Patient participation

Health Union Launches First-Of-Its-Kind Patient Leader Certification Program

Retrieved on: 
Tuesday, July 25, 2023

PHILADELPHIA, July 25, 2023 /PRNewswire/ -- Health Union, the leader in social health, and the Society for Participatory Medicine (SPM), the preeminent organization in promoting true collaboration among patients, caregivers, and healthcare professionals, announced today the launch of Health Union's signature Patient Leader Certification Program.

Key Points: 
  • Program designed to boost patient leaders' credibility, increase their impact and amplify their voice
    PHILADELPHIA, July 25, 2023 /PRNewswire/ -- Health Union , the leader in social health, and the Society for Participatory Medicine (SPM), the preeminent organization in promoting true collaboration among patients, caregivers, and healthcare professionals, announced today the launch of Health Union's signature Patient Leader Certification Program .
  • As a leader in social health, Health Union's certification program will provide Patient Leaders - individuals who use their own health journey to raise awareness, share knowledge and help others - with the opportunity to develop a deeper understanding of industry best practices, ranging from health equity to FTC regulations.
  • The Society for Participatory Medicine was instrumental in various aspects of building the Patient Leader Certification Program, including curriculum design, testing and creating program lessons focused on participatory medicine and health equity.
  • The Patient Leader Certification Program is free for all members of the Social Health Network , Health Union's unique community expressly designed for patients, caregivers, and healthcare professionals.

OpenClinica CEO Cal Collins Chosen to Present at DIA 2023

Retrieved on: 
Tuesday, June 6, 2023

WALTHAM, Mass., June 6, 2023 /PRNewswire-PRWeb/ -- OpenClinica proudly announces CEO Cal Collins is speaking at the DIA 2023 Global Annual Meeting in Boston, MA, June 25-29. Collins, a steering committee member of the Vulcan Program, Health Level Seven's (HL7) newest Fast Healthcare Interoperability (FHIR) Accelerator, will discuss how SMART on FHIR is the key to unlocking real-world data. His session, SMART on FHIR: Integrating Electronic Health Records as Real-World Data, also includes:

Key Points: 
  • WALTHAM, Mass., June 6, 2023 /PRNewswire-PRWeb/ -- OpenClinica proudly announces CEO Cal Collins is speaking at the DIA 2023 Global Annual Meeting in Boston, MA, June 25-29.
  • DIA 2023 is the largest global multidisciplinary event for life sciences professionals.
  • For more information about Collins' DIA 2023 Session, June 27, 4:00 – 5:00 pm, click here .
  • To schedule a time to discuss SMART on FHIR with Collins and the OpenClinica team, visit: https://www.openclinica.com/contact-us/

Health Union, Society for Participatory Medicine Announce Collaboration to Empower Responsible Patient Leadership

Retrieved on: 
Wednesday, March 29, 2023

PHILADELPHIA, March 29, 2023 /PRNewswire/ -- Health Union, the leader in social health, and the Society for Participatory Medicine (SPM), the preeminent organization in promoting true collaboration among patients, caregivers and healthcare professionals, announce today that they are working together to develop initiatives that combine the organizations' shared mutual interest in responsible patient engagement and patient leadership.

Key Points: 
  • First-of-its-kind certification program will promote complementary social health, participatory medicine movements
    PHILADELPHIA, March 29, 2023 /PRNewswire/ -- Health Union , the leader in social health, and the Society for Participatory Medicine (SPM), the preeminent organization in promoting true collaboration among patients, caregivers and healthcare professionals, announce today that they are working together to develop initiatives that combine the organizations' shared mutual interest in responsible patient engagement and patient leadership.
  • "As Health Union continues to strengthen its reputation as the leader in social health and the model for responsible patient leadership, it is imperative for us to work with people who have like-minded goals," said Dr. Amrita Bhowmick, Health Union's chief community officer.
  • "The Society for Participatory Medicine is unmatched in its ability to effectively bring together the patient and HCP voices in a credible and impactful way."
  • "Because of their health conditions, patient leaders must learn how to most effectively collaborate with their health care professionals to manage their health, and they must teach their networks how to do the same."

