Lived experience

Elevating the Human Experience in Healthcare through the Lived Experience of Patients & Families

Retrieved on: 
Friday, May 26, 2023

NASHVILLE, May 26, 2023 /PRNewswire-PRWeb/ -- The Beryl Institute releases "Listening Organizations: Elevating the Human Experience in Healthcare through the Lived Experience of Patients & Families," identifying ways organizations are acting on the feedback of patient and family advisors (PFAs) and improving care experience. The paper includes the global contributions of pioneers, leaders and volunteer advisors in the field of patient and family engagement, acknowledging the current gaps in advisor utilization and recommending ways to elevate their voice in strategic healthcare improvement. The paper highlights success stories of listening organizations and takeaways for becoming one.

Key Points: 
  • NASHVILLE, May 26, 2023 /PRNewswire-PRWeb/ -- The Beryl Institute releases "Listening Organizations: Elevating the Human Experience in Healthcare through the Lived Experience of Patients & Families," identifying ways organizations are acting on the feedback of patient and family advisors (PFAs) and improving care experience.
  • PFAs are considered important, but their lived experience is not always fully appreciated by healthcare organizations.
  • Listening organizations embed diverse patient and family advisors into committees, education and research, and in strategic planning.
  • "Over the last two years, more healthcare organizations are engaging the voices of patient and family advisors," said Jason Wolf, President & CEO of The Beryl Institute.

Tranquility Online's Internet-Based Cognitive Behavioural Therapy Platform Validated in Journal of Medical Internet Research Publication

Retrieved on: 
Wednesday, February 9, 2022

The research, published in the Journal of Medical Internet Research (JMIR) Formative Research, demonstrated Tranquility's strong fidelity to traditional CBT.

Key Points: 
  • The research, published in the Journal of Medical Internet Research (JMIR) Formative Research, demonstrated Tranquility's strong fidelity to traditional CBT.
  • CBT experts provided high ratings for Tranquility's treatment adherence to CBT, and the co-design adaption process resulted in several improvements to Tranquility.
  • "At Tranquility, co-design has always been at the heart of what we do," said Dr. Pencer.
  • "Health professionals must be part of the application's design and development process, and health outcomes must be regularly tracked and evaluated to determine effectiveness."

MoMMA's Voices Awarded New Funding to Further Amplify BIPOC and Other Historically Marginalized Patient Voices in Maternal Health

Retrieved on: 
Thursday, January 27, 2022

With this new grant, MoMMA's Voices is preparing to engage hundreds of new patient and family partners (PFPs) across the U.S. in 2022.

Key Points: 
  • With this new grant, MoMMA's Voices is preparing to engage hundreds of new patient and family partners (PFPs) across the U.S. in 2022.
  • This program teaches both advocates and providers how to use the Lived Experience Integration framework to engage as partners wherever maternal health improvements are needed.
  • "MoMMA's Voices breaks down silos between maternal health organizations to amplify lived patient experiences that represent the voices of the women and their families affected by maternal health conditions," said Eleni Tsigas, chief executive officer of the Preeclampsia Foundation.
  • "The continued funding of our patient-centric work ensures patients continue to have a role in addressing the U.S. maternal health crisis."

MoMMA's Voices and AIM Launch the First-Ever Lived Experience Integration™ Into QI Community of Learning in 23 States

Retrieved on: 
Thursday, January 13, 2022

"The integration of patients' lived experience into quality improvement teams is critical to the success ofour efforts to decrease preventable maternal morbidity and mortality in the U.S.," said AIM SeniorDirectoratACOG ChristieAllen.

Key Points: 
  • "The integration of patients' lived experience into quality improvement teams is critical to the success ofour efforts to decrease preventable maternal morbidity and mortality in the U.S.," said AIM SeniorDirectoratACOG ChristieAllen.
  • The Lived Experience Integration into QI Community of Learning (COL) training program is an eight-weekeducational series created by MoMMA's Voices and funded by AIM.
  • The program will run January toMay 2022 and will serve three cohorts of 23 AIM state and jurisdiction-based teams, Indian HealthServicesfacilities, andotherhealthcareentities.
  • During the eight-week AIM COL program, each cohort will learn how to effectively build a patientengagement culture centered on the Lived Experience Integration, a concept developed by MoMMA'sVoices.

Bell Let's Talk launches BIPOC mental health podcast series

Retrieved on: 
Monday, October 4, 2021

"Bell Let's Talk is pleased to launch this new mental health podcast series to put a spotlight on mental health in culturally diverse communities," said Mary Deacon, Chair of Bell Let's Talk.

Key Points: 
  • "Bell Let's Talk is pleased to launch this new mental health podcast series to put a spotlight on mental health in culturally diverse communities," said Mary Deacon, Chair of Bell Let's Talk.
  • "By taking part in these podcast conversations, this informed, diverse group of mental health experts and people with lived-experience will help advance mental health and wellness in new and necessary ways."
  • The podcast series will feature guests sharing their personal stories and mental health journeys, alongside mental health experts from BIPOC communities who can help Canadians understand the impacts of racism and injustice on mental health.
  • Earlier this year, Bell Let's Talk ambassador Joanie Gonthier also hosted a mental health podcast series which is available on the Noovo Moi platform.

NEA's Eczema Awareness Month 2021 Explores The Heterogeneity Of This Life-altering Skin Disease That Burdens 1 In 10 Adults And Children In The USA

Retrieved on: 
Friday, October 1, 2021

5, 6, 7, 8, 9

Key Points: 
  • 5, 6, 7, 8, 9
    Nearly 40% of patients with eczema reported that they turned down a job or an educational opportunity due to their disease.
  • NEA advances critical eczema research and partners with key stakeholders to ensure the patient voice is represented and valued in education, care and treatment decision-making.
  • Understanding the Lived Experience of Eczema: The "Voice of the Patient" Report on the Eczema Patient-Focused Drug Development Meeting.
  • Association of atopic dermatitis with depression, anxiety, and suicidal ideation in children and adults: A systematic review and meta-analysis.