Settlement with family of Henrietta Lacks is an opportunity to reflect on inequalities in genetic research
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Friday, August 4, 2023
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It was also the day the Lacks family reached a settlement with Thermo Fisher Scientific, the biotech company that used and profited from her “HeLa” cells.
Key Points:
- It was also the day the Lacks family reached a settlement with Thermo Fisher Scientific, the biotech company that used and profited from her “HeLa” cells.
- Though the details remain confidential, this settlement is a long-awaited moment of justice and victory for Lacks and her family.
- However, the inequalities suffered by Lacks remain problems of the present.
Henrietta Lacks’s story
- Her cells were taken and retained for research purposes by white physicians and researchers at the hospital.
- It was Rebecca Skloot’s 2010 book The Immortal Life of Henrietta Lacks that drew attention to Lacks’s story and highlighted the racialized and patriarchal nature of medical ethics and research practices.
- Advocates — mainly people of colour — used the pandemic and subsequent COVID-19 vaccine developments to bring Lacks’s story back to life.
Not just her: Other stories of inequality
- Moore had hairy cell leukemia and, as part of his treatment, underwent a splenectomy at the University of California Los Angeles Medical Centre in 1976.
- Like Lacks’s, Moore’s cells had been unknowingly and unlawfully processed and patented as the “Mo” cell line.
- This violated the Havasupai’s consent agreement and had deeper repercussions, as these topics were considered taboo by the tribe.
The fight isn’t over yet
- But it should also serve as a reminder that the fight for a fairer and more equitable framework of medical ethics and genetic research is not over.
- Genetic materials are generally treated like any other objects and little to no consideration is given to the person.