Mended Hearts

Cytokinetics, The Mended Hearts, Inc. and WomenHeart Announce Launch of New Initiative to Increase Engagement in Cardiovascular Clinical Trials

Retrieved on: 
Wednesday, February 28, 2024
SAN, Woman, Caregiver, Education, Cardiovascular disease, Engagement, Empowerment, Activate, Patient advocacy, Hypertrophic cardiomyopathy, Navigation, HCM, Patient, Clinical trial, Health equity, Mended Hearts, Cytokinetics, Nursing

ENACT is a joint initiative of The Mended Hearts, Inc. and WomenHeart, made possible through grant funding from Cytokinetics provided to each organization to address their respective constituencies.

Key Points: 
  • ENACT is a joint initiative of The Mended Hearts, Inc. and WomenHeart, made possible through grant funding from Cytokinetics provided to each organization to address their respective constituencies.
  • The goal of ENACT is to provide greater education to patients with cardiovascular diseases participating in clinical trials.
  • During the initial launch, The Mended Hearts, Inc. and WomenHeart will create complementary content, modules and resources based on their unique expertise and constituencies.
  • “We commend The Mended Hearts, Inc. and WomenHeart on this joint initiative to help make cardiovascular clinical trials more accessible, approachable and inclusive,” said Mary Pomerantz, Cytokinetics’ Senior Director of Patient Advocacy and Engagement.

Cytokinetics Announces Call for Proposals for Its Sixth Annual Communications Grant Program

Retrieved on: 
Thursday, September 28, 2023
Communication, Application, Patient advocacy, Heart failure, Criterion, Cardiovascular disease, National Coalition of Syrian Revolutionary and Opposition Forces, Organization, Mended Hearts, Cytokinetics, Hypertrophic cardiomyopathy, Woman, ALS, HCM, Engagement, Pharmaceutical industry, Nursing

SOUTH SAN FRANCISCO, Calif., Sept. 28, 2023 (GLOBE NEWSWIRE) -- Cytokinetics, Incorporated (Nasdaq: CYTK) today announced a call for proposals for the sixth annual Cytokinetics Communications Grant Program. The program will award five grants in the amount of $20,000 each to patient advocacy organizations serving the hypertrophic cardiomyopathy (HCM), heart failure and amyotrophic lateral sclerosis (ALS) communities. The grants are intended to support increased capacity in communications, awareness building and community engagement.

Key Points: 
  • Deadline for Applications is November 1st, 2023
    SOUTH SAN FRANCISCO, Calif., Sept. 28, 2023 (GLOBE NEWSWIRE) -- Cytokinetics, Incorporated (Nasdaq: CYTK) today announced a call for proposals for the sixth annual Cytokinetics Communications Grant Program.
  • “Over the past five years, our Communications Grant Program has funded creative and urgently needed programs that have helped expand patient reach, connect communities and elevate patient voices.
  • Funding from the Cytokinetics Communications Grant program may help with communications programming or personnel, depending on each organization’s needs.
  • Applications will be evaluated by a committee of representatives from Cytokinetics based on the proposal’s alignment with selection criteria.

Global Heart Hub announces the launch of new patient-led research to bring attention to unhealthy cholesterol levels

Retrieved on: 
Monday, August 28, 2023
Mended Hearts, Cholesterol, World Heart Federation, Human, Science, European Society of Cardiology, Congress, Novartis, ASCVD, Moyamoya disease, ESC, Associazione Italiana Guide e Scouts d'Europa Cattolici, Pharmaceutical industry

GALWAY, Ireland, Aug. 28, 2023 /PRNewswire/ -- Following the unveiling in 2022 of Global Heart Hub's Global Cholesterol Action Plan, supported by the World Heart Federation, community support has grown to 70 patient organisations and groups who together are calling for global action to reduce the impact of unhealthy cholesterol levels. To reinforce this call to action, Global Heart Hub will begin to collect patient insights from individuals whose cholesterol levels are not at target or those who have suffered a cardiovascular event to better understand patient experiences that can help impact care and improve outcomes. The first-of-its-kind cholesterol patient insights generation by the cardiovascular patient community is needed to help support the local implementation of the Global Cholesterol Action Plan and to drive strategies to manage unhealthy cholesterol, a critical modifiable risk factor for the world's biggest killer, atherosclerotic cardiovascular disease (ASCVD)1.

