Gravis Day to put a spotlight on this disease."