Recursion Hosts Second Annual Rare Disease Day Events for Utah’s Rare Disease Community
An estimated one in 10 people in the United States have a rare disease.
- An estimated one in 10 people in the United States have a rare disease.
- The event recognized advocates who have been instrumental in building Utah’s rare disease community and have dedicated themselves to support this important work.
- “There is an urgency for diagnoses, treatment and cures for the rare disease community,” said Gina Zanik, co-founder and executive director of Rare and Undiagnosed Network and Vice Chair of the Utah Rare Disease Advisory Council.
- Rare disease patients came together at Recursion with the RARE and Undiagnosed Network (RUN), RARE-X , BioHive , ARUP Laboratories , BioUtah , the University of Utah and the Rare Disease Advisory Council (RDAC) for the Rare Disease Day event.