In Sickness. Men and the Culture of Caregiving Launches as Podcast Sharing Powerful Stories of Male Caregivers
Episode 1 features the incredible story of John F. Crowley, former Genzyme executive, Amicus Therapeutics founding CEO and Executive Chairman, and incoming CEO of BIO. Crowley is best known for his role as an entrepreneur in the biotechnology industry following the 1998 diagnosis of his two youngest children with Pompe disease, a rare and often fatal neuromuscular disorder. His children’s diagnosis inspired him to co-found a biotech company to develop a treatment that he credits with ultimately saving his children’s lives. The Crowley family journey was chronicled in the book “The Cure: How a Father Raised $100 Million--and Bucked the Medical Establishment--in a Quest to Save His Children” by Geeta Anand and also depicted in the major motion picture “Extraordinary Measures” starring Harrison Ford, Brendan Fraser and Keri Russell.
- Episode 1 features the incredible story of John F. Crowley , former Genzyme executive, Amicus Therapeutics founding CEO and Executive Chairman, and incoming CEO of BIO.
- Men and the Culture of Caregiving will focus mostly on stories of male caregivers who have supported individuals with various diseases and medical conditions across all therapeutic areas including select cancers, ALS, Alzheimer’s, and numerous rare diseases.
- “As more men are identifying themselves as caregivers for their loved ones, it’s great there will be an avenue, like this podcast, for male caregivers to share their experiences,” said Marvell Adams, Jr. CEO, Caregiver Action Network.
- “We are looking forward to hearing what these caregivers have to say—as they continue to amplify the needs of the over 90 million caregivers in the US."