Children's Hospital at Montefiore

The New York Center for Rare Diseases at Montefiore to Partner with GeneDx, PacBio and Google Health to Increase Genomic Testing Options for Bronx Families

Retrieved on: 
Wednesday, November 8, 2023

BRONX, N.Y., Nov. 8, 2023 /PRNewswire/ -- The New York Center for Rare Diseases (NYCRD) at Montefiore, recognized as a Center of Excellence by the National Organization for Rare Disorders (NORD), is partnering with GeneDx, PacBio and Google Health to deliver genetic diagnoses for Bronx families living with rare diseases. The goal of the new partnership is to help identify the genetic causes of, and best treatments for rare diseases that have remained undiagnosed, despite using today's most advanced tests.

Key Points: 
  • On average, the search for a rare disease diagnosis takes five to seven years and can be fraught with misdiagnoses.
  • The focus of this research project on the Bronx in New York City adds a level of complexity to rare disease diagnostics.
  • "Our aim is to illuminate rare disease mysteries and bring answers and hope to families navigating the complexities of a rare disease."
  • Together with PacBio and Montefiore, we can help improve equity in genomics resources and help end long diagnostic odysseys for patients."

Community Health Worker Institute at Montefiore Fills Gaps Between Medical & Social Needs

Retrieved on: 
Tuesday, August 15, 2023

BRONX, N.Y., Aug. 15, 2023 /PRNewswire/ -- The delivery of healthcare services, while important, represents only 20% of the factors that contribute to a person's health status. In contrast, social determinants of health (SDOH)—conditions that people are born into, work and live in that impact health outcomes (e.g. housing, transportation, education)—are widely recognized as having the most significant influence on a person's health. Despite their importance, SDOH are understudied and resources to address them within the healthcare system are rare. But that's starting to change.

Key Points: 
  • In contrast, social determinants of health (SDOH)—conditions that people are born into, work and live in that impact health outcomes (e.g.
  • The Community Health Worker Institute (CHWI) at Montefiore, launched in 2021, is establishing a model to address SDOH within an academic health system.
  • The CHWI embeds local experts, known as community health workers (CHWs), into clinical teams to fill the gaps between medical care and social services in the Bronx.
  • Reflecting the background, language, and lived experience of the Bronx community they serve, the CHWs at Montefiore are frontline public health workers who serve as trusted members of the community.

MONTEFIORE PEDIATRICIANS AND STOP & SHOP PRESCRIBE PRODUCE FOR LOCAL FAMILIES TO ADDRESS FOOD INSECURITY

Retrieved on: 
Thursday, July 13, 2023

NEW YORK, July 13, 2023 /PRNewswire/ -- One in three Bronx children face food insecurity, with inconsistent access to the healthy foods they need to live an active life. Building off screening efforts to identify patients who fall into this category, the Children's Hospital at Montefiore (CHAM) is launching a new program in partnership with Stop & Shop and About Fresh, a platform that enables healthcare professionals to connect patients to healthy food. The pilot program, called Fresh Connect, will provide prepaid debit cards to families to buy fresh fruit and vegetables at local Stop & Shop stores. Fresh Connect aims to ensure Bronx families have access to well-balanced, nutritional meals. This is being made possible with a $75,000 grant from Stop & Shop, the first major retailer in the country to partner with About Fresh.

Key Points: 
  • The pilot program, called Fresh Connect, will provide prepaid debit cards to families to buy fresh fruit and vegetables at local Stop & Shop stores.
  • This is being made possible with a $75,000 grant from Stop & Shop, the first major retailer in the country to partner with About Fresh.
  • Last year, Stop & Shop rolled out the program at its stores in Massachusetts and quickly expanded to all 400+ Stop & Shop locations across its entire northeastern footprint.
  • Now CHAM is the first New York area hospital to partner with Stop & Shop and offer the Fresh Connect program for Bronx families.

POOR AIR QUALITY LEADS TO LONGER HOSPITAL STAYS FOR CHILDREN WITH ASTHMA, ACCORDING TO NEW RESEARCH

Retrieved on: 
Wednesday, June 21, 2023

NEW YORK, June 21, 2023 /PRNewswire/ -- Children with asthma spend more time in the hospital when there is a greater amount of particulate matter (PM 2.5) - tiny pieces of solids or liquids - and Ozone (O₃) - a colorless gas - in the air, according to a new study by researchers at the Children's Hospital at Montefiore (CHAM). The study, just published in the Journal of Asthma, comes days after New York City was blanketed in wildfire smoke.

Key Points: 
  • The study, just published in the Journal of Asthma , comes days after New York City was blanketed in wildfire smoke.
  • In this first-of-its-kind study in children, led by pediatric hospitalist, Elissa B.
  • The Bronx also has more federal air quality violations than any other borough.
  • "Our findings suggest that children with asthma may experience more severe exacerbations and remain hospitalized longer when they are exposed to a higher level of pollutants in the air," said Dr.

NY Center for Rare Diseases at Montefiore Joins National Network in Partnership with the National Organization for Rare Disorders

Retrieved on: 
Thursday, May 4, 2023

BRONX, N.Y., May 4, 2023 /PRNewswire/ -- The NY Center for Rare Diseases at Montefiore has become one of 40 academic medical centers selected to be part of a national network dedicated to diagnosing, treating, and researching all rare diseases. The network is led by the National Organization for Rare Disorders (NORD) and is designed to foster knowledge sharing between experts across the country to meet the unmet needs of more than 25 million Americans living with a rare disease.

