Children's National Hospital

Briefing on Capitol Hill Urges More Government Action and Investment in the Epilepsies

Retrieved on: 
Wednesday, May 24, 2023
Epilepsy, Seizure, FY, Capitol Hill, Traumatic brain injury, Research program, SCN8A, Quality of life, Human, Tuberous sclerosis, Research, Child, Doctor of Philosophy, Government, Organization, TSC, Congress, National Hospital for Neurology and Neurosurgery, Children's National Hospital, Patient, Epilepsy Foundation, Tuberous sclerosis complex tumor suppressors, Fiscal year, Letter, Neurology, Pharmaceutical industry, SUDEP

WASHINGTON, May 24, 2023 /PRNewswire/ -- In cooperation with the Congressional Epilepsy Caucus, organizations including the Epilepsy Foundation, Epilepsies Action Network, CURE Epilepsy, Rare Epilepsy Network and DEE-P Connections hosted a briefing on Capitol Hill on May 17 to educate about the epilepsies and call for more government action and investment in the epilepsies.

Key Points: 
  • WASHINGTON, May 24, 2023 /PRNewswire/ -- In cooperation with the Congressional Epilepsy Caucus, organizations including the Epilepsy Foundation, Epilepsies Action Network, CURE Epilepsy, Rare Epilepsy Network and DEE-P Connections hosted a briefing on Capitol Hill on May 17 to educate about the epilepsies and call for more government action and investment in the epilepsies.
  • (R-NC-3) and Jim Costa (D-CA-21) spoke about their personal connections to epilepsy and the importance of the caucus.
  • "My son developed epilepsy when he was 14 and it took us months to get the right treatment for him," said Congressman Murphy.
  • The annual total healthcare burden for people living with the epilepsies and/or seizures is at least $54 billion.

Muscular Dystrophy Association Tribute Awards in Washington D.C. Honor Diana X. Bharucha-Goebel, M.D., R. Rodney Howell, M.D., Paul Robertson, Jeni Stepanek, Ph.D., Janet Woodcock, M.D.

Retrieved on: 
Thursday, May 11, 2023
Commissioner, Volunteering, Heart, John P. Hussman Institute for Human Genomics, University, Education, Life, Muscular Dystrophy Association, Associate professor, Muscular dystrophy, Genomics, Quality of life, Hope, Food and Drug Administration, Research, Leonard M. Miller School of Medicine, University of Miami, Science, National Press Club (United States), The National, Children's National Hospital, Neuromuscular disease, Professor, Patient, Neurology, Health, MDA, ALS, Food, Pharmaceutical industry, Pediatrics, D.C

The MDA Tribute Award recipients have all contributed to significant progress in accelerating research, advancing care, and advocating for the support of people living with neuromuscular diseases.

Key Points: 
  • The MDA Tribute Award recipients have all contributed to significant progress in accelerating research, advancing care, and advocating for the support of people living with neuromuscular diseases.
  • The MDA Tribute Awards presentation and reception will be held on Saturday, June 3, 2023, from 6-8:30pm at The National Press Club.
  • They are presented to acknowledge the legacy and life's work of those whose extraordinary efforts support the patients and families MDA serves.
  • The MDA legacy represents the contributions of so many pioneers who, through their work, have changed the trajectory for neuromuscular disease.

Indonesia's National Hospital deploys AppSealing to Protect its Mobile Apps and Customers' PHI

Retrieved on: 
Tuesday, May 9, 2023
NHI, PHI, Children's National Hospital, HIPAA, Hacking, Patient, SAN, Privacy, Confidentiality, App Store (iOS/iPadOS), Medical device, Yohannes

SAN JOSE, Calif., May 9, 2023 /PRNewswire/ -- National Hospital Indonesia (NHI) today announced that it has deployed AppSealing , a mobile application security platform, to protect its mobile apps and customers' PHI.

