NPRC

ACT NOW TO PROTECT THE NATIONAL PARALYSIS RESOURCE CENTER

Retrieved on: 
Monday, November 13, 2023

SHORT HILLS, N.J., Nov. 13, 2023 /PRNewswire/ -- Despite the tremendous success and proven results of the Christopher & Dana Reeve Foundation's National Paralysis Resource Center (NPRC), as part of this year's budget negotiation process, the House majority has proposed a bill that will dramatically cut funding for the NPRC by $5 million, nearly 50%, for Fiscal Year 2024. The proposed legislation, which may be considered by the House as early as this week, also includes cuts to biomedical research and other essential health programs that support people with disabilities.

Key Points: 
  • The proposed cuts would severely impact the ability of the NPRC to provide essential services, information, and support to those living with paralysis, their families, and caregivers.
  • Congress must not ignore the needs of the paralysis community, and we will not stand idly by as life-changing programs like the NPRC are dismantled.
  • The NPRC is a free, comprehensive, national source of informational support for people living with paralysis and their caregivers.
  • Since its founding in 2002, the NPRC has helped hundreds of thousands of people access information, receive direct mentoring and personalized support.

New Survey from the Christopher & Dana Reeve Foundation Reveals Americans' Perspectives Related to Individuals Living with Paralysis and Their Caregivers

Retrieved on: 
Friday, November 11, 2022

SHORT HILLS, N.J., Nov. 11, 2022 /PRNewswire/ -- The Christopher & Dana Reeve Foundation today released findings from its new survey, "Living with Paralysis & Caregiver National Survey." The survey of more than 1,000 Americans found that a majority (69%) underestimate the prevalence of those living with paralysis in the U.S. – about two out of every 100 individuals. However, one in three Americans say that they know someone who is paralyzed*, and most (79%) also believe that a family member providing long-term care for someone living with paralysis should receive compensation from the government.

Key Points: 
  • Majority of Americans underestimate the prevalence of individuals living with paralysis; most also believe family caregivers should receive compensation
    SHORT HILLS, N.J., Nov. 11, 2022 /PRNewswire/ -- The Christopher & Dana Reeve Foundation today released findings from its new survey, " Living with Paralysis & Caregiver National Survey ."
  • The survey of more than 1,000 Americans found that a majority (69%) underestimate the prevalence of those living with paralysis in the U.S. about two out of every 100 individuals.
  • The survey was commissioned by the Reeve Foundation's National Paralysis Resource Center (NPRC), which provides free, comprehensive, national sources of informational support for people living with paralysis and their caregivers.
  • The Christopher & Dana Reeve Foundation is dedicated to curing spinal cord injury by funding innovative research and improving the quality of life for individuals and families impacted by paralysis.

Peloton and the Christopher & Dana Reeve Foundation Partner for Accessible, Inclusive Fitness Content

Retrieved on: 
Monday, November 7, 2022

NEW YORK, Nov. 7, 2022 /PRNewswire/ -- Peloton (NASDAQ: PTON) and the Christopher & Dana Reeve Foundation announced today the launch of a special adaptive fitness collaboration designed to bring immersive and challenging workouts into people's lives in an accessible, efficient, community-driven way. 

Key Points: 
  • , Director of Adaptive Sports and Fitness at the University of Michigan, national disability advocate and practicing physician living with an SCI.
  • In 2020, he established the Rex Marco, M.D., Fund of the Reeve Foundation and serves as the Foundation's Chief Medical Ambassador.
  • "The partnership with the Christopher & Dana Reeve Foundation, and the Seated Adaptive Strength program we created together, exemplifies exactly why I came to Peloton.
  • The Reeve Foundation is committed to elevating our community's voices and needs to achieve greater representation and independence.

