New Effort Sheds Light on Burdens and Benefits of Parkinson's Care Partner Experience, Offers Insights for Navigating Journey
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Thursday, November 3, 2022
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"Findings from the survey show the impact Parkinson's can have on a person cast in the role of care partner, a role many feel ill-prepared for.
Key Points:
- "Findings from the survey show the impact Parkinson's can have on a person cast in the role of care partner, a role many feel ill-prepared for.
- This effort builds on earlier research conducted in 2020 that deepened our understanding of PD care partner needs, leading to new education and support programs from the advocacy community.
- Care partners also reported being a central part of their loved one's healthcare team both inside and outside of medical appointments.
- Care partners face challenges from navigating relationship dynamics to managing mounting household tasks to playing a critical role in medical care.