European Platform for Patients' Organisations, Science and Industry

Codify Self-Care for Advancement of Universal Health Coverage, Says United for Self-Care Coalition at WHA76

Retrieved on: 
Thursday, May 25, 2023
FIP, Primary health care, PHC, International, Coalition, World Health Assembly, Health equity, Quality of life, International Pharmaceutical Federation, Organization, European Platform for Patients' Organisations, Science and Industry, CH, Patient, UHC, Imperial College London, GENEVE, Health, WHO, Notifiable disease, Biofeedback Certification International Alliance, World Health Organization, Nursing, Pharmaceutical industry, United

Embedding self-care practices into the healthcare continuum has the potential to improve health and quality of life whilst promoting health system sustainability.

Key Points: 
  • Embedding self-care practices into the healthcare continuum has the potential to improve health and quality of life whilst promoting health system sustainability.
  • Speakers highlighted the potential benefits of self-care, including improved health outcomes, increased access to healthcare services, stronger health systems and reduced healthcare costs.
  • "The United for Self-Care Coalition is proud to have hosted this important side event at the World Health Assembly," said Judy Stenmark, Director General of the Global Self-Care Federation.
  • For more information about the United for Self-Care Coalition and details on how to join, please visit https://www.unitedforselfcare.org

IBSA’s Initiatives Focused on the Patients’ Experience and a Greater Knowledge of Thyroid Dysfunctions

Retrieved on: 
Thursday, May 25, 2023
Biotechnology, Health, Pharmaceutical, Clinical Trials, Managed Care, Online, Quality, Pain, Incidence, Dermatology, Patient, Risk, Learning, Thyroid, Quality of life, Disease, Thyroid hormones, Impact, Human, Philosophy, TFI, CEST, Knowledge, Diagnosis, Reproductive medicine, Data wrangling, Weight gain, ETA, CHF, IBSA, Woman, European Platform for Patients' Organisations, Science and Industry, Inflammation, Trust, Thyroid disease, Treatment, Nursing, Pharmaceutical industry, Hypothyroidism, Endocrinology

Thyroid dysfunctions are quite common: it is estimated that over 1.5 billion people worldwide are at risk of thyroid disorders, and that hypothyroidism alone affects 5% of the world’s population1, with a greater incidence among women.

Key Points: 
  • Thyroid dysfunctions are quite common: it is estimated that over 1.5 billion people worldwide are at risk of thyroid disorders, and that hypothyroidism alone affects 5% of the world’s population1, with a greater incidence among women.
  • Because symptoms are often non-specific, many people living with a thyroid disorder are currently undiagnosed and they can spend many years struggling with a poor quality of life before getting a diagnosis.
  • To raise awareness of these conditions and support patients in their daily management, IBSA launches “Feel Thyroid”, the international campaign aimed at raise awareness on hypothyroidism in particular.
  • The company has a consolidated turnover of 800 million CHF, and employs over 2,000 people between headquarters, subsidiaries and production sites.

Diversity, Equity and Inclusion in Rare Disease Clinical Trials: Beyond Buzzwords, Upcoming Webinar Hosted by Xtalks

Retrieved on: 
Tuesday, August 23, 2022
Food, European Platform for Patients' Organisations, Science and Industry, Associate, Disease, DE, Duke, MD, Equity, Center, Neurology, ICON, MPH, Medical device, Pharmaceutical industry, Doctor of Philosophy, Industry

TORONTO, Aug. 23, 2022 /PRNewswire-PRWeb/ -- The rarity of each individual rare disease introduces many unique challenges and complexity in clinical research including barriers to achieving representative trial populations and equitable access to trials. Focused effort and dedicated action are essential to create an equitable clinical research environment.

Key Points: 
  • In this free webinar, learn about the barriers and effective strategies to mirroring the patient community make-up in rare disease clinical trials.
  • Attendees will learn about the challenges that rare disease Patient Organisations are tackling to improve diversity, equity and inclusion (DE&I) in their own communities.
  • The featured speakers will discuss the consequences of getting it 'wrong' in the clinical stage and beyond.
  • For more information, or to register for this event, visit Diversity, Equity and Inclusion in Rare Disease Clinical Trials: Beyond Buzzwords.