This Rare Disease Day, Feb. 29, CORD celebrates the launch of the Canadian Rare Disease Network - but patients still have no access to the promised $1.4 billion in federal funds for rare disease drugs
The federal government promised a Rare Disease Drug Strategy five years ago and announced $1.4 billion in drug funding last March.
- The federal government promised a Rare Disease Drug Strategy five years ago and announced $1.4 billion in drug funding last March.
- CORD is wildly optimistic with the milestone launch of the Canadian Rare Disease Network (CRDN) – a collaboration that brings into reality the vision and strategy that CORD first proposed in 2015.
- While celebrating the birth of the CRDN, the rare disease community is marking Rare Disease Day with mounting impatience due to unconscionable delays in making available the committed federal government funding for rare disease medicines.
- CORD has been holding a Rare Disease Day 2024 Summit in Ottawa February 28 and 29.