Key Points: 
  • This announcement comes during the 2023 European Society of Cardiology (ESC) Congress, under the theme of 'joining forces to protect the heart'.
  • GALWAY, Ireland, Aug. 28, 2023 /PRNewswire/ -- Following the unveiling in 2022 of Global Heart Hub's Global Cholesterol Action Plan , supported by the World Heart Federation, community support has grown to 70 patient organisations and groups who together are calling for global action to reduce the impact of unhealthy cholesterol levels.
  • Neil Johnson, Executive Director, Global Heart Hub said: "While we've advanced with science and treatment, ASCVD remains the world's number one killer, with unhealthy cholesterol levels as the main culprit.
  • Representing the voice of the global patient community, the Global Cholesterol Action Plan was created with the support of Invisible Nation , a program co-created by Global Heart Hub and Novartis to expose the realities of ASCVD.

Global Heart Hub announces the launch of new patient-led research to bring attention to unhealthy cholesterol levels

Retrieved on: 
Monday, August 28, 2023
Mended Hearts, Cholesterol, World Heart Federation, Human, Science, European Society of Cardiology, Congress, Novartis, ASCVD, Moyamoya disease, ESC, Associazione Italiana Guide e Scouts d'Europa Cattolici, Pharmaceutical industry

GALWAY, Ireland, Aug. 28, 2023 /PRNewswire/ -- Following the unveiling in 2022 of Global Heart Hub's Global Cholesterol Action Plan, supported by the World Heart Federation, community support has grown to 70 patient organisations and groups who together are calling for global action to reduce the impact of unhealthy cholesterol levels. To reinforce this call to action, Global Heart Hub will begin to collect patient insights from individuals whose cholesterol levels are not at target or those who have suffered a cardiovascular event to better understand patient experiences that can help impact care and improve outcomes. The first-of-its-kind cholesterol patient insights generation by the cardiovascular patient community is needed to help support the local implementation of the Global Cholesterol Action Plan and to drive strategies to manage unhealthy cholesterol, a critical modifiable risk factor for the world's biggest killer, atherosclerotic cardiovascular disease (ASCVD)1.

Key Points: 
  • This announcement comes during the 2023 European Society of Cardiology (ESC) Congress, under the theme of 'joining forces to protect the heart'.
  • GALWAY, Ireland, Aug. 28, 2023 /PRNewswire/ -- Following the unveiling in 2022 of Global Heart Hub's Global Cholesterol Action Plan , supported by the World Heart Federation, community support has grown to 70 patient organisations and groups who together are calling for global action to reduce the impact of unhealthy cholesterol levels.
  • Neil Johnson, Executive Director, Global Heart Hub said: "While we've advanced with science and treatment, ASCVD remains the world's number one killer, with unhealthy cholesterol levels as the main culprit.
  • Representing the voice of the global patient community, the Global Cholesterol Action Plan was created with the support of Invisible Nation , a program co-created by Global Heart Hub and Novartis to expose the realities of ASCVD.

Leading Patient Advocacy Groups Launch Honor the Gift Campaign to Oppose Medicare Restrictions to Post-Transplant Diagnostic Testing

Retrieved on: 
Monday, May 15, 2023
Health Resources and Services Administration, Life, Survival, Dialysis, Journal, Patient, Transplant, Sussel-Washington Artist, Mended Hearts, Heart, Gift, Registry, Journal of Thoracic Disease, TRIO, GEP, Ann Harrison (lung transplant recipient), Russell Westbrook, Gene expression profiling, Organization, Lung transplantation, The Journal of Heart and Lung Transplantation, Kidney, Heart transplantation, Legislation, American Society of Transplantation, Multimedia, George Washington University Hospital, International Organization (journal), Organ transplantation, Transplant surgeon, End organ damage, Health, Alport syndrome, Society, International Society, Pharmaceutical industry, Dentistry, Health insurance, Medicare

WASHINGTON, May 15, 2023 /PRNewswire/ -- Leading transplant advocacy groups announced today the re-activation of the Honor the Gift campaign, a coalition dedicated to advocating for greater access and coverage to ensure the long-term health of transplant patients. The reinvigorated campaign, which originally contributed to the successful passage of the Immuno Bill, will take on the latest challenge following Medicare's recent restriction of non-invasive diagnostic tests for solid organ allograft injury. Additionally, the coalition will focus on state and federal policies to protect and expand access to innovative tests that are vital to post-transplant patient's health.

