The Hibbs Lupus Trust

The Lupus Release Alliance Awards 2021 Lupus Insight Prize to Immunologist Dr. Martin Kriegel

Retrieved on: 
Wednesday, June 9, 2021
Medical specialties, Medicine, Clinical medicine, Cutaneous lupus erythematosus, Lupus, William Osler, Autoimmunity, Lupus Canada, The Hibbs Lupus Trust

The prestigious Lupus Insight Prize recognizes outstanding researchers who have made a major discovery that promises to advance the understanding of lupus with a high likelihood of improving its diagnosis or treatment.

Key Points: 
  • The prestigious Lupus Insight Prize recognizes outstanding researchers who have made a major discovery that promises to advance the understanding of lupus with a high likelihood of improving its diagnosis or treatment.
  • Although existing research links alterations in the microbiome to autoimmunity, Dr. Kriegel is the first to identify a particular organism that breaks through the gut lining in lupus.
  • The Lupus Research Alliance is the largest non-governmental, non-profit funder of lupus research worldwide.
  • Because the Lupus Research Alliance's Board of Directors fund all administrative and fundraising costs, 100% of all donations goes to support lupus research programs.

Lupus Foundation of America Debuts New, Free Education Series - Lupus & You: Answers. Advocacy. Action

Retrieved on: 
Tuesday, March 23, 2021
Medical specialties, Lupus Foundation of America, Clinical medicine, Autoimmune diseases, Medicine, Lupus, Lupus Canada, The Hibbs Lupus Trust

WASHINGTON, March 23, 2021 /PRNewswire/ -- The Lupus Foundation of America is excited to launch its free, live educational series Lupus & You: Answers.

Key Points: 
  • WASHINGTON, March 23, 2021 /PRNewswire/ -- The Lupus Foundation of America is excited to launch its free, live educational series Lupus & You: Answers.
  • where people with lupus, their family members and friends can learn about the latest in lupus research and managing the disease.
  • Through a comprehensive program of research, education, and advocacy, we lead the fight to improve the quality of life for all people affected by lupus.
  • Learn more about the Lupus Foundation of America at lupus.org .

Two Out Of Three People with Lupus Would Take COVID-19 Vaccine, Shows LRA Survey

Retrieved on: 
Wednesday, December 16, 2020
Lupus, Academic journals, Publications, Lupus Foundation of America, Periodicals, The Hibbs Lupus Trust

Conducted October 19 - November 17, the national survey included 703 people with lupus and 63 of their family members and friends.

Key Points: 
  • Conducted October 19 - November 17, the national survey included 703 people with lupus and 63 of their family members and friends.
  • The fairness of the vaccine distribution is also questioned by 59% of respondents with lupus and 43% of those without lupus.
  • More than 90% of people with lupus are women; lupus most often strikes during the childbearing years of 15-45.
  • Because the Lupus Research Alliance's Board of Directors fund all administrative and fundraising costs, 100% of all donations goes to support lupus research programs.

Lupus Foundation of America Awarded New Multi-Million Dollar Grant to Increase Lupus Awareness, and Expand Self-management Resources and Services

Retrieved on: 
Monday, September 21, 2020
Medical specialties, Lupus Foundation of America, Clinical medicine, Medicine, Autoimmune diseases, Lupus, Rheumatology, Lupus Canada, The Hibbs Lupus Trust

"The Lupus Foundation of America has always been committed to providing wide-ranging support, educational resources, and comprehensive care programs and services to all those affected by lupus," said Stevan W. Gibson, president and CEO, Lupus Foundation of America.

Key Points: 
  • "The Lupus Foundation of America has always been committed to providing wide-ranging support, educational resources, and comprehensive care programs and services to all those affected by lupus," said Stevan W. Gibson, president and CEO, Lupus Foundation of America.
  • Since 2015, the Lupus Foundation of America has worked with the CDC as part of a grant from the agency on a multi-faceted, national initiative called PULSEPartners United for Sustainable Lupus Education.
  • The Lupus Foundation of America's work through PULSE has led to the development of programs and services benefitting people with lupus and the advancement of lupus awareness.
  • The Lupus Foundation of America will also work in collaboration with the American College of Rheumatology who was awarded funding for this grant.

Lupus Foundation of America Leads Nationwide Effort to Make Lupus Visible for Lupus Awareness Month

Retrieved on: 
Friday, May 1, 2020
Medical specialties, Health, Lupus Foundation of America, Medicine, Autoimmune diseases, Lupus, Systemic lupus erythematosus, The Hibbs Lupus Trust, Lupus Canada

This May for Lupus Awareness Month , the Lupus Foundation of America is urging the public to join the nationwide effort to Make Lupus Visible, and raise awareness and funds for this brutal disease.

Key Points: 
  • This May for Lupus Awareness Month , the Lupus Foundation of America is urging the public to join the nationwide effort to Make Lupus Visible, and raise awareness and funds for this brutal disease.
  • "The Lupus Foundation of America is on a mission to end the brutal impact of lupus, and raising awareness of the devastation that this disease can cause is incredibly important.
  • That's why raising awareness, funds and making lupus visible is so crucial this May for Lupus Awareness Month.
  • For more information on Lupus Awareness Month and how to get involved, visit www.lupus.org/lupus-awareness-month .

