Tuskegee Syphilis Study

Researchers can learn a lot with your genetic information, even when you skip survey questions – yesterday's mode of informed consent doesn't quite fit today's biobank studies

Retrieved on: 
Thursday, June 29, 2023
Blood pressure, UK Biobank, Tuskegee Syphilis Study, Diet, Education, Diabetes, Genetics, Urine, Cardiovascular disease, Lung cancer, Data collection, Research, Risk, Privacy, Science, Certified IRB Professional, Population, IRB, Ethicist, Human, Blood, Income, Institutional review board, Social, Health, Gene, News, Syphilis, Behavior, Pharmaceutical industry, Dietary supplement, Publishing, Agriculture

For the past few years, you’ve been visiting a collection site where you fill out some questionnaires about your health and daily activities.

Key Points: 
  • For the past few years, you’ve been visiting a collection site where you fill out some questionnaires about your health and daily activities.
  • Because you agreed to contribute your genetic data to the study, you also provided a saliva sample during your first visit.
  • You remember reading a long form when you consented to giving your data, but you can’t quite remember all the details.

What are biobanks?

    • For example, to study the genetics of diabetes, researchers might collect data on your blood pressure and lipid levels in addition to genetic data.
    • Some biobanks, like the UK Biobank, link biospecimen data to other collected data, such as sexual behavior, medical history, weight, diet and lifestyle.
    • Private companies like 23andMe also obtain consent from their customers to have their data used in research efforts.

Genetic data and informed consent

    • Genetic data, like the data used in our study, is de-identified.
    • Further, genetic data for these sorts of genetic studies is used at the aggregate level, meaning it isn’t used to predict or evaluate any one particular individual’s responses or behaviors.
    • Researchers aren’t using genetic data to target individuals with certain genetic profiles.

Improving informed consent

    • They allow researchers to link many different outcomes and variables together to paint a critical overall picture of human health and behavior.
    • And in contrast with the personally identifiable online or phone data that companies collect to show you targeted ads, biobanks collect de-identified data that is evaluated in aggregate.

New History Program Serves Up Anti-Racist Curriculum for Schools, Using Award Winning Media Unmasking Tuskegee Experiment, Tulsa Race Massacre, and More

Retrieved on: 
Wednesday, November 9, 2022
People, Organization, Black Box (Brown Eyed Girls album), Atlanta Public Schools, Betrayal, American, Ethics, Parent, African Americans, Curriculum, Social justice, Empathy, Racism, Tuskegee Syphilis Study, 3E, Tulsa race massacre, School, NEW, Program, Student, Learning, Gaps, Film festival, History, Clark Atlanta University, American Dream, Coretta Scott, Time, Tutoring, Reparation, Education, Color, Empowerment

NEW YORK, Nov. 9, 2022 /PRNewswire/ -- Film director and educator Brandi Webb collaborated with veteran educator Melody Michaux, to develop the 3E Program for Social Justice and Change. The 3E Program is a U.S History curriculum resource that provides middle and high school educators with lesson plans, resources, assessments, and video segments and uses New York state standards as a basis. These standards fall in line with social studies requirements in many other states. Video segments used to accompany 3E Program lessons are from Webb's award winning documentary, Betrayal of a Nation. Film topics addressed include the American Dream, the Tuskegee Syphilis Experiment, the Tulsa Race Massacre, and Reparations, along with five other topics. With a focus on Ethics, Empathy, and Empowerment, the program offers instructors an opportunity to provide their students an in-depth examination of historical events that have impacted African Americans and People of Color. These events have been lightly touched on, distorted, or omitted altogether in conventional U.S History syllabi. The goal of the 3E Program is to build a new legacy free of racism.

Key Points: 
  • Video segments used to accompany 3E Program lessons are from Webb's award winning documentary, Betrayal of a Nation.
  • Film topics addressed include the American Dream, the Tuskegee Syphilis Experiment, the Tulsa Race Massacre, and Reparations, along with five other topics.
  • In response to the overwhelming demand to have the film's topics integrated into school curricula, Webb and Michaux created the 3E Program.
  • The 3E Program for Social Justice and Change also provides virtual classes of the history curriculum for homeschooled students, taught by 3E Program educators.

