Ice Bucket Challenge

The ALS Association Announces Inaugural 'ALS Nexus' Conference

Retrieved on: 
Friday, March 22, 2024

 ARLINGTON, Va., March 22, 2024 /PRNewswire/ -- The ALS Association, the leading national non-profit organization dedicated to fighting ALS on every front, is excited to announce its inaugural ALS Nexus Conference, taking place July 14-17, 2024 at The Gaylord Texan Resort & Conference Center in Grapevine, Texas.

Key Points: 
  • First-of-Its-Kind Gathering Will Convene People Living with ALS, Along with Leaders in ALS Research, Advocacy, and Care
    ARLINGTON, Va., March 22, 2024 /PRNewswire/ -- The ALS Association, the leading national non-profit organization dedicated to fighting ALS on every front, is excited to announce its inaugural ALS Nexus Conference , taking place July 14-17, 2024 at The Gaylord Texan Resort & Conference Center in Grapevine, Texas.
  • First-of-Its-Kind Gathering Will Convene People Living with ALS, Along with Leaders in ALS Research, Advocacy, and Care
    The ALS Association is committed to making ALS a livable disease for everyone, everywhere, until there's a cure.
  • "ALS Nexus represents a significant step forward in our efforts to transform the experience of living with ALS," stated Nicole Eck, chief strategy officer.
  • Don't miss your chance to be part of the movement changing the future of ALS, register now for the inaugural ALS Nexus Conference .

Groundbreaking Nonprofit, CureALS Founded and Launched by Former NCR Chairman and CEO Bill Nuti to Eradicate ALS

Retrieved on: 
Friday, June 2, 2023

CureALS, a pioneering nonprofit organization dedicated to eliminating ALS (Amyotrophic Lateral Sclerosis) and other complex neurodegenerative diseases such as Alzheimer’s, Parkinson’s, and Frontotemporal Dementia, has officially launched today.

Key Points: 
  • CureALS, a pioneering nonprofit organization dedicated to eliminating ALS (Amyotrophic Lateral Sclerosis) and other complex neurodegenerative diseases such as Alzheimer’s, Parkinson’s, and Frontotemporal Dementia, has officially launched today.
  • In addition, the number of ALS cases worldwide is projected to soar from 223,000 in 2015 to a staggering 377,000 in 2040, representing an increase of 69%.
  • In the words of one of the foremost neurologists and ALS researchers, Dr.
  • In 2014 the Ice Bucket Challenge raised an impressive $115 million for ALS research and sparked widespread public awareness.

Synchrony Employees Take Polar Plunge for Charity

Retrieved on: 
Thursday, February 9, 2023

STAMFORD, Conn., Feb. 9, 2023 /PRNewswire/ -- Synchrony (NYSE: SYF), a premier consumer financial services company, began 2023 with a big splash with its eighth annual "Doubles Dive." More than 160 employees, including Brian Doubles, President and CEO of Synchrony, participated in the event on February 9, plunging into the chilly waters of the Long Island Sound to raise money for charity.  The water temperature for the day was hovering around 39.4 degrees. 

Key Points: 
  • STAMFORD, Conn., Feb. 9, 2023 /PRNewswire/ -- Synchrony (NYSE: SYF), a premier consumer financial services company, began 2023 with a big splash with its eighth annual "Doubles Dive."
  • More than 160 employees, including Brian Doubles , President and CEO of Synchrony, participated in the event on February 9, plunging into the chilly waters of the Long Island Sound to raise money for charity.
  • The event, which was started by Doubles in 2015, has grown companywide, with employees taking part through diving, donating or participating in an Ice Bucket Challenge.
  • This year, Synchrony and its employees have raised and matched more than $180,000 to the nonprofit and have collectively raised more than $1 million since 2016 to various charities.

Promise Kept: MrBeast, Mark Rober & #TeamTrees Campaign Successfully Plant 20 Million Trees

Retrieved on: 
Tuesday, October 25, 2022

Superstar YouTubers MrBeast (107M+ subscribers) and Mark Rober (22M+ subscribers) announced today that their #TeamTrees charity campaign has successfully planted more than 20 million trees around the world.

Key Points: 
  • Superstar YouTubers MrBeast (107M+ subscribers) and Mark Rober (22M+ subscribers) announced today that their #TeamTrees charity campaign has successfully planted more than 20 million trees around the world.
  • The achievement fulfills the campaigns founding promise to plant 20 million trees by the end of 2022 one tree planted for every dollar donated by supporters.
  • View the full release here: https://www.businesswire.com/news/home/20221025005474/en/
    #TeamTrees has successfully planted more than 20 million trees around the world (Photo: #TeamTrees)
    The 20 million trees confirmed today have been planted in 30 countries and 11 U.S. states through an ongoing planting partnership with the Arbor Day Foundation.
  • The campaign was inspired by a MrBeast fan on Reddit, who suggested that the creator plant 20 million trees to celebrate reaching 20 million YouTube subscribers.

FDA Approves First ALS Treatment Funded by Ice Bucket Challenge

Retrieved on: 
Friday, September 30, 2022

WASHINGTON, Sept. 29, 2022 /PRNewswire-PRWeb/ -- FDA Approves First ALS Treatment Funded by Ice Bucket Challenge

Key Points: 
  • The new treatment was funded by donations from the Ice Bucket Challenge, the 2014 social media phenomenon that swept the globe, with 17 million participants raising $115 million for the ALS Association.
  • Added Balas: "We are thinking of Pat Quinn and Pete Frates, who championed the Ice Bucket Challenge and changed the trajectory of ALS forever."
  • Balas said: "The approval of AMX0035 is further proof of how the Ice Bucket Challenge dramatically accelerated the fight against ALS.
  • Since the Ice Bucket Challenge, the ALS Association has spent over $127 million on ALS research and is currently funding 130 research projects in 12 countries.