Lupus Research Alliance 2019 Breaking Through Gala Raises $3 Million for Lupus Research

Retrieved on: 
Tuesday, November 26, 2019
Medical specialties, Medicine, Health, Autoimmune diseases, Cutaneous lupus erythematosus, RTT, Systemic lupus erythematosus, William Osler, Lupus, Anti-SSA/Ro autoantibodies, Lupus Foundation of America, The Hibbs Lupus Trust

NEW YORK, Nov. 26, 2019 /PRNewswire/ --The Lupus Research Alliance (LRA) 2019 Breaking Through Gala gathered more than 600 members of the global lupus community last nightto raise $3 million, all of which goes directly to lupus research.

Key Points: 
  • NEW YORK, Nov. 26, 2019 /PRNewswire/ --The Lupus Research Alliance (LRA) 2019 Breaking Through Gala gathered more than 600 members of the global lupus community last nightto raise $3 million, all of which goes directly to lupus research.
  • "I have been given many great moments over the past 44 years, many of them representing the Lupus Research Alliance.
  • The Lupus Research Alliance is transforming the lives of people affected with lupus by financing the mostinnovative lupus research in the world.
  • Because the Lupus Research Alliance's Board of Directors fund all administrative and fundraising costs, 100% of all donations goes to support lupus research programs.

Dr. Daniel Wallace Appointed to Lupus Therapeutics Board of Directors

Retrieved on: 
Thursday, July 18, 2019
Medical specialties, Medicine, Health, Cutaneous lupus erythematosus, Autoimmune diseases, RTT, Systemic lupus erythematosus, Lupus, Lupus Foundation of America, The Hibbs Lupus Trust

NEW YORK, July 18, 2019 /PRNewswire/ --The Lupus Research Alliance(LRA) affiliate Lupus Therapeuticsis pleased to announce that Daniel Wallace, MD is joining its Board of Directors.

Key Points: 
  • NEW YORK, July 18, 2019 /PRNewswire/ --The Lupus Research Alliance(LRA) affiliate Lupus Therapeuticsis pleased to announce that Daniel Wallace, MD is joining its Board of Directors.
  • Lupus Therapeutics Executive Director Albert Roynoted, "We are very grateful that Dr. Wallace is joining our Board.
  • Lupus Therapeutics , an affiliate of the Lupus Research Alliance, aims to accelerate drug discovery and diagnostic innovation for all patients living with lupus.
  • Because the Lupus Research Alliance's Board of Directors fund all administrative and fundraising costs, 100% of all donations goes to support lupus research programs.

Lupus Foundation of America to Ring Closing Bell at Nasdaq to Raise Awareness of Lupus and the Importance of Early and Accurate Diagnosis

Retrieved on: 
Friday, June 7, 2019
Autoimmune diseases, Medical specialties, RTT, Medicine, Health, Cutaneous lupus erythematosus, Connective tissue diseases, Lupus Foundation of America, Systemic lupus erythematosus, Sjögren syndrome, LFA, The Hibbs Lupus Trust

WASHINGTON, June 7, 2019 /PRNewswire/ -- The Lupus Foundation of America (LFA) along with lupus warriors and supporters will ring the closing bell at the Nasdaq Stock Exchange today to raise awareness for lupus.

Key Points: 
  • WASHINGTON, June 7, 2019 /PRNewswire/ -- The Lupus Foundation of America (LFA) along with lupus warriors and supporters will ring the closing bell at the Nasdaq Stock Exchange today to raise awareness for lupus.
  • A core strategic outcome of the Lupus Foundation of America is to reduce the time to receiving an accurate lupus diagnosis.
  • A Lupus Foundation of America survey found that on average, it takes nearlysix years for people with lupus to be diagnosed, from the time they first notice their lupus symptoms.
  • The need for improved lab tests to diagnose lupus prompted the Lupus Foundation of America to support early research on the development of Cell-Bound Complement Activation Products or CB-CAPs.

‘A Vision for Lupus’ Report, Published Ahead of World Lupus Day, Highlights an Important Need to Improve Quality of Care for Lupus Patients

Retrieved on: 
Thursday, May 9, 2019
Health, Biotechnology, Genetics, Philanthropy, Research, Science, Foundation, Managed care, Medical specialties, Health, Medicine, Autoimmune diseases, RTT, Cutaneous lupus erythematosus, Systemic lupus erythematosus, Lupus, Rheumatology, Lupus Foundation of America, The Hibbs Lupus Trust, Neurological disorders

The report highlights the need for improvement in diagnosis, better multi-disciplinary management and the importance of clinical research in lupus.

Key Points: 
  • The report highlights the need for improvement in diagnosis, better multi-disciplinary management and the importance of clinical research in lupus.
  • The World Lupus Federation is a coalition of lupus patient organisations from around the world.
  • They are united with the mission to improve the quality of life for all people living with lupus.
  • Lupus.

People with lupus feel the disease greatly affects their emotional and mental well-being

Retrieved on: 
Thursday, May 9, 2019
Medical specialties, Medicine, Autoimmune diseases, Health, Cutaneous lupus erythematosus, RTT, Systemic lupus erythematosus, Lupus, Rheumatology, Neurological disorders, Lupus Foundation of America, The Hibbs Lupus Trust

About one-third of respondents noted the disease had at least 'some'effect.

Key Points: 
  • About one-third of respondents noted the disease had at least 'some'effect.
  • The survey also revealed that 8 in 10 people with lupus are interested in joining a support group that focuses on improving their emotional and mental well-being.
  • The psychological impact of lupus can be as devastating as its physical complications, which affects at least five million people worldwide.
  • The action calls include the need to raise awareness of clinical trials to facilitate participation by people with lupus, and programs to help people with lupus feel more acknowledged, understood and supported through their disease journey.