Key Points: 
  • SAN JOSE, Calif., May 9, 2023 /PRNewswire/ -- National Hospital Indonesia (NHI) today announced that it has deployed AppSealing , a mobile application security platform, to protect its mobile apps and customers' PHI.
  • AppSealing's app shielding platform provides the hospital with advanced security measures to protect its mobile applications and customers' PHI from malicious attacks and thereby achieve HIPAA compliance.
  • Yohanes, Head Of IT from National Hospital, said, "Data security is of utmost importance in preserving the confidentiality of sensitive information.
  • Our discussions with AppSealing revealed that AppSealing can effectively address prevalent issues, including the prevention of data breaches via feature-rich mobile applications that are consistently updated.

Indonesia's National Hospital deploys AppSealing to Protect its Mobile Apps and Customers' PHI

Retrieved on: 
Tuesday, May 9, 2023
NHI, PHI, Children's National Hospital, HIPAA, Hacking, Patient, SAN, Privacy, Confidentiality, App Store (iOS/iPadOS), Medical device, Yohannes

SAN JOSE, Calif., May 9, 2023 /PRNewswire/ -- National Hospital Indonesia (NHI) today announced that it has deployed AppSealing , a mobile application security platform, to protect its mobile apps and customers' PHI.

Key Points: 
  • SAN JOSE, Calif., May 9, 2023 /PRNewswire/ -- National Hospital Indonesia (NHI) today announced that it has deployed AppSealing , a mobile application security platform, to protect its mobile apps and customers' PHI.
  • AppSealing's app shielding platform provides the hospital with advanced security measures to protect its mobile applications and customers' PHI from malicious attacks and thereby achieve HIPAA compliance.
  • Yohanes, Head Of IT from National Hospital, said, "Data security is of utmost importance in preserving the confidentiality of sensitive information.
  • Our discussions with AppSealing revealed that AppSealing can effectively address prevalent issues, including the prevention of data breaches via feature-rich mobile applications that are consistently updated.

Novel Genetic Screening Tool Offers Hope for Babies Born With Life-Threatening Metabolic Disorder

Retrieved on: 
Thursday, May 4, 2023
Seizure, Journal of Inherited Metabolic Disease, UCDC, Pediatrics, Ornithine transcarbamylase deficiency, American Journal of Human Genetics, Hope, Metabolic disorder, Brain, Child, George Washington University, Bangladesh Technical Education Board, Associate, DSM-IV codes, Science, Human genetics, Children's National Hospital, Disorder, Genetics, American Journal, Data, Metabolism, Patient, Physician, Ammonia, Blood, Risk, OTC, Diagnosis, Gene, Disease, Dietary supplement

SEATTLE, May 4, 2023 /PRNewswire-PRWeb/ -- Every expectant parent hopes to welcome a healthy baby into the world. Unfortunately, infants with some genetic diseases appear healthy at birth, but then rapidly deteriorate—they become lethargic, stop eating, develop seizures, and may progress to coma—symptoms common to a variety of metabolic disorders. For the physicians charged with their care, it is a race against time to determine which disorder is causing their fragile patient to decline.

Key Points: 
  • For the physicians charged with their care, it is a race against time to determine which disorder is causing their fragile patient to decline.
  • A study published today in the American Journal of Human Genetics describes the tools that the Dudley Lab developed to assess the changes in a genetic sequence (variant) associated with ornithine transcarbamylase deficiency ( OTC deficiency ), a rare, inherited metabolic disorder.
  • "We hope that our data will also accelerate the development of new treatments and cures for OTC deficiency."
  • The technology built by the Dudley Lab at PNRI offers hope for a brighter future for infants with life-threatening metabolic diseases.