Key Points: 
  • The Honor the Gift campaign will focus first and foremost on restoring Medicare coverage following the March 2023 release of a billing article that restricts coverage of non-invasive post-transplant diagnostic tests like dd-cfDNA and GEP.
  • A recent survey of transplant patients found that 95% believe reduced coverage for non-invasive tests would negatively impact their post-transplant care.
  • "I am proud to be part of the Honor the Gift campaign to advocate for continued coverage.
  • American journal of transplantation: official journal of the American Society of Transplantation and the American Society of Transplant Surgeons vol.

Mended Hearts & RecoveryPlus.health Collaborate to Expand Accessibility to Critically Effective Cardiac Rehab and Prehab Through National Remote Rehab Platform

Retrieved on: 
Tuesday, February 28, 2023
Health Technology, Health, Cardiology, Telemedicine, Virtual Medicine, Social media, Quality of life, MH, Insurance, Heart, Partnership, Mended Hearts, Risk, Patient, RP, Exercise, Medicare, Hospital, Nursing

RecoveryPlus.health will be the first national provider of remote cardiac rehab for Mended Hearts® members, with a program that is reimbursable by Medicare and most commercial insurance companies.

Key Points: 
  • RecoveryPlus.health will be the first national provider of remote cardiac rehab for Mended Hearts® members, with a program that is reimbursable by Medicare and most commercial insurance companies.
  • Co-sponsored content will be developed for social media and other platforms, demonstrating both organizations’ shared mission to scale accessibility to cardiac rehab.
  • “Cardiac rehab is an important step for patients on their road to recovery and optimal heart health.
  • Plans are also underway to create a special co-sponsored education module for healthcare professionals about remote cardiac care, and information to support individual hospitals’ efforts for their heart patients.

Cytokinetics Announces Recipients of Its Fifth Annual Communications Grant Program

Retrieved on: 
Monday, January 30, 2023
Amyotrophic lateral sclerosis, HCM, Engagement, Disease, Education, Diagnosis, Heart transplantation, Heart, National Coalition for Syrian Revolutionary and Opposition Forces, Cardiomyopathy, Chapter, Quality of life, Hypertrophic cardiomyopathy, Mended Hearts, Cytokinetics, Patient, SAN, Health equity, Cardiovascular disease, Patient advocacy, Woman, MHI, ALS, Organization, Risk, Heart failure, ARC, Pharmaceutical industry, Medical device

SOUTH SAN FRANCISCO, Calif., Jan. 30, 2023 (GLOBE NEWSWIRE) -- Cytokinetics, Incorporated (Nasdaq: CYTK) today announced the recipients of its fifth annual Communications Grant Program, intended to support communications, awareness building and community engagement for nonprofit organizations serving the patient community.

Key Points: 
  • SOUTH SAN FRANCISCO, Calif., Jan. 30, 2023 (GLOBE NEWSWIRE) -- Cytokinetics, Incorporated (Nasdaq: CYTK) today announced the recipients of its fifth annual Communications Grant Program, intended to support communications, awareness building and community engagement for nonprofit organizations serving the patient community.
  • The grants will support projects to increase organizational reach, launch educational programs, grant patients access to conferences and reach underserved populations.
  • “We are continuously impressed by the quality of proposals we receive, and this year’s recipients were particularly impactful, reflecting the unique needs of the patient communities they serve,” said Mary Pomerantz, Cytokinetics’ Senior Director of Patient Advocacy and Engagement.
  • HeartBrothers will use this grant to expand outreach efforts to grow digital and in-person partnerships with heart failure hospitals nationwide and increase awareness and access to its resources for patients.

Parent Heart Watch Names Andrea Baer as New Executive Director

Retrieved on: 
Thursday, December 8, 2022
SCD, Patient advocacy, Congenital heart defect, Defense, Department of Defense Cyber Crime Center, Cardiac arrest, PHW, SCA, Patient, The American Journal of Managed Care, Cardiovascular disease, FDA, Child, Disability, Arrest, Face, Journal, Death, Caregiver, Social change, Public policy, Mended Hearts, Hospital, Pharmaceutical industry

WILMINGTON, Del., Dec. 7, 2022 /PRNewswire-PRWeb/ -- Parent Heart Watch, the national voice protecting youth from sudden cardiac arrest (SCA) and preventable Sudden Cardiac Death (SCD), is pleased to announce the appointment of Andrea Baer as Executive Director.