COVID-19 Vaccine Boosters Perspectives Survey Demonstrates the Importance of Vaccination and Booster Rates Among the U.S. Paralysis Community

Retrieved on: 
Friday, September 30, 2022

NASHVILLE, Tenn, and SHORT HILLS, N.J., Sept. 30, 2022 /PRNewswire/ -- Newly published research from Vanderbilt University's Peabody College and the Christopher & Dana Reeve Foundation highlights the perspectives of the paralysis community on COVID-19 vaccine boosters. Among the key findings is evidence that individuals living with paralysis have specific safety concerns that should be addressed through important doctor-patient communication – especially as the nation considers recommending yearly booster shots.

Key Points: 
  • Between December 2021 - January 2022, the Reeve Foundation distributed a survey to the paralysis community via email.
  • The survey, which included 44 questions, was aimed at learning about how informed the paralysis community is about the boosters, hesitancies about the boosters, and vaccination and booster rates.
  • PWD were significantly more likely than members of the FS group to have spoken to a provider about the boosters.
  • PWP expressed unique concerns related to paralysis or other neurological symptoms, and believed that the booster would affect their paralysis.

The Christopher & Dana Reeve Foundation presents New Underserved Populations Factsheet during Spinal Cord Injury Awareness Month

Retrieved on: 
Monday, September 19, 2022

SHORT HILLS, N.J., Sept. 19, 2022 /PRNewswire/ -- The National Paralysis Resource Center (NPRC) recently published a new series of resource sheets for underserved communities living with disabilities.

Key Points: 
  • SHORT HILLS, N.J., Sept. 19, 2022 /PRNewswire/ -- The National Paralysis Resource Center (NPRC) recently published a new series of resource sheets for underserved communities living with disabilities.
  • The U.S. Department of Health and Human Services Advisory Committee on Minority Health has said that minorities living with disabilities face a "double burden."
  • Each topic sheet provides links to federal and local initiatives alongside information about non-profit organizations and advocacy efforts that support specific minority groups.
  • Here is a sampling of some of the resources found in these factsheets:

The Christopher & Dana Reeve Foundation Announces New Spanish Paralysis Resource Guide during Spinal Cord Injury Awareness Month

Retrieved on: 
Friday, September 2, 2022

SHORT HILLS, N.J., Sept. 1, 2022 /PRNewswire/ -- The Christopher & Dana Reeve Foundation's National Paralysis Resource Center (NPRC) is pleased to release its 5th edition of the Spanish Paralysis Resource Guide (Guía de recursos sobre la parálisis).

Key Points: 
  • For Spinal Cord Injury Awareness month, the newly updated edition of the Spanish Paralysis Resource Guide (Gua de recursos sobre la parlisis) has been released to the community with a new section highlighting paralysis within the Latino community.
  • The new edition includes updated information about all paralysis-related topics, including causes of paralysis, secondary conditions, research, technology, and more.
  • The Spanish PRG includes external links to the trust-worthy Spanish content and culturally sensitive images, photos, and translated graphics.
  • The Christopher & Dana Reeve Foundation is dedicated to curing spinal cord injury by funding innovative research and improving the quality of life for individuals and families impacted by paralysis.

The Christopher & Dana Reeve Foundation Quality of Life Program Announces Two New Grant Programs: Racial Equity & Rural Unserved and Underserved Populations

Retrieved on: 
Wednesday, August 31, 2022

SHORT HILLS, N.J., Aug. 31, 2022 /PRNewswire/ -- The Christopher & Dana Reeve Foundation National Paralysis Resource Center announces grant funding opportunities through its 2022 2nd Cycle Direct Effect and Priority Impact Quality of Life grants initiatives spotlighting two new grant programs, Racial Equity and Rural Unserved & Underserved Populations. Both Quality of Life grants initiatives award financial support to nonprofit organizations that mirror the Reeve Foundation's mission and are federally funded through a cooperative agreement with the United States Department of Health and Human Services, Administration for Community Living (ACL) (Cooperative Agreement Number 90PRRC0002-03-00).