Children's Hospital of Orange County (CHOC) Appoints Jessica L. Miley Senior Vice President and Chief Development Officer

Retrieved on: 
Wednesday, April 26, 2023
Psychology, Park, Boston Children's Hospital, University, Miley Cyrus, Hospital trust, Charity Navigator, Organization, Children's National Hospital, National Association Medical Staff Services, Children's Hospital of Orange County, Hospital, Charity, Neuro, Health, Family, CHOC, Nursing, Management, Child

ORANGE, Calif., April 26, 2023 /PRNewswire/ -- Children's Hospital of Orange County (CHOC) has named Jessica L. Miley senior vice president and chief development officer.

Key Points: 
  • ORANGE, Calif., April 26, 2023 /PRNewswire/ -- Children's Hospital of Orange County (CHOC) has named Jessica L. Miley senior vice president and chief development officer.
  • Most recently, she served as chief operating officer for the Children's National Hospital Foundation in Washington, D.C.
  • In her role at CHOC, Miley will lead the CHOC Foundation and direct all fundraising and development programs that advance the mission and vision of Orange County's only pediatric healthcare system.
  • Doug Corbin, who has partnered with CHOC for over a decade and served as its senior vice president and chief development officer since 2019, is retiring.

VAN METRE COMPANIES TO HOST 31ST ANNUAL 5K RUN FOR CHILDREN'S NATIONAL HOSPITAL

Retrieved on: 
Wednesday, April 19, 2023
Van, K-Run's Park Me In First, U.S. News & World Report, Children's National Hospital, Neurosurgery, Patient, Risk, Van Meter, Cardiology, Health, Education, Neurology, CHD, News, Nursing, Child, Research

BROADLANDS, Va., April 19, 2023 /PRNewswire/ -- Van Metre Companies is set to host their 31st annual 5K Run supporting Children's National Hospital.

Key Points: 
  • BROADLANDS, Va., April 19, 2023 /PRNewswire/ -- Van Metre Companies is set to host their 31st annual 5K Run supporting Children's National Hospital.
  • Children's National has been a top-notch healthcare provider for kids, and we want to support their efforts.
  • Additionally, the generosity of our (Van Metre) relationships and the willingness of our employees to donate their time make it a well-run and enjoyable event.
  • Established in 1992 to benefit Children's National Hospital, the Van Metre 5K Run has raised over $2.9 million.

HI-Bio Appoints Industry Veterans Uptal Patel, M.D., as Chief Medical Officer and Sunil Agarwal, M.D., as Board Member

Retrieved on: 
Tuesday, April 18, 2023
Juno, Duke University, Gilead Sciences, Executive, Tufts University School of Medicine, Biotechnology, DSM-IV codes, University, Metabolism, Nephrology, University of California, San Francisco, ARCH Venture Partners, University of California, San Diego, Genentech, Child, AstraZeneca, Children's National Hospital, Research and development, Biochemistry, Duke University School of Medicine, Development, Partner, Patient, Manufacturing execution system, SAN, Agrawal, Clinical research, Kidney, Medicine, Neuroscience, City of Hope National Medical Center, Faculty, Juno Therapeutics, Therapy, Cornell University, ERT (company), Kidney disease, Disease, Pharmaceutical industry, Vaccine, Nursing, Management, Ultragenyx, Chemistry, Sofinnova, Research

The company also announced that Sunil Agarwal, M.D., has been appointed to the Company's Board of Directors.

Key Points: 
  • The company also announced that Sunil Agarwal, M.D., has been appointed to the Company's Board of Directors.
  • "In particular, his deep experience in nephrology will help us accelerate our clinical programs in Primary Membranous Nephropathy, and across the immune-mediated disease landscape.
  • "This is a very exciting time to join HI-Bio, following the recent positive results from two studies of felzartamab," said Uptal Patel, M.D., Chief Medical Officer at HI-Bio.
  • Agarwal was most recently Executive Vice President, Head of Development and Chief Medical Officer at Sana Biotechnology.