Key Points: 
  • WILMINGTON, Del., Dec. 7, 2022 /PRNewswire-PRWeb/ -- Parent Heart Watch, the national voice protecting youth from sudden cardiac arrest (SCA) and preventable Sudden Cardiac Death (SCD), is pleased to announce the appointment of Andrea Baer as Executive Director.
  • Ms. Baer joins Parent Heart Watch after 10 years with The Mended Hearts, Inc., the nation's premier peer-support program for patients who have cardiovascular disease, their caregivers, and their families.
  • The formal change in leadership will occur at the 18th Annual Parent Heart Watch National Heart to Heart conference January 13-15, 2023, in Houston, Texas.
  • Parent Heart Watch (PHW) is a national nonprofit organization solely dedicated to protecting youth from Sudden Cardiac Arrest (SCA) and preventable Sudden Cardiac Death (SCD).

Global alliance of heart patient organizations unveils new Global Cholesterol Action Plan to prioritize unhealthy cholesterol as a main public health issue

Retrieved on: 
Wednesday, November 30, 2022
Michael (archangel), Human, Stroke, Public health, Cardiology, Science, Organization, Hospital, Risk, Novartis, Policy, Mortality, Cardiovascular disease, Global Malaria Action Plan, Mended Hearts, Action plan, Moyamoya disease, Associazione Italiana Guide e Scouts d'Europa Cattolici, Death, Diet, Coronary artery disease, Smoking, Cholesterol, World Heart Federation, St. Michael's Hospital, Pharmaceutical industry, Dietary supplement, Medical device

GALWAY, Ireland, Nov. 30, 2022 /PRNewswire/ -- The Global Heart Hub has today launched its Global Cholesterol Action Plan to reduce the impact of unhealthy cholesterol levels .

Key Points: 
  • GALWAY, Ireland, Nov. 30, 2022 /PRNewswire/ -- The Global Heart Hub has today launched its Global Cholesterol Action Plan to reduce the impact of unhealthy cholesterol levels .
  • Presented at their annual UNITE Summit , the Action Plan follows and builds upon the World Heart Federation's Cholesterol Roadmap released in October.
  • The Global Heart Hub aims to implement change in the way unhealthy cholesterol levels are prevented and managed at local levels to reduce ASCVD .
  • The new Action Plan outlines four clear goals to ensure unhealthy cholesterol levels are addressed as a public health priority: build alliances, raise public awareness, activate alliances, and improve high cholesterol detection and management.

Global alliance of heart patient organizations unveils new Global Cholesterol Action Plan to prioritize unhealthy cholesterol as a main public health issue

Retrieved on: 
Wednesday, November 30, 2022
Michael (archangel), Human, Stroke, Public health, Cardiology, Science, Organization, Hospital, Risk, Novartis, Policy, Mortality, Cardiovascular disease, Global Malaria Action Plan, Mended Hearts, Action plan, Moyamoya disease, Associazione Italiana Guide e Scouts d'Europa Cattolici, Death, Diet, Coronary artery disease, Smoking, Cholesterol, World Heart Federation, St. Michael's Hospital, Pharmaceutical industry, Dietary supplement, Medical device

GALWAY, Ireland, Nov. 30, 2022 /PRNewswire/ -- The Global Heart Hub has today launched its Global Cholesterol Action Plan to reduce the impact of unhealthy cholesterol levels .

Key Points: 
  • GALWAY, Ireland, Nov. 30, 2022 /PRNewswire/ -- The Global Heart Hub has today launched its Global Cholesterol Action Plan to reduce the impact of unhealthy cholesterol levels .
  • Presented at their annual UNITE Summit , the Action Plan follows and builds upon the World Heart Federation's Cholesterol Roadmap released in October.
  • The Global Heart Hub aims to implement change in the way unhealthy cholesterol levels are prevented and managed at local levels to reduce ASCVD .
  • The new Action Plan outlines four clear goals to ensure unhealthy cholesterol levels are addressed as a public health priority: build alliances, raise public awareness, activate alliances, and improve high cholesterol detection and management.