PatientsLikeMe Shares Amyotrophic Lateral Sclerosis (ALS) Data to Expand PRO-ACT Database
Retrieved on:
Wednesday, May 17, 2023
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With this collaboration, the company’s outcomes-rich data is now freely available to the international research community.
Key Points:
- With this collaboration, the company’s outcomes-rich data is now freely available to the international research community.
- This dataset will be a significant addition to Pooled Resource Open-Access ALS Clinical Trials (PRO-ACT) database comprising anonymized data from 29 clinical trials and 11,685 patient-records.
- With this arrangement, data from over 14 thousand people living with ALS comprising the PLM ALS database will be a substantial enhancement available to ALS researchers like PRO-ACT.
- “ALS is a devastating disease that is an integral part of our founding story,” said Chris Renfro-Wallace , Chief Operating Officer at PatientsLikeMe.