NCCN Guidelines for Patients Win Award for Excellence in Cancer Patient Education from CPEN

Retrieved on: 
Wednesday, October 19, 2022

PLYMOUTH MEETING, Pa., Oct. 19, 2022 /PRNewswire/ -- The National Comprehensive Cancer Network® (NCCN®)—an alliance of leading cancer centers devoted to patient care, research, and education—has been named winner for the 2022 Excellence in Cancer Patient Education award from the Cancer Patient Education Network (CPEN). CPEN was originally founded with the National Cancer Institute (NCI) to promote and provide models of excellence in patient, family, and community education across the continuum of care. The now- non-profit professional organization continues to do this by bringing together educators, researchers, program managers and others to make sure cancer patients and their families can achieve optimum health outcomes.

Key Points: 
  • PLYMOUTH MEETING, Pa., Oct. 19, 2022 /PRNewswire/ -- The National Comprehensive Cancer Network ( NCCN )an alliance of leading cancer centers devoted to patient care, research, and educationhas been named winner for the 2022 Excellence in Cancer Patient Education award from the Cancer Patient Education Network (CPEN) .
  • NCCN's free breast cancer resources for patients and caregivers include a series of NCCN Guidelines for Patients books in multiple languages, plus animated videos and expert webinars.
  • The NCCN Guidelines for Patients provide expert cancer treatment information to inform and empower patients and caregivers, through support from the NCCN Foundation .
  • The NCCN Foundation empowers people with cancer and their caregivers by delivering unbiased expert guidance from the world's leading cancer experts through the library of NCCN Guidelines for Patientsand other patient education resources.

NCCN Guidelines for Patients Win Award for Excellence in Cancer Patient Education from CPEN

Retrieved on: 
Wednesday, October 19, 2022

PLYMOUTH MEETING, Pa., Oct. 19, 2022 /PRNewswire/ -- The National Comprehensive Cancer Network® (NCCN®)—an alliance of leading cancer centers devoted to patient care, research, and education—has been named winner for the 2022 Excellence in Cancer Patient Education award from the Cancer Patient Education Network (CPEN). CPEN was originally founded with the National Cancer Institute (NCI) to promote and provide models of excellence in patient, family, and community education across the continuum of care. The now- non-profit professional organization continues to do this by bringing together educators, researchers, program managers and others to make sure cancer patients and their families can achieve optimum health outcomes.

Key Points: 
  • PLYMOUTH MEETING, Pa., Oct. 19, 2022 /PRNewswire/ -- The National Comprehensive Cancer Network ( NCCN )an alliance of leading cancer centers devoted to patient care, research, and educationhas been named winner for the 2022 Excellence in Cancer Patient Education award from the Cancer Patient Education Network (CPEN) .
  • NCCN's free breast cancer resources for patients and caregivers include a series of NCCN Guidelines for Patients books in multiple languages, plus animated videos and expert webinars.
  • The NCCN Guidelines for Patients provide expert cancer treatment information to inform and empower patients and caregivers, through support from the NCCN Foundation .
  • The NCCN Foundation empowers people with cancer and their caregivers by delivering unbiased expert guidance from the world's leading cancer experts through the library of NCCN Guidelines for Patientsand other patient education resources.

CCA Health California Announces New Health Plan Benefits for 2023

Retrieved on: 
Tuesday, October 4, 2022

CERRITOS, Calif., Oct. 4, 2022 /PRNewswire/ -- CCA Health California, a leading integrated healthcare organization with proven expertise in complex care coordination, today announced new Medicare Advantage health plan benefits for 2023. The CCA Medicare Excel (HMO) plan, previously known as the Choice plan, will be available to residents in Santa Clara and San Joaquin counties who are 65 and over and eligible for Medicare. Members can pay $0 for a broad spectrum of medical and behavioral health services and can receive extra benefits that help cover prescriptions, vision care, over-the-counter health products, transportation, telehealth, and worldwide emergency care. Residents can enroll in the plan during the Medicare Annual Enrollment Period, between October 15 and December 7, 2022.