'Hope is Alive' Community Partnership Video PSA Earns 22 Health Care Advertising Awards

Retrieved on: 
Friday, August 12, 2022
Linda, Interview, Multimedia, Association, Professional, Medicare, COVID, St. Paul A.M.E. Church, Creativity, American Advertising Federation, Government, Indian Telly Awards, Marketing, Hospital, COVID-19, Tuskegee Syphilis Study, Education, View, Hope, Partnership, SACHS, Empathy, Tuskegee Experiments (album), Vaccination, Inland Empire, Organization, Goal, Cal, Health, Paul the Apostle, Health care, Medicine, Animal, Pharmaceutical industry, Public relations, Silver, Black, Medicaid, Gold

RANCHO CUCAMONGA, Calif., Aug. 12, 2022 /PRNewswire/ -- "Hope is Alive", a digital media campaign inspired by the partnership between Inland Empire Health Plan (IEHP), SAC Health (SACHS), Loma Linda University Health (LLUH), Ezra Productions, and St. Paul African Methodist Episcopal Church (St. Paul AME) inSan Bernardino has earned a total of 22 health care advertising awards.

Key Points: 
  • RANCHO CUCAMONGA, Calif., Aug. 12, 2022 /PRNewswire/ -- "Hope is Alive", a digital media campaign inspired by the partnership between Inland Empire Health Plan (IEHP), SAC Health (SACHS), Loma Linda University Health (LLUH), Ezra Productions, and St. Paul African Methodist Episcopal Church (St. Paul AME) inSan Bernardino has earned a total of 22 health care advertising awards.
  • Awards range from Merit, Bronze, Silver, Gold, and Best of Show across organizations, including Healthcare AdAwards, Aster Awards, the Association of Marketing and Communication Professionals (Viddy Awards), American Advertising Federation's Inland Empire Chapter, and Telly Awards.
  • This work represented the shared goals for IEHP's community partnerships with outreach and health services teams all in support of the organization's Mission: "We heal and inspire the human spirit."
  • Ezra Productions through close collaboration with IEHP's marketing-communication team for this inspiring story captured the joint efforts, producing "Hope is Alive."

The National Civil Rights Museum opens an exhibit highlighting a massive shift in Black Education during the Jim Crow South

Retrieved on: 
Wednesday, August 10, 2022
Rosenwald Fund, USA Today, Trail, Rosenwald, National Civil Rights Museum, Social change, Exhibition, GLOBE, Fund, Student, TLC, Feiler, The Commercial Appeal, Tuskegee Syphilis Study, Museum, Civil rights movement, Family Travel Forum, Religion, Black, Sears, National Trust for Historic Preservation, Great Migration, National Trust, American Treasures, School, Company, Tuskegee University, Partnership, Fund of funds, Affiliation, American City Business Journals, Tuskegee, Alabama, Rosenwald School, Fisk University, Animal migration, Coffee, Interior design, Book, Tears, Smithsonian Institution

Memphis, TN, Aug. 10, 2022 (GLOBE NEWSWIRE) -- An exhibition highlighting one of the most transformative education projects for Black students during the 20th century will unveil at the National Civil Rights Museum on August 18.

Key Points: 
  • Memphis, TN, Aug. 10, 2022 (GLOBE NEWSWIRE) -- An exhibition highlighting one of the most transformative education projects for Black students during the 20th century will unveil at the National Civil Rights Museum on August 18.
  • Rosenwald turned Sears, Roebuck & Company into the world's largest retailer, while Washington became the founding principal of Tuskegee Institute.
  • In 1912, the two teamed up to launch an ambitious program that would partner with Black communities to build public schools that would educate more than 700,000 Black children across the South.
  • As the new public square, the Museum examines todays global civil and human rights issues, provokes thoughtful debate, and serves as a catalyst for positive social change.

The Ad Council and COVID Collaborative's "It's Up To You" Campaign Highlights Stories from Descendants of the U.S. Public Health Service Syphilis Study at Tuskegee to Help Foster Confidence in the COVID-19 Vaccines

Retrieved on: 
Wednesday, June 30, 2021
Medical specialties, Medicine, Syphilis, Tuskegee University, Infectious diseases, Clinical trials, United States Public Health Service, Tuskegee Syphilis Study, Tuskegee, Alabama, Thomas Parran, John Charles Cutler

"The loving human beings involved in the U.S. Public Health Service Syphilis Study at Tuskegee were our fathers, grandfathers, uncles and cousins.

Key Points: 
  • "The loving human beings involved in the U.S. Public Health Service Syphilis Study at Tuskegee were our fathers, grandfathers, uncles and cousins.
  • The U.S. Public Health Service Syphilis Study at Tuskegee was conducted from 1932 through 1972 by the United States government.
  • More than a hundred men died from syphilis or its complications by the end of the study.
  • Today, descendants of these men are working to reframe the narrative and build trust through public service and public health.