Dr. Rachele Hendricks-Sturrup Discusses Trends in Health Data

Today, Dr. Rachele Hendricks-Sturrup, Health Policy Counsel, is sharing her perspective on health data and privacy.

Metadata

Provider:

Future of Privacy Forum

URL:

https://fpf.org/2020/07/08/dr-rachele-hendricks-sturrup-discusses-trends-in-health-data/

Retrieved on:

Wednesday, July 8, 2020

Information

Tags:

Data, Health informatics, Information, Health data, Computing, Medical privacy, Digital technology, Internet privacy, Big data

Summary

Key Points:

Today, Dr. Rachele Hendricks-Sturrup, Health Policy Counsel, is sharing her perspective on health data and privacy.
She has been a Research Fellow in the Department of Population Medicine at the Harvard Pilgrim Health Care Institute and Harvard Medical School and, as FPFs health lead, continues to address ethical, legal, and social issues at the forefront of health policy and innovation, including genetic data, wearables, and machine learning with health data.
What first attracted you to working on the privacy implications of health data?
For this reason, I felt compelled to advocate for uses of data in ways that are purposeful, meaningful, and intentional to address specific problems in health care and health science research.
Health data drives payment incentive structures in health services and approvals for new drugs and medical devices.
New types and uses of data in the health space mean that its really important to get the data right.
I actually think a lot about behavioral data mainly how that data is being combined with other types of personal data like geolocation data, genetic data, and consumer health data.
Combined data is of strong interest to many, if not all, health companies and other business verticals engaged in health care.
One smart way to use that data is to combine it with qualitative data that can bring context as to why we see poor quantitative medication adherence data.
What do you see as the big, rising issues around uses of health data over the next few years?