Key Points: 
  • "CCA Health California is singularly focused on helping our Medicare members thrive and live well as they age" said Wil Yu , General Manager of CCA Health California.
  • "Our 2023 plan benefits were designed to meet the unique needs of the communities we serve and to address the social factors that can impact health outcomes the most.
  • Current CCA Health California members will not have to enroll to take advantage of these benefits as their membership will automatically renew in January 2023.
  • CCA Health California operates Medicare Advantage plans in San Joaquin and Santa Clara counties, offering benefits and services designed for high-need populations.

NRC Health Announces Sponsorship of Creative Learning Event Series Hosted by the Society for Participatory Medicine

Retrieved on: 
Thursday, September 29, 2022

LINCOLN, Neb., Sept. 29, 2022 (GLOBE NEWSWIRE) -- NRC Health , the leading partner in building Human Understanding through personalized healthcare solutions and data-driven insights, today announced its sponsorship of the upcoming Creative Learning Event Series hosted by the Society for Participatory Medicine (SPM).

Key Points: 
  • LINCOLN, Neb., Sept. 29, 2022 (GLOBE NEWSWIRE) -- NRC Health , the leading partner in building Human Understanding through personalized healthcare solutions and data-driven insights, today announced its sponsorship of the upcoming Creative Learning Event Series hosted by the Society for Participatory Medicine (SPM).
  • Participatory Medicine is an industry movement that enables collaborative communication and information sharing among patients, caregivers, and healthcare professionals.
  • NRC Health is delighted to support the Society for Participatory Medicines inspired vision to foster true collaboration between patients and health professionals, said Dr. Gregory Makoul, Chief Transformation Officer at NRC Health.
  • We are excited to have NRC Health join the 2022 Conference Program as a sponsor in our Creative Learning Event Series, said Dr. Danny Sands, Chief Advocacy Officer at Society for Participatory Medicine.

Global Patient Portal Market to 2027 - COVID-19 Impact and Analysis - ResearchAndMarkets.com

Retrieved on: 
Tuesday, August 24, 2021

The "Patient Portal Market Forecast to 2027 - COVID-19 Impact and Global Analysis by Product, Delivery Mode, and End User and Geography" report has been added to ResearchAndMarkets.com's offering.

Key Points: 
  • The "Patient Portal Market Forecast to 2027 - COVID-19 Impact and Global Analysis by Product, Delivery Mode, and End User and Geography" report has been added to ResearchAndMarkets.com's offering.
  • However, concerns regarding data privacy is hindering the growth of the patient portal market.
  • The global patient portal market is segmented on the basis of product, delivery mode, and end user.
  • By delivery mode, the patient portal market is bifurcated into web-based delivery and cloud-based delivery.

Patients Rate their Clinical Trial Experience Positively, but Trial Locations Still Pose Barriers to Enrollment

Retrieved on: 
Tuesday, July 27, 2021

Our study found that individuals are generally pleased with their clinical trial experience, but organizers could benefit from working more closely with physicians and being strategic about trial locations to boost enrollment and increase accessibility.

Key Points: 
  • Our study found that individuals are generally pleased with their clinical trial experience, but organizers could benefit from working more closely with physicians and being strategic about trial locations to boost enrollment and increase accessibility.
  • Considering the patient experience in the design of clinical trials is essential, said Pam Cusick, Senior Vice President of Rare Patient Voice.
  • Even though personal physicians may not be directly involved in ongoing clinical trials, they do drive the majority of patient enrollment.
  • According to the survey, nearly half (48%) of respondents who had participated in a clinical trial found out about the trial through their physician.

PCORI approves $254 million to fund 28 new research studies addressing urgent health problems

Retrieved on: 
Tuesday, July 27, 2021

Four studies approved for a total of $33 million will assess interventions to improve care during pregnancy and after childbirth to reduce the higher rates of health problems among Black women and Latinas and their infants.

Key Points: 
  • Four studies approved for a total of $33 million will assess interventions to improve care during pregnancy and after childbirth to reduce the higher rates of health problems among Black women and Latinas and their infants.
  • The Patient-Centered Outcomes Research Institute (PCORI) is an independent nonprofit organization authorized by Congress in 2010.
  • Its mission is to fund research that will provide patients, their caregivers and clinicians with the evidence-based information needed to make better-informed health care decisions.
  • PCORI is committed to continuously seeking input from a broad range of stakeholders to guide its work.