Rare Disease Patient Advocates Gather in San Diego for a Week of Events to Connect, Learn, and Empower
ALISO VEIJO, Calif., June 27, 2023 /PRNewswire-PRWeb/ -- Members of the rare disease community from around the world will gather in San Diego in September for Global Genes' Week in RARE, a set of events for patient advocates to network, learn, and inspire each other.
- This will be a unique opportunity to gather and engage rare disease advocates and leaders in the same space for conversation.
- ALISO VEIJO, Calif., June 27, 2023 /PRNewswire-PRWeb/ -- Members of the rare disease community from around the world will gather in San Diego in September for Global Genes' Week in RARE, a set of events for patient advocates to network, learn, and inspire each other.
- Week in RARE includes the RARE Health Equity Forum , the RARE Advocacy Summit , the RARE Champions of Hope Awards , and meetings for Global Genes' Global Advocacy Alliance and its RARE Corporate Alliance.
- The RARE Advocacy Summit (formerly known as the RARE Patient Advocacy Summit), one of the world's largest gatherings for the rare disease community, runs September 19 through 21.