Down syndrome

21 & Change Appoints First Member to Their Board of Directors with Intellectual Disability

Retrieved on: 
Thursday, April 27, 2023

It's something we have wanted since our inception, and we are thrilled to have such an amazing new board member with Raquel.

Key Points: 
  • It's something we have wanted since our inception, and we are thrilled to have such an amazing new board member with Raquel.
  • "I'm so honored to have been invited to join the Board of Directors for 21 & Change.
  • According to 21 & Change Board Member Shannon McKallip Moss, the selection committee member who nominated Raquel added, " Raquel isn't the average high school student.
  • This woman, our daughter, and now a board member for 21 & Change is a warrior of optimism and is set on changing the world," Janet said.

Barbie® Introduces Its First Doll with Down Syndrome, Further Increasing Representation in the Toy Aisle

Retrieved on: 
Tuesday, April 25, 2023

The Barbie doll with Down syndrome is meant to inspire all children to tell more stories through play.

Key Points: 
  • The Barbie doll with Down syndrome is meant to inspire all children to tell more stories through play.
  • Doll play outside of a child’s own lived experience can teach understanding and build a greater sense of empathy, leading to a more accepting world.
  • “It was an honor working with Barbie on the Barbie doll with Down syndrome,” said Kandi Pickard, NDSS President and CEO.
  • “This means so much for our community, who for the first time, can play with a Barbie doll that looks like them.

The Supreme Court rules mifepristone can remain available – here's how 2 conflicting federal court decisions led to this point

Retrieved on: 
Saturday, April 22, 2023

The U.S. Supreme Court issued an emergency ruling on April 21, 2023, that allows continued access to the abortion pill mifepristone in states where abortion is legal.

Key Points: 
  • The U.S. Supreme Court issued an emergency ruling on April 21, 2023, that allows continued access to the abortion pill mifepristone in states where abortion is legal.
  • On April 7, two federal district court judges halfway across the country from each other issued conflicting rulings about the validity of the Food and Drug Administration’s approval of mifepristone.
  • Within a week, yet another court issued a third opinion, which allowed mifepristone to continue to be prescribed, but under more limited circumstances.

The federal system

    • It’s first useful to understand how the federal court system in the U.S. works.
    • State-run court systems are entirely separate from the federal judicial system, which is where the mifepristone rulings are playing out.
    • Federal courts handle a variety of issues, including those relating to the United States government, the Constitution or federal laws, or controversies between states or between the U.S. government and foreign governments.
    • There are 94 federal district courts, organized into 12 regional circuits.

Other examples

    • There are many other examples where federal circuit courts disagree.
    • In 2018, the 7th Circuit Court of Appeals, which serves Illinois, Indiana and Wisconsin, ruled that an Indiana state law that banned abortions based on genetic anomalies was not constitutional.
    • But in 2021, the 6th Circuit Court of Appeals upheld an Ohio law banning abortions based on one kind of genetic anomaly, Down syndrome.

The case of mifepristone

    • With this latest example of courts butting heads, Federal District Judge Matthew Kacsmaryk in Texas ruled first, on April 7.
    • His decision took the form of a preliminary injunction, which is essentially a temporary ruling, until the court has a chance to go through a full trial.
    • Kacsmaryk concluded that the FDA had exceeded its authority in approving mifepristone in 2000 and in loosening the prescribing restrictions over the years.

Where the issues stand

    • But that decision is only in effect while the case is being decided by the 5th Circuit.
    • And the situation gets even more complicated, with a third lawsuit filed in a federal court in Maryland on April 19.
    • That case was brought by GenBioPro, the manufacturer of a generic version of mifepristone, which the FDA approved in 2019.

Experience GOAT Hospitality's Newest Concept, a Chic and Sophisticated Premier Lounge and Nightclub, Pilo's Beach Club, Now Open in the heart of South Beach!

Retrieved on: 
Friday, April 14, 2023

After captivating the summer crowds as a pop-up in Southampton, New York, this beach club has found it permanent in the heart of South Beach.

Key Points: 
  • After captivating the summer crowds as a pop-up in Southampton, New York, this beach club has found it permanent in the heart of South Beach.
  • Pilo's Beach Club offers an exquisite and sophisticated aura that sets it apart from the typical tiki-inspired beach clubs.
  • Pilo's Beach Club spans over 3,500 SQFT, bringing a vibrant nightlife scene with elegant wooden finishes, lush greenery, towering palm trees, and emerald-green furniture.
  • To further enhance the unique experience at Pilo's Beach Club, the establishment features a speakeasy named after Gonzalez's son, Santiago, affectionately known as Titi.

NATIONAL DOWN SYNDROME SOCIETY BRINGS 350 ADVOCATES TO CAPITOL HILL FOR ANNUAL DOWN SYNDROME ADVOCACY CONFERENCE

Retrieved on: 
Thursday, April 13, 2023

Washington DC, April 13, 2023 (GLOBE NEWSWIRE) -- The National Down Syndrome Society (NDSS) will host their annual Down Syndrome Advocacy Conference April 17 – 19, 2023 in Washington, D.C.

Key Points: 
  • Washington DC, April 13, 2023 (GLOBE NEWSWIRE) -- The National Down Syndrome Society (NDSS) will host their annual Down Syndrome Advocacy Conference April 17 – 19, 2023 in Washington, D.C.
  • This event will bring over 350 advocates, including over 100 advocates with Down syndrome, from 42 states and the District of Columbia to advocate for legislative priorities that impact the Down syndrome community.
  • The conference is held in partnership with advocacy partners, the National Down Syndrome Congress (NDSC) and the Global Down Syndrome Foundation (GLOBAL) as well as the Down Syndrome Affiliates in Action (DSAIA), GiGi’s Playhouse Down Syndrome Achievement Centers (GiGi’s Playhouse), and LuMind IDSC Foundation (LuMind IDSC).
  • Attendees will advocate for nondiscrimination in the organ transplant system, elimination of subminimum wage, inclusion of the Down syndrome community in Alzheimer’s disease initiatives, and more.