American Cancer Society Recognizes America's Preferred Home Warranty as #36 Fundraising Team Nationwide

Retrieved on: 
Friday, September 2, 2022

JACKSON, Mich., Sept. 2, 2022  /PRNewswire-PRWeb/ -- The American Cancer Society (ACS) recognized Team America's Preferred Home Warranty (APHW) with Nationwide Team Excellence August 21 for raising over $63,000 for the Relay for Life 2020-21 fundraising year, placing 36th across the country.

Key Points: 
  • The American Cancer Society (ACS) recognized Team America's Preferred Home Warranty (APHW) with Nationwide Team Excellence August 21 for raising over $63,000 for the Relay for Life 2020-21 fundraising year, placing 36th across the country.
  • JACKSON, Mich., Sept. 2, 2022 /PRNewswire-PRWeb/ -- The American Cancer Society (ACS) recognized Team America's Preferred Home Warranty (APHW) with Nationwide Team Excellence August 21 for raising over $63,000 for the Relay for Life 2020-21 fundraising year, placing 36th across the country.
  • Bachman served as an active team member on the 2020-21 team under then-Team Captain and APHW Copywriter Cara Baker, helping to raise a total of $63,770.89.
  • Fundraisers primarily focused on participation within the company, including an Ice Bucket Challenge of company leadership that raised more than $3,000.

NHF Issues Call to Action for Its Seven Second Freeze Challenge During June’s Migraine and Headache Awareness Month

Retrieved on: 
Tuesday, May 31, 2022

Chicago, May 31, 2022 (GLOBE NEWSWIRE) -- The National Headache Foundation (NHF) issued a call to action for Americans to drink and donate as part of its Seven Second Freeze Challenge to boost awareness and research for headache disorders and migraine disease.

Key Points: 
  • Chicago, May 31, 2022 (GLOBE NEWSWIRE) -- The National Headache Foundation (NHF) issued a call to action for Americans to drink and donate as part of its Seven Second Freeze Challenge to boost awareness and research for headache disorders and migraine disease.
  • The Seven Second Freeze Challenge is designed to draw awareness to the impact that migraine and headache disorders has on more than 40 million American adults.
  • Dabertin hopes groups use the Seven Second Freeze Challenge at public events (fairs, festivals, concerts, sporting events, etc.).
  • The mechanics of the challenge are simple:
    Participants will video themselves taking the Seven Second Freeze Challenge by drinking a frozen drink in 7 seconds.

Northampton Police and Fire Departments Host an Ice Bucket Challenge to Benefit the ALS Association Massachusetts Chapter

Retrieved on: 
Tuesday, April 19, 2022

The free event begins at noon and serves as a kick-off fundraiser for The ALS Association Massachusetts Chapter Western Massachusetts Walk to Defeat ALS on September 11.

Key Points: 
  • The free event begins at noon and serves as a kick-off fundraiser for The ALS Association Massachusetts Chapter Western Massachusetts Walk to Defeat ALS on September 11.
  • All proceeds provide vital no-cost care services for families across Massachusetts battling ALS, including access to physical and mental health resources, technology equipment, and more.
  • For more information about the 2022 Western Massachusetts Walk to Defeat ALS, follow The ALS Association Massachusetts Chapter on social media: Facebook @ALSMASS, Instagram @alsa_ma, and Twitter @ALSAMA.
  • The Massachusetts Chapter of the ALS Association was founded on January 27, 1990 to build and empower the community through continuous engagement with family, friends and neighbors.

Minnesota Commits $25 Million for ALS Research and Caregiving

Retrieved on: 
Tuesday, April 5, 2022

We are especially grateful to Senator Tomassoni for his courage and commitment to secure the largest single state grant ever enacted to fund ALS research and caregiving.

Key Points: 
  • We are especially grateful to Senator Tomassoni for his courage and commitment to secure the largest single state grant ever enacted to fund ALS research and caregiving.
  • Under the legislation, Minnesota will disperse $20 million to the Minnesota Officer of Higher Education to award competitive research grants to scientists studying the prevention, treatment, causes or cures of ALS.
  • This funding offers some of the strongest research facilities the resources to take ALS research to the next level.
  • Since the Ice Bucket Challenge in 2014, The ALS Association has dedicated more than $118 million towards ALS research.

ALS Association Applauds Amylyx AMX0035 Announcement, Urges Swift FDA Approval

Retrieved on: 
Wednesday, September 15, 2021

The ALS Association's funding for AMX0035 was supported through donations received through the ALS Ice Bucket Challenge.

Key Points: 
  • The ALS Association's funding for AMX0035 was supported through donations received through the ALS Ice Bucket Challenge.
  • "We are excited that people with ALS may soon have another treatment option that will help make ALS livable," said Calaneet Balas, president and CEO of The ALS Association.
  • We thank everyone who advocated and shared their voice with the FDA and urge the agency to approve AMX0035 swiftly."
  • In September of 2020, The ALS Association and I AM ALS submitted over 50,000 signatures to the FDA calling on the agency to approve AMX0035.