American Kidney Fund Will Host Cystinosis Camp as Part of National Virtual Camp for Children and Teens with Kidney Disease
ROCKVILLE, Md., May 08, 2023 (GLOBE NEWSWIRE) -- This fall, the American Kidney Fund will be offering special programming specifically for children with cystinosis during its much-loved national virtual camp for children and teens with kidney disease.
- ROCKVILLE, Md., May 08, 2023 (GLOBE NEWSWIRE) -- This fall, the American Kidney Fund will be offering special programming specifically for children with cystinosis during its much-loved national virtual camp for children and teens with kidney disease.
- The camp provides an opportunity for children and teens with kidney disease to participate in fun activities, as well as share their experiences with other children who are also battling kidney disease.
- Cystinosis is a rare genetic condition that occurs in about 1 in 100,000-200,000 children and is not widely known or understood.
- The campers will participate in the regularly scheduled National Virtual Camp and will be invited to join two one-hour networking programs exclusively for children and teens with cystinosis.