Noma is a truly devastating tropical disease – more people need to know about it
In December 2023, after years of advocacy, noma was finally included on the World Health Organization’s list of “neglected tropical diseases”.
- In December 2023, after years of advocacy, noma was finally included on the World Health Organization’s list of “neglected tropical diseases”.
- Mone is a noma survivor from Laos, and her experience of noma is typical of so many who have suffered from this disease.
- Quickly, her cheek skin fell away and teeth and bones started coming out of the sore in her cheek.
- The healthcare workers, her family and the villagers did not know why Mone suffered and suspected that ghosts were punishing her.
- However, if they are given widely available antibiotics in these early stages, the infection can be halted, and the patient saved.
Much remains a mystery
Noma is an ancient disease, with the earliest description being found in a medical textbook from the first century. It was often seen in Europe up until the 1800s, but has all but disappeared due to better access to food, water and healthcare. Now noma only affects the very poorest communities in the world.
- We know it is bacterial in nature, but we haven’t been able to identify the causative organisms.
- We know it’s not infectious, but do not understand why some children get it while other children living in the same conditions do not.
- And will provide a much-needed impetus for governments and health agencies to work together to help patients and survivors.
Stuart Ainsworth is currently lead researcher on a noma project funded by Médecins Sans Frontières, and is affiliated with The International Noma Network.