Scleroderma Research Foundation

Cool Comedy • Hot Cuisine: A Tribute to Bob Saget Raises More Than $1.2M for Scleroderma Research Foundation

Retrieved on: 
Friday, September 23, 2022

Some of the world's most talented performers generously donated their time to take to the stage to raise funds for the Scleroderma Research Foundation and to find a cure.

Key Points: 
  • Some of the world's most talented performers generously donated their time to take to the stage to raise funds for the Scleroderma Research Foundation and to find a cure.
  • Cool Comedy Hot Cuisine featured performances byHowie Mandel and Kevin Nealon, with Joel McHale leading the live auction.
  • As a longtime supporter and board member of Scleroderma Research Foundationthe country's first and leading nonprofit investor in medical research into sclerodermaBob Saget spearheaded Cool Comedy Hot Cuisine for 30 years.
  • The Scleroderma Research Foundation is focused on bringing the best minds in science together to find a cure for scleroderma.

Second Annual ILD Day to Drive Awareness of Interstitial Lung Disease on Sept. 14

Retrieved on: 
Wednesday, August 24, 2022

CHICAGO, Aug. 24, 2022 /PRNewswire/ -- Nine organizations are joining forces to present the second annual ILD Day on Wednesday, Sept. 14, to drive awareness of interstitial lung disease (ILD).

Key Points: 
  • CHICAGO, Aug. 24, 2022 /PRNewswire/ -- Nine organizations are joining forces to present the second annual ILD Day on Wednesday, Sept. 14, to drive awareness of interstitial lung disease (ILD).
  • PF can be seen in many types of ILD and the damage caused by ILD can be irreversible and worsen over time.
  • "The goal of ILD Day is to expand the understanding of ILD among patients and healthcare providers, and to share resources and support for those who are living with the disease."
  • ILD Day was created to drive awareness of interstitial lung disease (ILD) in 2021 and is recognized annually on the second Wednesday in September.

Cool Comedy • Hot Cuisine - A Tribute to Bob Saget Benefitting the Scleroderma Research Foundation

Retrieved on: 
Thursday, August 4, 2022

SAN FRANCISCO, Aug. 4, 2022 /PRNewswire/ -- The Scleroderma Research Foundation (SRF)—the country's first and leading nonprofit investor in medical research into scleroderma—announced today that Cool Comedy • Hot Cuisine will return for a special tribute to Bob Saget, who spearheaded the signature event for 30 years, on Wednesday, September 21, 2022, at 6:30 p.m. at the Beverly Wilshire. Hosted by Jimmy Kimmel, John Mayer, and Jeff Ross, Cool Comedy • Hot Cuisine is co-chaired by John Mayer, Kelly Rizzo, Jeff Ross, and SRF Board Member, Susan Feniger. Honoring the laughter that Saget inspired, as well as his work as a relentless champion for those affected by scleroderma, some of the world's most talented comedians and musicians are generously donating their time and will perform on stage to raise funds for the Scleroderma Research Foundation and to find a cure. Tickets, starting at $500, are now available. For more information, visit www.srfcure.org/cchc.

Key Points: 
  • "Bob worked tirelessly to support the Scleroderma Research Foundation, in honor of his sister," says Kelly Rizzo.
  • "I'm honored to be stepping into Bob's John Varvatos Converse sneakers to host the next Cool Comedy Hot Cuisine," adds Jeff Ross.
  • Since 1987, the SRF has hosted Cool Comedy Hot Cuisine, featuring the biggest names in comedy, to raise critical funds for research and awareness.
  • The Scleroderma Research Foundation is focused on bringing the best minds in science together to find a cure for scleroderma.

APIE Therapeutics Presented Preclinical Findings Supporting Activation of the Apelin Receptor as a Therapeutic Approach for Systemic Sclerosis

Retrieved on: 
Tuesday, August 2, 2022

APT-101 is an orally bioavailable small molecule that selectively and potently targets and activates APJ, thus acting upstream of factors that promote fibrosis, representing a potentially disease-modifying approach.

Key Points: 
  • APT-101 is an orally bioavailable small molecule that selectively and potently targets and activates APJ, thus acting upstream of factors that promote fibrosis, representing a potentially disease-modifying approach.
  • It is in preclinical development for the treatment of SSc-ILD and idiopathic pulmonary fibrosis (IPF).
  • Systemic sclerosis, sometimes referred to as systemic scleroderma, is a progressive systemic disease of unknown cause characterized by fibrotic scaring in major organ systems including the skin and kidneys.
  • Currently there are no disease modifying treatment for these patients, representing a critical unmet medical need for this orphan disorder.

Scleroderma Research Foundation Will Host Its Inaugural Virtual Patient Forum, "Collaborating For A Cure" for Scleroderma Awareness Month

Retrieved on: 
Thursday, May 12, 2022

SAN FRANCISCO, May 12, 2022 /PRNewswire/ --The Scleroderma Research Foundation (SRF) will host its inaugural Virtual Patient Forum, Collaborating for a Cure, on Wednesday, June 1, 2022, to kick-off Scleroderma Awareness Month.

