Live Rare Remix Box

NORD's Living Rare Forum and Rare Impact Awards Highlight Powerful Patient Stories and Community Rock Stars

Retrieved on: 
Thursday, June 30, 2022

CLEVELAND, June 30, 2022 /PRNewswire/ -- This week, the National Organization for Rare Disorders (NORD®) hosted the Living Rare, Living Stronger NORD Patient and Family Forum, NORD's annual family focused conference. 300 enthusiastic attendees from across the globe (and 110 more virtually) convened to share inspiring stories and to forge community connections through networking opportunities.

Key Points: 
  • "I have a rare disease, but I am not my rare disease.
  • Knowing I am able to make an impact on someone else's life in the rare disease community, it keeps me moving forward."
  • The Living Rare Forum continued into the evening with the Rare Impact Awards, a celebration of the outstanding individuals, organizations, and industry innovators and their exceptional work benefiting the rare disease community.
  • There was also a special tribute to NORD's 2020 and 2021 Rare Impact Award honorees, who had been previously celebrated virtually.