Key Points: 
  • BRONX, N.Y., May 4, 2023 /PRNewswire/ -- The NY Center for Rare Diseases at Montefiore has become one of 40 academic medical centers selected to be part of a national network dedicated to diagnosing, treating, and researching all rare diseases.
  • The network is led by the National Organization for Rare Disorders (NORD) and is designed to foster knowledge sharing between experts across the country to meet the unmet needs of more than 25 million Americans living with a rare disease.
  • "We are proud to announce the NY Center for Rare Diseases at Montefiore as a NORD Rare Disease Center of Excellence and look forward to their many further contributions as we collectively seek to improve health equity, care, and research to support all individuals with rare diseases."
  • For more information about the NORD Rare Disease Centers of Excellence Program and the full list of Rare Disease Centers of Excellence, visit NORD's website.

Leaders in Pediatric Liver Care Join Hassenfeld Children's Hospital at NYU Langone, Launch Pediatric Liver Disease & Transplant Program

Retrieved on: 
Thursday, April 27, 2023

Nadia Ovchinsky, MD , Jennifer M. Vittorio, MD , and Debora Kogan-Liberman, MD have joined Hassenfeld Children's Hospital and the NYU Langone Transplant Institute to establish the Pediatric Liver Disease and Transplant Program , bolstering the institution's comprehensive offering of solid organ transplants and expanding regional access to specialized care for children.

Key Points: 
  • Nadia Ovchinsky, MD , Jennifer M. Vittorio, MD , and Debora Kogan-Liberman, MD have joined Hassenfeld Children's Hospital and the NYU Langone Transplant Institute to establish the Pediatric Liver Disease and Transplant Program , bolstering the institution's comprehensive offering of solid organ transplants and expanding regional access to specialized care for children.
  • Before Hassenfeld Children's Hospital, the team were clinicians within the Pediatric Liver Program at The Children's Hospital at Montefiore.
  • Dr. Griesemer joined NYU Langone in 2022 in an effort to expand the Transplant Institute's adult liver transplant program.
  • "Offering liver transplants to our pediatric population underlines our commitment to providing comprehensive care to all patients who may need a transplant.

Joshua Lurie has joined Relativity6 as Chief Operating Officer

Retrieved on: 
Tuesday, February 7, 2023

, Feb. 7, 2023 /PRNewswire/ -- Serial Entrepreneur and Investor Joshua Lurie has agreed to join Relativity6 as Chief Operating Officer to help grow and scale operations.

Key Points: 
  • , Feb. 7, 2023 /PRNewswire/ -- Serial Entrepreneur and Investor Joshua Lurie has agreed to join Relativity6 as Chief Operating Officer to help grow and scale operations.
  • Josh is an entrepreneur with over 25 years of experience starting, growing, advising and selling technology companies in the data and technology markets.
  • Josh has had a successful track record and most recently has taken a position at Relativity6 as the COO.
  • "Josh is an expert at scaling data companies and will be instrumental to Relativity6 achieving its ambitious growth plans over the next 24 months," says Alan Ringvald, CEO, Relativity6.

JPMA Cares to Honor Dr. Sadiqa Kendi with the 2022 Impact Award

Retrieved on: 
Tuesday, November 1, 2022

MOUNT LAUREL, N.J., Nov. 1, 2022 /PRNewswire-PRWeb/ -- JPMA Cares is pleased to announce Dr. Sadiqa Kendi as the organization's 2022 Impact Award winner. Dr. Kendi serves as the Division Chief of the Pediatric Emergency Medicine Division and Associate Professor of Pediatrics at Boston Medical Center and Boston University School of Medicine. She is an expert in pediatric injury prevention, with a focus on health equity.

Key Points: 
  • JPMA Cares is pleased to announce Dr. Sadiqa Kendi as the organization's 2022 Impact Award winner.
  • MOUNT LAUREL, N.J., Nov. 1, 2022 /PRNewswire-PRWeb/ -- JPMA Cares is pleased to announce Dr. Sadiqa Kendi as the organization's 2022 Impact Award winner.
  • "We are thrilled to recognize Dr. Sadiqa Kendi for the tremendous work she's doing to make a positive impact on the long-term success of babies and young children," said Executive Director of JPMA and JPMA Cares Lisa Trofe.
  • "I'm honored to be recognized with the JPMA Cares Impact Award," said Dr. Kendi.

Albert Einstein College of Medicine Awarded $5 Million for Research on Intellectual and Developmental Disabilities

Retrieved on: 
Wednesday, September 15, 2021

Previous NIH support helped establish a research program on22q11.2 Deletion Syndrome (22q11.2DS), an incurable genetic disorder associated with delayed intellectual development and psychiatric conditions.

Key Points: 
  • Previous NIH support helped establish a research program on22q11.2 Deletion Syndrome (22q11.2DS), an incurable genetic disorder associated with delayed intellectual development and psychiatric conditions.
  • Thisnew grant's research focus involves the X chromosome'sKDM5Cgene, which plays a central role in brain development and behavior.
  • Mutationsin theKDM5Cgene lead to intellectual disabilities and other conditions, particularly in males although females can also be affected.
  • They learned about recent findings and the RFK IDDRCpartnerships at Montefiore and Einstein that are addressing research and care.