Key Points: 
  • SAN FRANCISCO, May 12, 2022 /PRNewswire/ --The Scleroderma Research Foundation (SRF) will host its inaugural Virtual Patient Forum, Collaborating for a Cure, on Wednesday, June 1, 2022, to kick-off Scleroderma Awareness Month.
  • "As someone living with scleroderma, I know how challenging it can feel when searching for answers," adds Scleroderma Research Foundation Board Chairman Dr. Luke Evnin.
  • Following the patient forum and throughout Scleroderma Awareness Month, SRF will also hold its second annual #SayScleroderma campaign, which raises awareness about the complex disease by encouraging people to speak out.
  • The Scleroderma Research Foundation is the single largest investor in scleroderma research in the U.S., focused on bringing the best minds in science together to find a cure for scleroderma.

Skypod Supports the Memory of Bob Saget and the Scleroderma Research Foundation

Retrieved on: 
Saturday, January 15, 2022

LOS ANGELES, Jan. 14, 2022 /PRNewswire-PRWeb/ -- In loving memory of Bob Saget, A Scleroderma Champion, Board Member of the Scleroderma Research Foundation, and beloved friend, Skypod is pleased to announce their support of those diagnosed and surviving Scleroderma, and their families, with a $1.5 Million in Skypod Credits.

Key Points: 
  • LOS ANGELES, Jan. 14, 2022 /PRNewswire-PRWeb/ -- In loving memory of Bob Saget, A Scleroderma Champion, Board Member of the Scleroderma Research Foundation, and beloved friend, Skypod is pleased to announce their support of those diagnosed and surviving Scleroderma, and their families, with a $1.5 Million in Skypod Credits.
  • That's why it's so important to me that these families have Skypod, to hold onto those important memories for a lifetime," said Skypod Founder and CEO, Richard Jardine.
  • Innovative and one-of-a-kind, Skypod digital time capsules are simple to create and share for all occasions, especially useful during end-of-life planning.
  • Since our inception in 1987, we have grown to be the largest nonprofit investor in scleroderma research in the United States.

Scleroderma Research Foundation Announces $1.5M Matching Gift in Honor of Bob Saget

Retrieved on: 
Thursday, January 13, 2022

Saget passionately championed the Scleroderma Research Foundation since losing his sister to the disease in 1994.

Key Points: 
  • Saget passionately championed the Scleroderma Research Foundation since losing his sister to the disease in 1994.
  • "Bob was the anchor of our SRF family," says Joanne Gold, Executive Director of the Scleroderma Research Foundation.
  • All donations received in honor of Bob Saget this week and going forward will be put toward the match.
  • The Scleroderma Research Foundation is focused on bringing the best minds in science together to find a cure for scleroderma.

Scleroderma Research Foundation, Bob Saget, and Susan Feniger Announce Lineup for Cool Comedy • Hot Cuisine Streaming Live on October 17, 2021

Retrieved on: 
Tuesday, October 12, 2021

SAN FRANCISCO, Oct. 12, 2021 /PRNewswire/ -- The Scleroderma Research Foundation (SRF)the country's first and leading nonprofit investor in medical research into sclerodermaannounced the lineup for Cool Comedy Hot Cuisine, live on Sunday, October 17, 2021 at 5 p.m. PDT / 8 p.m. EDT.

Key Points: 
  • SAN FRANCISCO, Oct. 12, 2021 /PRNewswire/ -- The Scleroderma Research Foundation (SRF)the country's first and leading nonprofit investor in medical research into sclerodermaannounced the lineup for Cool Comedy Hot Cuisine, live on Sunday, October 17, 2021 at 5 p.m. PDT / 8 p.m. EDT.
  • In 2020, Cool Comedy Hot Cuisine went virtual for the first time since its inception in 1987.
  • The Scleroderma Research Foundation is focused on bringing the best minds in science together to find a cure for scleroderma.
  • The SRF was established in 1987 by patient-turned-activist Sharon Monsky, when research on this potentially life-threatening illness was nearly nonexistent.

Nine Organizations Team Up to Present First ILD Day on September 15 to Drive Awareness of Interstitial Lung Disease

Retrieved on: 
Tuesday, August 31, 2021

CHICAGO, Aug. 31, 2021 /PRNewswire/ -- To drive awareness of interstitial lung disease (ILD), nine organizations are collaborating to present the first-ever ILD Day on Wednesday, Sept. 15.

Key Points: 
  • CHICAGO, Aug. 31, 2021 /PRNewswire/ -- To drive awareness of interstitial lung disease (ILD), nine organizations are collaborating to present the first-ever ILD Day on Wednesday, Sept. 15.
  • Pulmonary fibrosis (PF) can be seen in many types of ILD, and there are more than 250,000 Americans living with PF and ILD.
  • ILD Day was created to drive awareness of interstitial lung disease (ILD).
  • ILD Day will be recognized with media outreach, social media communications, an educational webinar for patients and a survey to understand existing awareness.

Bob Saget and Susan Feniger host the first global edition of Cool Comedy - Hot Cuisine, raising $1.1M for the Scleroderma Research Foundation

Retrieved on: 
Tuesday, October 20, 2020

With many personal stories of how scleroderma has impacted their lives, each guest helped to amplify the vital work of SRF and itscommitment to finding a cure.

Key Points: 
  • With many personal stories of how scleroderma has impacted their lives, each guest helped to amplify the vital work of SRF and itscommitment to finding a cure.
  • As Bob Saget explains, his commitment is very personal;"I fortuitously became involved with the Scleroderma Research Foundation in 1992.
  • All funds raised benefit theScleroderma Research Foundation, and advance online registration to watch this unforgettable evening is required.
  • The word scleroderma literally means "hard skin," but the disease is much more, often affecting the internal organs with lethal consequences.