Tuberous Sclerosis Alliance and Seizure Tracker™ Partner to Promote Data Sharing and Biosample Collection
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Friday, June 19, 2020
SILVER SPRING, Md., June 19, 2020 /PRNewswire/ --Today the Tuberous Sclerosis Alliance (TS Alliance) and Seizure Tracker announced a partnership to promote data sharing and biosample collection from people with tuberous sclerosis complex (TSC), a rare genetic condition that causes tumors to form in vital organs.
Key Points:
- SILVER SPRING, Md., June 19, 2020 /PRNewswire/ --Today the Tuberous Sclerosis Alliance (TS Alliance) and Seizure Tracker announced a partnership to promote data sharing and biosample collection from people with tuberous sclerosis complex (TSC), a rare genetic condition that causes tumors to form in vital organs.
- The Data Share system is designed to enable website and mobile diary users to link their personally reported data to partner organizations' managed databases.
- "Combining the TS Alliance's Natural History Database and seizure outcome data from Seizure Tracker has the potential to change the way we think about and treat seizures in people living with tuberous sclerosis complex," says Robert Moss, Co-Founder and President of Seizure Tracker.
- Reports generated on the Seizure Tracker system provide extensive data visualizations comparing therapies against seizure activity changes while highlighting trends.