American College of Lifestyle Medicine's Health Equity Initiative Expands Priorities to Include Federally Qualified Health Centers

Retrieved on: 
Thursday, March 30, 2023
CME, Workforce, Obesity, Lifestyle medicine, Pediatrics, Initiative, Health equity, St. Cloud VA Health Care System, Type 2 diabetes, Innovation, MBA, Medicine, Essential, Child, Health system, Doctor of Philosophy, Howard University College of Medicine, Harvard Medical School, DNP, UIM, Federally Qualified Health Center, ACLM, Liaquat National Hospital, George Washington School, Children's National Hospital, White House conference, Patient, Risk, Physician, Outline of health sciences, Faculty, HEAL, American College, Health, Food, Conference, Community, Conditional sentence, Pharmaceutical industry, Nursing, Management, FAAP, MD, Hunger, MPH

ST. LOUIS, March 30, 2023 /PRNewswire-PRWeb/ -- The American College of Lifestyle Medicine's (ACLM) HEAL (Health Equity Achieved through Lifestyle Medicine) Initiative announced today an additional strategic priority to continue addressing the needs of historically underserved groups that are at a higher risk for chronic disease. Effective April 1, 2023, HEAL leadership will add a focus on integrating lifestyle medicine into Federally Qualified Health Centers (FQHCs) and Community Health Centers (CHCs).

Key Points: 
  • ST. LOUIS, March 30, 2023 /PRNewswire-PRWeb/ -- The American College of Lifestyle Medicine's (ACLM) HEAL (Health Equity Achieved through Lifestyle Medicine) Initiative announced today an additional strategic priority to continue addressing the needs of historically underserved groups that are at a higher risk for chronic disease.
  • Effective April 1, 2023, HEAL leadership will add a focus on integrating lifestyle medicine into Federally Qualified Health Centers (FQHCs) and Community Health Centers (CHCs).
  • An important element of this new strategy is ACLM's 5.5-hour CME/CE-accredited complimentary course, "Introduction to Lifestyle Medicine & Food as Medicine Essentials" course bundle.
  • Each leader has laudable experience and has demonstrated their passion for health equity and lifestyle medicine.

CathVision Announces Key Milestones in Advance of ECGenius Commercial Launch

Retrieved on: 
Tuesday, March 28, 2023
University of Vermont Medical Center, Extended play, Heart Rhythm Society, Cleveland Clinic, University, Johns Hopkins Hospital, HRS, Intellectual property, Atrial fibrillation, Lehigh Valley Health Network, Research, AZ, Houston Methodist Hospital, IP, Progress, Ghent University Hospital, Indiana University Health Methodist Hospital, NYU Langone Health, Children's National Hospital, Signal, Hospital, Patient, Patent, Electrophysiology, EP, Diagnosis, AF, Methodist Hospital, FDA, Arrhythmia, Indiana University Health, RF, Medical device, Sales, Rigshospitalet

COPENHAGEN, Denmark, March 28, 2023 /PRNewswire/ -- CathVision, a medical technology company developing innovative electrophysiology solutions designed to enhance clinical decision-making in the EP lab, is proud to announce the achievement of significant milestones demonstrating both the clinical and commercial success of the ECGenius™ System.1 The ECGenius System is an innovative EP recording technology that includes a proprietary hardware amplifier allowing electrophysiologists to acquire high-fidelity, low-noise cardiac electrograms to improve the diagnosis and treatment of complex atrial arrhythmias such as atrial fibrillation (AF).

Key Points: 
  • Leading electrophysiologists at these hospitals have recognized ECGenius' ability to provide clear signal data that helps clinicians identify, diagnose, and treat complex cardiac arrhythmias.
  • Strengthened Intellectual Property (IP) Portfolio: CathVision's core IP is centered on both low-noise inventions (ECGenius System) and algorithm innovation (CARDIALYTICS).
  • This attention further solidifies ECGenius System's place as an exciting technology that will advance the field of electrophysiology.
  • For more information about the ECGenius System, please visit the CathVision website or email [email protected] .