Disability in Canada

Sevita Expands Supportive Living and Day Center Services in Seven States

Wednesday, October 27, 2021 - 2:00pm

BOSTON, Oct. 27, 2021 /PRNewswire/ -- Sevita ,a national provider of community-based health care and support services, today announced the acquisition of multiple Help at Home supportive living and day center services into the company's offerings.

Key Points: 
  • BOSTON, Oct. 27, 2021 /PRNewswire/ -- Sevita ,a national provider of community-based health care and support services, today announced the acquisition of multiple Help at Home supportive living and day center services into the company's offerings.
  • With this expansion, Sevita reaffirms its position as a leading provider of whole person centered care and supportive living services for people with intellectual and developmental disabilities.
  • "We are proud to welcome care teams and individuals served through Help at Home's supportive living, shared living, periodic and day center services into the Sevita continuum of care," said William McKinney, Chief Executive Officer of Sevita.
  • As part of this acquisition, Sevita will expand its offerings to include an additional 379 residential, supportive living, and day center programs in 162 towns, across seven states.

Fidelity® Study: More Than 4 in 10 Working Caregivers May Be Forced to Choose Between Their Job and Caregiving in the Coming Year

Wednesday, October 27, 2021 - 1:30pm

Perhaps as a result, more than 4 out of 10 (43%) working caregivers may be forced to choose between job and caregiving responsibilities in the coming year.

Key Points: 
  • Perhaps as a result, more than 4 out of 10 (43%) working caregivers may be forced to choose between job and caregiving responsibilities in the coming year.
  • The latest findings represent a follow-up to Fidelitys American Caregivers study , released earlier in 2021, which examined the emotional and financial costs of caregiving.
  • And yet, only 40% of working caregivers who were eligible said they asked their employer about resources to help with caregiving needs.
  • Previous conversations on the topic of caregiving include Planning for Caregiving , The Hidden Costs of Caregiving , and Moms and Money .

Emmaus Life Sciences Submits Application for U.A.E. Marketing Authorization for Endari®

Tuesday, October 26, 2021 - 1:23pm

TORRANCE, Calif., Oct. 26, 2021 /PRNewswire/ -- Emmaus Life Sciences, Inc. (OTC: EMMA) a commercial-stage biopharmaceutical company and leader in the treatment of sickle cell disease, today announced the submission of its application for marketing authorization of Endari® to the United Arab Emirates (U.A.E.) Ministry of Health. Review of the application is expected to take 10 to 12 months. During the review period, Endari may be prescribed in the U.A.E. on a named patient, or early access, basis.

Key Points: 
  • TORRANCE, Calif., Oct. 26, 2021 /PRNewswire/ --Emmaus Life Sciences, Inc. (OTC: EMMA)a commercial-stage biopharmaceutical company and leader in the treatment of sickle cell disease, today announced the submission of its application for marketing authorization of Endari to the United Arab Emirates (U.A.E.)
  • Emmaus estimates that as many as 600 sickle cell disease patients live or work in the U.A.E.
  • and approximately 225,000 sickle cell disease patients throughout the Middle East North Africa (MENA) region who could potentially be treated with Endari.
  • Emmaus Life Sciences, Inc. is a commercial-stage biopharmaceutical company and leader in the treatment of sickle cell disease.

Disability Inclusion Expert Dr. Jennifer Camota Luebke Joins PRIDE Industries as Chief Rehabilitation Officer

Monday, October 25, 2021 - 6:23pm

Roseville, Calif., Oct. 25, 2021 (GLOBE NEWSWIRE) -- PRIDE Industries has announced the addition of Dr. Jennifer Camota Luebke as Chief Rehabilitation Officer.

Key Points: 
  • Roseville, Calif., Oct. 25, 2021 (GLOBE NEWSWIRE) -- PRIDE Industries has announced the addition of Dr. Jennifer Camota Luebke as Chief Rehabilitation Officer.
  • "PRIDE Industries is a pioneer in vocational rehabilitation and employment support services, said Jeff Dern, President and CEO of PRIDE Industries.
  • In 2017, Camota Luebke was recognized with a Jefferson Award for Public Service for her volunteer work and academic research in disability inclusion.
  • PRIDE Industries proves the value of its inclusive workforce model through operational success across multiple industries every day.

Loulou Foundation Announces Launch of Pre-Competitive Industry Collaboration for CDKL5 Deficiency Disorder Observational Study

Monday, October 25, 2021 - 1:00pm

The Loulou Foundation, a private foundation dedicated to the development of therapeutics for the neurodevelopmental condition CDKL5 Deficiency Disorder (CDD), announced today that seven biopharmaceutical industry partners together with the Loulou Foundation have formed a pre-competitive consortium to direct a key clinical study for the development of disease-modifying therapeutics for CDD.

Key Points: 
  • The Loulou Foundation, a private foundation dedicated to the development of therapeutics for the neurodevelopmental condition CDKL5 Deficiency Disorder (CDD), announced today that seven biopharmaceutical industry partners together with the Loulou Foundation have formed a pre-competitive consortium to direct a key clinical study for the development of disease-modifying therapeutics for CDD.
  • The seven partners will share the funding and governance of a three-year observational study with CDD patients, the Clinical Assessment of NeuroDevelopmental measures In CDD (CANDID) study.
  • The Loulou Foundation will serve as the study coordinator, and the study will involve CDD clinical centers worldwide.
  • CDKL5 Deficiency Disorder (CDD) is a neurodevelopmental disorder caused by loss-of-function mutations in the CDKL5 gene, which encodes a kinase necessary for the proper function of neurons.