Global Gel Documentation Systems Market to 2028: Growing demand for Advanced Techniques Fuels the Sector - ResearchAndMarkets.com

Retrieved on: 
Wednesday, April 5, 2023

Additionally, the growing aging population across the globe which is susceptible to different kinds of chronic diseases is further expected to increase the demand for gel documentation systems, thereby fuelling the market growth through 2028.

Key Points: 
  • Additionally, the growing aging population across the globe which is susceptible to different kinds of chronic diseases is further expected to increase the demand for gel documentation systems, thereby fuelling the market growth through 2028.
  • Besides, the growing demand for advanced gel documentation systems and increasing focus on affordable gel documentation systems with quick results across the globe are further expected to support the gel documentation systems market during the forecast period.
  • The main factor which will drive the gel documentation systems market is the increasing usage of advanced techniques like western blot and southern blot for the diagnosis of chronic diseases.
  • In this report, global gel documentation systems market has been segmented into the following categories, in addition to the industry trends which have also been detailed below:

FLEISHMANHILLARD UNVEILS 'THE YOUTH KALEIDOSCOPE' REPORT EXPLORING THE MOTIVATIONS OF THE NEXT GENERATION

Retrieved on: 
Monday, April 10, 2023

ST. LOUIS, April 10, 2023 /PRNewswire/ -- FleishmanHillard's global Culture Unit today released The Youth Kaleidoscope Report, which sees Gen Alpha and Gen Z shapeshifting their quest for balance in today's tumultuous conditions.

Key Points: 
  • But much of this sentiment inadvertently puts pressure on these young people to conform and doesn't look to their individual and nuanced characteristics.
  • It presumes young people to be a uniform monolith instead of a generation pulsating with ideas and passions for their futures.
  • Responding to this balance by broadening how we look at and define this generation will be of the utmost importance in building rapport and engaging with this generation."
  • "The next generation are breaking traditional boundaries, and I've loved being able to do this within the modelling world," Goldstein said.

LSVT Global, Which Offers Training in Speech Treatment for People with Parkinson's Disease, Renews ASHA Corporate Partnership

Retrieved on: 
Thursday, April 6, 2023

ROCKVILLE, Md., April 6, 2023 /PRNewswire-PRWeb/ -- The American Speech-Language-Hearing Association (ASHA) announced today that LSVT Global, the developer of LSVT LOUD®, a speech treatment for people with Parkinson's disease and other neurological conditions, has renewed their status as an ASHA Corporate Partner.

Key Points: 
  • ASHA's partnership with LSVT Global will offer ASHA members who are speech-language pathologists access to leading techniques that improve the speech of adults and children with neurological conditions.
  • Our partnership with LSVT Global will aid us by strengthening our membership's ability to improve the speech of people with neurological conditions."
  • "LSVT Global is eager to engage with the ASHA community in 2023 through our renewed corporate partnership," said Cynthia M. Fox, PhD, CCC-SLP, CEO and Co-Founder of LSVT Global.
  • "This partnership presents an excellent opportunity to keep ASHA members informed of ongoing LSVT LOUD research and new training opportunities.

Global Down Syndrome Foundation to Honor Congresswoman Katherine Clark, Congressman Pete Stauber and Ambassador Abby Ashbrook at its Annual AcceptAbility Gala in D.C.

Retrieved on: 
Thursday, March 30, 2023

GLOBAL will present its prestigious Quincy Jones Exceptional Advocacy Award to Congresswoman Katherine Clark (D-MA) and Congressman Pete Stauber (R-MN) for their unwavering support for GLOBAL and the people with Down syndrome we serve.

Key Points: 
  • GLOBAL will present its prestigious Quincy Jones Exceptional Advocacy Award to Congresswoman Katherine Clark (D-MA) and Congressman Pete Stauber (R-MN) for their unwavering support for GLOBAL and the people with Down syndrome we serve.
  • Self-advocate Abby Ashbrook will be recognized as GLOBAL’s 2023 Ambassador.
  • The event will raise critical funds and awareness for GLOBAL’s life-changing research, medical care and government advocacy for people with Down syndrome.
  • See the full list of this year’s Congressional Hosts and Gala Congressional Committee on the AcceptAbility Gala website .

Acclaimed Japanese Calligrapher with Down's Syndrome Performs in the UK

Retrieved on: 
Tuesday, March 28, 2023

LONDON, March 28, 2023 /PRNewswire/ -- Acclaimed Japanese calligrapher Kanazawa Shōko will travel to the UK for two events organised by Japan House London in collaboration with the Down's Syndrome Association.

Key Points: 
  • LONDON, March 28, 2023 /PRNewswire/ -- Acclaimed Japanese calligrapher Kanazawa Shōko will travel to the UK for two events organised by Japan House London in collaboration with the Down's Syndrome Association.
  • Each event will consist of a calligraphy demonstration by Kanazawa herself and a talk by her mother and mentor Kanazawa Yasuko.
  • They will take place on 1 April 2023 at the Langdon Down Centre's Normansfield Theatre, and on 2 April 2023 at Japan House London.
  • Kanazawa Shōko is one of Japan's most acclaimed contemporary calligraphers.