RareConnect

Cytokinetics Joins Global Initiative to Recognize International Rare Disease Day

Retrieved on: 
Friday, February 26, 2021
European Organisation for Rare Diseases, Medicine, Rare disease, Articles, Rare Disease Day, Contents, National Organization for Rare Disorders, Disease, Rare diseases, RareConnect

SOUTH SAN FRANCISCO, Calif., Feb. 26, 2021 (GLOBE NEWSWIRE) -- Cytokinetics, Incorporated(Nasdaq: CYTK) today announced that on February 28 it is joining the European Organisation for Rare Diseases (EURORDIS) and the National Organization for Rare Disorders (NORD) to recognize Rare Disease Day, an international campaign elevating the awareness and public understanding of rare diseases.

Key Points: 
  • SOUTH SAN FRANCISCO, Calif., Feb. 26, 2021 (GLOBE NEWSWIRE) -- Cytokinetics, Incorporated(Nasdaq: CYTK) today announced that on February 28 it is joining the European Organisation for Rare Diseases (EURORDIS) and the National Organization for Rare Disorders (NORD) to recognize Rare Disease Day, an international campaign elevating the awareness and public understanding of rare diseases.
  • Rare Disease Day, which takes place every year on the last day in February, was established inEuropein 2008 by theEuropean Organisation for Rare Diseases(EURORDIS) and is now observed in more than 80 nations.
  • Inthe United States, Rare Disease Day is sponsored by theNational Organization for Rare Disorders(NORD), a leading independent, non-profit organization committed to the identification, treatment, and cure of rare diseases.
  • With over 6,000 rare diseases, 25 million Americans are living with a rare disease, but only 5 percent of these diseases have a treatment.

Travere Therapeutics Recognizes Rare Disease Day 2021 and the Importance of Working Together to Innovate and Address Healthcare Disparities in Rare Disease

Retrieved on: 
Thursday, February 25, 2021
Medicine, Articles, European Organisation for Rare Diseases, Rare disease, Health, Global Genes, Rare Disease Day, Rare diseases, National Organization for Rare Disorders, Disease, RareConnect

SANDIEGO, Feb. 25, 2021 (GLOBE NEWSWIRE) -- TravereTherapeutics, Inc.(NASDAQ: TVTX) willjoin theNational Organization for Rare Disorders(NORD), theEuropean Organisation forRare Diseases(EURORDIS), EveryLife Foundationfor Rare Diseases, Global Genes, and rare disease advocates and patients worldwide in recognizingFebruary 28 as Rare Disease Day 2021.

Key Points: 
  • SANDIEGO, Feb. 25, 2021 (GLOBE NEWSWIRE) -- TravereTherapeutics, Inc.(NASDAQ: TVTX) willjoin theNational Organization for Rare Disorders(NORD), theEuropean Organisation forRare Diseases(EURORDIS), EveryLife Foundationfor Rare Diseases, Global Genes, and rare disease advocates and patients worldwide in recognizingFebruary 28 as Rare Disease Day 2021.
  • Rare Disease Day is an important reminder that we are stronger together in our pursuit to improve access to diagnosis, treatment and care for the rare community.
  • These organizations are dedicated to finding solutions to healthcare inequity and to continued innovation in rare disease.
  • TheBlack Women's Health Imperative launched the Rare Disease Diversity Coalition to address the extraordinary challenges faced by rare disease patients of color.