Key Points: 
  • Grant Cycle Opens September 1, 2022
    SHORT HILLS, N.J., Aug. 31, 2022 /PRNewswire/ -- The Christopher & Dana Reeve Foundation National Paralysis Resource Center announces grant funding opportunities through its 2022 2nd Cycle Direct Effect and Priority Impact Quality of Life grants initiatives spotlighting two new grant programs, Racial Equity and Rural Unserved & Underserved Populations.
  • Our Racial Equity program aims to fund projects that explicitly enhances the quality of life of those individuals living at the crossroads of racial inequity and paralysis," said Mark Bogosian, Director of Quality of Life Grants Program.
  • Quality of Life grant applications are available and are to be completed online through the Reeve Foundation online grants portal .
  • The Christopher & Dana Reeve Foundation is dedicated to curing spinal cord injury by funding innovative research and improving the quality of life for individuals and families impacted by paralysis.

The Christopher & Dana Reeve Foundation Announces 3rd Annual Reeve Summit 2022: Where Care, Cure and Community Connect

Retrieved on: 
Tuesday, August 23, 2022

SHORT HILLS, N.J., Aug. 23, 2022 /PRNewswire/ -- The Christopher & Dana Reeve Foundation will host the 3rd annual Reeve Summit 2022: Where Care, Cure and Community Connect on October 13 and 14, 2022 in Washington, DC. The two-day in-person conference will bring health professionals, advocates, community members, and caregivers to discuss research and support for those affected by paralysis. The highly-regarded program centers on the theme of Building Healthy Communities by creating access, inclusion, and innovation.

Key Points: 
  • SHORT HILLS, N.J., Aug. 23, 2022 /PRNewswire/ -- The Christopher & Dana Reeve Foundation will host the 3rd annual Reeve Summit 2022: Where Care, Cure and Community Connect on October 13 and 14, 2022 in Washington, DC.
  • The two-day in-person conference will bring health professionals, advocates, community members, and caregivers to discuss research and support for those affected by paralysis.
  • "We are proud the Reeve Summit is the premier platform for families, advocates, and renowned experts to connect and engage," says Regina Blye, Reeve Foundation Chief Program and Policy Officer.
  • The Christopher & Dana Reeve Foundation is dedicated to curing spinal cord injury by funding innovative research and improving the quality of life for individuals and families impacted by paralysis.

The Christopher & Dana Reeve Foundation presents its third annual Reeve Summit 2022; Keynote Speaker, Leon Ford, Reflects on Trauma, Hope, and Inspiration

Retrieved on: 
Thursday, August 18, 2022

"Those officers took something from me," Ford says in a gut-wrenching scene in Jackson Tisi's short documentary Leon.

Key Points: 
  • "Those officers took something from me," Ford says in a gut-wrenching scene in Jackson Tisi's short documentary Leon.
  • His keynote address at the 2022 Reeve Summit will be about "acknowledging pain, working through traumas, and moving forward," he said in an interview.
  • Register for the Reeve Summit: Where Care, Cure and Community Connect, in-person October 13-14 in Washington, DC.
  • The Reeve Foundation is committed to elevating our community's voices and needs to achieve greater representation and independence.

The Christopher & Dana Reeve Foundation Launches International Information Resource Pages

Retrieved on: 
Tuesday, May 10, 2022

SHORT HILLS, N.J., May 10, 2022 /PRNewswire/ - The Christopher & Dana Reeve Foundation presents the launch of two new international information resource website pages, offered through the National Paralysis Resource Center (NPRC).

Key Points: 
  • SHORT HILLS, N.J., May 10, 2022 /PRNewswire/ - The Christopher & Dana Reeve Foundation presents the launch of two new international information resource website pages, offered through the National Paralysis Resource Center (NPRC).
  • The new international pages provide free, accurate, and culturally sensitive resources for people living with mobility impairments or paralysis.
  • The Christopher & Dana Reeve Foundation is dedicated to curing spinal cord injury by funding innovative research and improving the quality of life for individuals and families impacted by paralysis.
  • The Reeve Foundation is committed to elevating our community's voices and needs to achieve greater representation and independence.