Taysha Gene Therapies Announces Publication of Positive Proof-of-Concept Preclinical Data for an AAV-mediated UBE3A Gene Replacement Approach Demonstrating Therapeutic Potential for The Treatment of Angelman Syndrome in the Journal JCI Insight

Monday, October 25, 2021 - 12:00pm

Angelman syndrome (AS) is a monogenic neurodevelopmental disorder caused by deletions or mutations in the maternal ubiquitin protein ligase E3A (UBE3A) gene.

Key Points: 
  • Angelman syndrome (AS) is a monogenic neurodevelopmental disorder caused by deletions or mutations in the maternal ubiquitin protein ligase E3A (UBE3A) gene.
  • We are highly encouraged by our preclinical data demonstrating recovery in motor performance, epilepsy, and anatomical markers, supporting the potential of UBE3A gene replacement for the treatment of Angelman syndrome.
  • Tayshas UBE3A gene replacement therapy is a cerebrospinal fluid-delivered AAV vector enabling dual isoform UBE3A expression for the treatment of Angelman syndrome.
  • In preclinical mouse models of Angelman syndrome, AAV-mediated UBE3A gene replacement recapitulated endogenous UBE3A isoform expression and UBE3A subcellular expression in neurons.

Nourish for Caregivers Supports Recommendations for Improved Recognition and Support of Family Caregivers

Wednesday, October 20, 2021 - 2:02pm

WASHINGTON, Oct. 20, 2021 /PRNewswire/ --A congressionally mandated council that received input from Nourish for Caregivers delivered recommendations on how to better support family caregivers.

Key Points: 
  • WASHINGTON, Oct. 20, 2021 /PRNewswire/ --A congressionally mandated council that received input from Nourish for Caregivers delivered recommendations on how to better support family caregivers.
  • The RAISE (Recognize, Assist, Include, Support, and Engage) Family Caregiving Advisory Council comprised of family caregivers, healthcare experts and others developed the recommendations after a two-year, multifaceted effort with support and input from Nourish for Caregivers.
  • Engaging family caregivers as partners in healthcare and long-term services and supportto better integrate family caregivers into healthcare processes and systems.
  • Supporting financial and workplace security for family caregivers to decrease theimpact family caregiving can have on the financial well-being and professional lives of caregivers.

Pure Earth Receives $8 Million to Expand Work to Solve the Global Lead Poisoning Crisis

Tuesday, October 19, 2021 - 8:00pm

We are pleased to announce that GiveWell recommended an incubation grant of $8 million to Pure Earth to expand work on addressing lead poisoning.

Key Points: 
  • We are pleased to announce that GiveWell recommended an incubation grant of $8 million to Pure Earth to expand work on addressing lead poisoning.
  • The grant will also be part of the Protecting Every Childs Potential (PECP) initiative , founded in 2020 by Pure Earth, Clarios Foundation and UNICEF to prevent childrens exposure to lead.
  • The grant will expand Pure Earths work combatting lead poisoning over the next three years to:
    Identify likely sources of lead exposure in 25 low- and middle-income countries;
    Implement interventions to reduce lead exposure from key sources;
    Conduct baseline and endline analyses of blood lead levels to evaluate the effectiveness of the interventions.
  • Pure Earth has addressed toxic pollution in over 120 project locations through assessment, remediation, risk mitigation, awareness raising and more.

One Way to End the Hiring Crisis? Employ People with IDD

Tuesday, October 19, 2021 - 5:35pm

Dr. Craig Escud, President of IntellectAbility , says, "People with intellectual and developmental disabilities (IDD) can be valuable assets to our workforce.

Key Points: 
  • Dr. Craig Escud, President of IntellectAbility , says, "People with intellectual and developmental disabilities (IDD) can be valuable assets to our workforce.
  • (5) Perhaps most notably, a caf in Middletown, NJ, is staffed almost entirely by adults with IDD.
  • The owners, whose daughter has Down Syndrome, employ 34 adults with IDD and 4 with neurotypical disability.
  • (6)
    "As an employer myself, I would tell other employers that the vast majority of folks with IDD are typically more dependable, honest, and have way more desire to please than those without IDD.

ProActive Solutions Celebrates 25 Years by Giving Back

Tuesday, October 19, 2021 - 1:12pm

MISSION, Kan., Oct. 19, 2021 /PRNewswire/ --ProActive Solutions, one of the leading IT solutions providers in Kansas City celebrated their 25 years in business by giving $2500 to five charitable organizations.

Key Points: 
  • MISSION, Kan., Oct. 19, 2021 /PRNewswire/ --ProActive Solutions, one of the leading IT solutions providers in Kansas City celebrated their 25 years in business by giving $2500 to five charitable organizations.
  • ProActive Solutions celebrated their 25 years in business in Kansas by giving $2500 to five charitable organizations.
  • During the check presentation ceremony, Kimberly Fry, Director of Marketing and Events at ProActive Solutions said, "ProActive Solutions is proud to be a company that cares about the community where it has its roots.
  • Many of our employees live and work close to our headquarters in Mission, Kansas and they power our passion to design solutions for our customers."